#chronicallyawesome

[apologyacceptedcaptainneeda]

DONT take a persons medical device

I shouldn’t have to say that but here we are

One of the managers at work likes to take and hide peoples stuff as a joke. My manager took my pulse ox when I wasn’t looking. When I noticed it was gone I started to panic. A pulse ox is minimum $30 and I’ve had mine for over 7 years and have named it. So yeah I was panicking. I immediately paged my manager to my register and when he arrived I demanded it back. He did give it back.

I informed him that it was stupid and dangerous of him to take a medical device from someone especially like that.

So again

DONT TAKE A PERSONS MEDICAL DEVICE

[champaignebaby]

I just want to make it through my best friend’s wedding.

[stochastique-blog]

Here we go

Little things like this make my ocd heart happy.

I have noticed over the years that my #OCD flares up when I’m stressed. Which makes sense – I have a dozen things right now that I can’t fix or manage or solve. But I CAN bring order to cupboards, organize drawers, colorize books.

I bought a pile of cheap plastic organizers from #DollarTree - this sage green color wasn’t my first choice (and I may still spray pain them all?) but it was the only color that had lots of sizes available. I hadn’t measured or planned ahead. I just happened to be out earlier this week, I’ve had the worst chronic illness flare in years - and impulsively decided: I will reorganize all the things.

I feel like trash. But my laundry cupboards LOOK less like trash now. And that’s… something, right? ;) Right.

Swipe to see the overflowing mess it was. Amazing how a few pretty storage boxes can bring chaos under control.

Anyone else an #ocdclean type? I need things symmetrical, in groups of 3’s, colorized, etc. My brain gets itchy when they’re not.

#ocdawareness #chronicallyawesome #chronicillnesslife #chronicillness #chronicallyill #autoimmunedisease #flareup #organizedhome #controlthechaos #cleaningday #onestepatatime (at Terrace Heights, Washington) https://www.instagram.com/p/CoYvKU9rwHd/?igshid=NGJjMDIxMWI=

[myalgicencephalomyelitiscfstom]

[angiethewitch]

big stompy doc martens paired with a wheelchair is a god tier look tbh

[wiseoldowl72]

To all concerned, due to the ableist situation in the More Profound Con (Nov 5-6) I have dropped out of my panel in support. I am chronically ill and our whole community needs to be taken seriously.

[raydrawsdaly]

Human!Hordak! 💜❤️

she-ra is so important to me... i’ve never seen an intra-abled relationship in children’s media! being chronically ill and being autistic are two different disabilities that come with their own struggles and wonders, it’s so wonderful to have a space to explore that!

i’d like to think hordak’s armor in a human!au would be orthotic devices for his disability! 

[picc0l0-pocketer]

when your medicine refuses to swallow

[apologyacceptedcaptainneeda]

I brushed my teeth! And flossed! And used mouthwash!

Go me!

It took so many spoons

[champaignebaby]

Day after day the feeling never goes away. After a 8 year marriage 9 years together. The trauma of being yelled at and having things thrown at my face for even stating I was tired after a 16 hour shift. It’s hard to openly talk about all the things In the picture. Happily divorced and found my person.

Things I wish I could say without ridicule:

This was not in my job description.

I think it’s unfair that we have assigned parking and I’m the furthest parking spot away from the door based off I’m the youngest when I am indeed permanently disabled and have the paperwork to prove it and a handicap parking permit.

My body is relapsing and I need to have the day off or work from home.

My legs lost feeling. I CANT WALK A-HOLE!

I need help.

Why am I always the responsible adult.

I know there are many medications for this issue. We don’t share a body. In return you don’t know my pain tolerance or my thrush-hold. Trust me. If I wanted medication I’ll go to a doctor’s office.

I sleep 15 hours. Yes. I am still tired. Let me fall back to sleep and you do what you wanted me to do.

[megpie]

Headed out for Sunday Funday shenanigans. 😘😘😘 The wild child's dad is taking her to the mall, so a free afternoon for me. Not enough sunshine to tan on the patio (which is good, lol, since I'm sunburned!) So I'm gonna run around town causing trouble instead. Hope everyone is having a lovely Sunday, and ends the weekend beautifully. 🧡 #sundayfunday #happyvibes #makelifebeautiful #makeyourownmagic #chronicallyill #chronicillness #chronicallyawesome #beyourownhero #beYOUtiful (at Terrace Heights, Washington) https://www.instagram.com/p/Cp_qDEvsUam/?igshid=NGJjMDIxMWI=

[myalgicencephalomyelitiscfstom]

[dmnsqrl]

Posted @withregram • @pacingpixie Self care is a privilege. Being chronically ill means constantly prioritising and sacrificing tasks. What do you risk doing yourself? What do you ask someone else to do? Have you asked for too many things? What if you don't get the vital thing done? It's a calculator ticking over every day, as we barter, struggle and compromise to keep our heads above water. ID The Self Care Equation (Or why my hair is dirty, skincare nonexistent and I'm still wearing PJs at 3pm) Underneath it says 6 tasks to be completed - 2 tasks carer can complete - 1 task I can complet = 3 tasks not completed. Above this summer there are icons corresponding to different tasks: Hairbrush, washing machine, shower, cutlery, toiletries bottles, cleaning products. In the first section all 6 icons are present, then the cleaning products and cutlery, the the hairbrush and then the shower, washing machine and toiletries. #DisabilityAwareness #DisabilityLife #Disability #Disabled #ChronicIllnessAwareness #ChronicallyAwesome #ChronicallyFabulous #ChronicIllness #InvisibleIllness #ChronicallyIll #Spoonie #SpoonieLife #SpoonieCommunity #NoSpoons #Unchargeables #ChronicFatigue #ChronicPain #SocialCare #SelfCare #SelfCareSunday #CheckYourPrivilege #AccessIsLove #Carers #Inclusion #BabeWithAMobilityAid #CripplePunk #DisabilityAdvocacy #Spoonies #TheFutureIsAccessible #ChronicallyBadass https://www.instagram.com/p/CTqPilhJAt7tZiZ5cHG2ly8SQaxoGJ5VX1_JK00/?utm_medium=tumblr

[pynapplepyro]

Me : Has a chronic illness that requires multiple doctors

Also me : Dislikes wasting their time and our money so never contacts them

My husband : YOU are SICK! CALL YHE DOCTOR! TAKE ALL THE MONEY! FFS!

[nikidiki88]

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A post shared by 𝔍𝔢𝔫𝔫𝔢𝔰𝔰 Nikki 니키 🧿🏴󠁧󠁢󠁳󠁣󠁴󠁿🇺🇸🌈🇰🇷🪷♌︎ (@jenness88)

IV day. Fairy Juice top up #chronicallyawesome #chronicillnesswarrior #uc #bleh #fairyjuice https://www.instagram.com/p/CR16nNRH9na/?utm_medium=tumblr

[apologyacceptedcaptainneeda]

My oxygen dropped to 90. While. I. Was. Sitting.

FML