#medicallyfragile
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Please help Josiah and the kids get a van for make a wish to modify! Josiah is due his wish and we want to modify a ford transit van for his wheelchair and also room for his foster handicap sibling as well..and the rest of the tribe of bio/foster kids. Every donation of $25 or more will receive a cuddle critter approx 18” just in time for Easter! Help Jojos post be shared and show that his village cares. ♥️ http://www.gofundme.com/josiahswheels Excited to share this item from my #etsy shop: Crochet Lulu the bunny #crochet #easterbunny #easter #bunny #rabbit #makeawish #transit #handicap #fundraiser #viral #josiahsjourney #cerebralpalsy #meningitis #epilepsy #fostercare #medicallyfragile #therapeuticfostercare #roadtorecovery #wish https://etsy.me/2SZq7GS https://www.instagram.com/p/Bu3WOfll7J7/?utm_source=ig_tumblr_share&igshid=132ijyloblq3r
#etsy#crochet#easterbunny#easter#bunny#rabbit#makeawish#transit#handicap#fundraiser#viral#josiahsjourney#cerebralpalsy#meningitis#epilepsy#fostercare#medicallyfragile#therapeuticfostercare#roadtorecovery#wish
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Emma was all smiles because she had her first button change and now we get to use all of our super cute tubie pads instead of having to tape it down daily! I’m excited because even the super sensitive tape and her skin aren’t friends and I also love trying to help the environment with reusable products!! We hope everyone stays safe in the craziness of life right now and wash them hands or stay away from this medically fragile kiddo!! #emmaleimomi #babysmiles #gtube #gtubelife #tubie #tubietoddler #tubiepad #tubiechange #tubiemom #tubielife #medicallyfragile #medicallyfragilekiddo #mygirl #geneticmutation #nr2f1 #bbsoas #onh #ona #cvi #asd #spd #hypotonia #oromotordysfunction #developmentdelay #developmentaldisability #invisibledisability https://www.instagram.com/p/B9sySk9lsgu/?igshid=y2ptts6j5tj2
#emmaleimomi#babysmiles#gtube#gtubelife#tubie#tubietoddler#tubiepad#tubiechange#tubiemom#tubielife#medicallyfragile#medicallyfragilekiddo#mygirl#geneticmutation#nr2f1#bbsoas#onh#ona#cvi#asd#spd#hypotonia#oromotordysfunction#developmentdelay#developmentaldisability#invisibledisability
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Everyday I am impressed by this dynamic duo!!! They are my SuperHeros!! #servicedog #servicedogteam #servicedogsofinstagram #notallheroswearcapes #happyboyhappydog #pomcisland🌴 #proopiomelanocortinawareness🌴 #proopiomelanocortin🌴 #medicallyfragile #hemakesmesoproud🌴#servicedogtuck #NateTheGreat🌴 https://www.instagram.com/p/BwCwqEEJHOC/?utm_source=ig_tumblr_share&igshid=1a9l5i0cdqwm6
#servicedog#servicedogteam#servicedogsofinstagram#notallheroswearcapes#happyboyhappydog#pomcisland🌴#proopiomelanocortinawareness🌴#proopiomelanocortin🌴#medicallyfragile#hemakesmesoproud🌴#servicedogtuck#natethegreat🌴
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Snowed in! When this #specialneedskid can’t go to her first sleepover because it’s unsafe to travel, there were tears and cuddles and promises she would still get the opportunity sometime ... instead she had to hang with her #specialneedsmom and her #specialneedssibling and her friends. . . . . #mommyslittlehelper #nothingisimpossible #mieaclesdohappen #tubie #22q11 #22q ##22qtie #blenderizeddiet #feedingtube #gtube #ftt #autism #digeorgesyndrome #teensofinstagram #cyclicvomitingsyndrome #specialneeds #specialneedsnutrition #nourishtoflourish #disability #geneticdisorder #empowersurgeyourlife #soar #timetochangetheworld #forcetobereckonedwith #raredisease #guthealth #medicallyfragile 📷: @lisajoananderson https://ift.tt/2DJhqgy
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Just a rant
There are mornings where the night before has been so rough that I just don't want to get out of bed. There are nights where Bug is so overworked that sleep is not a option and she just wants to be held all night. There are days where I can't remember my own name but I can easily recite medication doses and hormone levels. There are days and weeks where it feels like everything is just getting worse, but through it all we don't give up, we don't break down, and we most importantly never let either of our daughters see us hit bottom. We support each other, we tag team when the other is at the lowest , and we never let our frustrations hurt the other. That being said I can see why divorce becomes a option to some when raising a medically fragile child. I can see where it gets to the point where you just can't fight anymore. I can see how special needs parents forget to take care of themselves. It's easy to run yourself into the ground when you have a child who needs 24/7 medical care. It's also easy to forget that most parents don't have to walk in our shoes, they don't wake up in a cold sweat at the alarm of the seizure monitor, they don't have to count the caloric intake of their child, they don't have to watch their child struggle to do the most simplest of things. They don't know the joy of their five year old finally being able to sit unsupported for at least a minute or their child signing I Love You for the first time.
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Working on new item! Our crochet percheron horses to mimic our first two rescues..Spirit and Nova ♥️ Mad Hatter Farm ltd and Horse Rescue #horse #horses #horserescue #farm #therapyfarm #therapyhorse #rescue #medicallyfragile #trachvent #adoption #therapeuticfostercare #specialneeds #fundraiser #horsehat #cow #cowhat #cows #farmlife #percheron #drafthorse #crochethorse (at Lincoln County, Georgia) https://www.instagram.com/p/CLac7ZjlMIn/?igshid=3xgalsie5c4z
#horse#horses#horserescue#farm#therapyfarm#therapyhorse#rescue#medicallyfragile#trachvent#adoption#therapeuticfostercare#specialneeds#fundraiser#horsehat#cow#cowhat#cows#farmlife#percheron#drafthorse#crochethorse
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Selling these adorable cute farm hats for $15 to help cover costs for our horses we have rescued/our horse rescue farm. We have the AG coming out next week to offically license us! All proceeds go towards their care...which adds up quickly! We have already spent quite a bit for hay/feed/vet/shelters. Any size same price! My sweet girl modeling one today at her appts ♥️ Pretty soon we will be able to show her face to everyone as our daughter! Mad Hatter Farm ltd and Horse Rescue#horse #horses #horserescue #farm #therapyfarm #therapyhorse #rescue #medicallyfragile #trachvent #adoption #therapeuticfostercare #specialneeds #fundraiser #horsehat #cow #cowhat #cows #farmlife (at Lincoln County, Georgia) https://www.instagram.com/p/CLaYytkFKny/?igshid=2it31438iusw
#horse#horses#horserescue#farm#therapyfarm#therapyhorse#rescue#medicallyfragile#trachvent#adoption#therapeuticfostercare#specialneeds#fundraiser#horsehat#cow#cowhat#cows#farmlife
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We are looking for horse blankets/hay/shelters! We were able to tarp a temporary area up today as our stubborn drafts were determined to stand in the cold rain..then started shivering. They just are older and dont have the fat to help. We have them both blanketed and dry now. We want to put several shelters up on the back property to ensure lots of spots to keep warm or cool. We pick the 4 other horses up tomorrow so appreciate any donations monetary or items! [email protected] is our paypal We need all the help we can get to help all these horses get the care and food they need plus continue to rescue/rehome more in the future #horse #horserescue #therapy #therapyfarm #madhatterfarm #madhatterfarming #madhatterhorserescue #therapeuticfostercare #specialneeds #medicalfarm #medicallyfragile #nonprofit #nonprofitorganization #nonprofitsofinstagram #nonprofithorserescue (at Lincoln County, Georgia) https://www.instagram.com/p/CLQRMbbl9Ik/?igshid=13gtsahoaz1dp
#horse#horserescue#therapy#therapyfarm#madhatterfarm#madhatterfarming#madhatterhorserescue#therapeuticfostercare#specialneeds#medicalfarm#medicallyfragile#nonprofit#nonprofitorganization#nonprofitsofinstagram#nonprofithorserescue
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We are moving! We need to raise funds to install a lift for the stairs as well as other handicap modifications to new home. Be apart by buying a one of a kind Halloween costume this year plus support helping the kids in my home. I am a medical mom and foster mom to special needs/medical children. Excited to share this item from my #etsy shop: Halloween dress and witch hat combo #halloween #halloween costume #witch #therapeuticfostercare #fostercare #medicallyfragile #specialneeds #handicapmodifications #costume https://etsy.me/33kcBUy https://www.instagram.com/p/B1CbfycnYI6/?igshid=1mdk6g7giu5t5
#etsy#halloween#witch#therapeuticfostercare#fostercare#medicallyfragile#specialneeds#handicapmodifications#costume
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It can be crazy chaos never know what’s going to happen next being a medical special needs mom/foster mom..and single momma to boot. I wouldn’t trade this life for the world. Crocheting and loving on children..best life ever. #crochet #fostermom #fostercare #medicalmom #medicallyfragile #specialneeds #doglife #dogmom #bestjobever https://www.instagram.com/p/B0R4dYMlVFJ/?igshid=1ru5rkzmzaqun
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I’ll never forget how excited yet scared I was to bring him home...yet today, I couldn’t imagine our family without him. He lived his first year of life in a children’s hospital..and then the last 7 months with me. Im passionate about my #specialneeds kids and I’m a proud #specialneedsparent and #specialneedsfamily . There are many many many more kids out there like A and like my Jojo living in hospitals or sad situations..needing a home..a warm bed..an #advocate #fostercare #adoption #medicallyfragile #tracheostomy #trachbaby #trachlife #cerebralpalsy https://www.instagram.com/p/B0FO7VZliCf/?igshid=17cv98t3grez0
#specialneeds#specialneedsparent#specialneedsfamily#advocate#fostercare#adoption#medicallyfragile#tracheostomy#trachbaby#trachlife#cerebralpalsy
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Handmade children’s items and also adult from faux taxidermies,hats,dolls,diaper sets,and more. Get a special one of a kind item all while supporting a good cause. Maddies Mad Hatters is run by a stay at home work from home foster mom and medical special-needs mom. All items will continue to support that cause as well as run a therapeutic Farm for the children that come to their home. www.facebook.com/maddiesmadhatters Maddiesmadhatters.com #singlefostermom #fostercare #crochet #specialneeds #medicallyfragile #farm https://www.instagram.com/p/BzDl95tldTS/?igshid=1dbeqqtocgfob
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You should see the looks I get at times going out with my tribe to the store 😉😆@fostercare #singleparenting #ificandoitssocanyou #singlefostermom #mytribe #medicallyfragile #specialneeds https://www.instagram.com/p/ByFRma6lZWI/?igshid=n1onij7ohsb
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Help us raise money! My family is growing! 8 kids..and the van is for 7. I will need to van by the end of this month..and our ac unit decided to go out on the farm causing us to have to get a whole new unit..so yes. It’s time for fundraising! Any donation of $25 and over will get a cuddle critter animal any color. Leave what you would like in comments with every donation as well as contact for address. www.gofundme.com/josiahswheels #fundraiser #handicapvan #fostercare #medicallyfragile #josiahsjourney #cerebralpalsy #specialneeds #epilepsy #therapeuticfostercare #crochet #handmade https://www.instagram.com/p/BxN_mWTlNX4/?igshid=3ek8i8x90vwg
#fundraiser#handicapvan#fostercare#medicallyfragile#josiahsjourney#cerebralpalsy#specialneeds#epilepsy#therapeuticfostercare#crochet#handmade
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I guess I never realized the severity of his sickness until they told me they were admitting him to ICU. One of my girls had what we thought was allergies that turned into a cold. No big deal, right? Not so much with our medical kids. A friend lost her child to RSV last year. About the same time Josiah is recovering another mom from my support group lost her cerebral palsy 4yr old warrior to RSV. It sunk in deep when I read that. So close. So similar. I felt that impact before I even read that as I drove to choa the night he was transferred from the local er. I thought deep thoughts of how it would feel to not drive home with my warrior buddy. To go home to all our memories, but not him. Just thinking that, writing that, in this moment, causes a deep pit in my stomach. Oh the walk we walk as parents. As medically fragile parents. It’s HARD. So many what ifs I would do differently. So many moments I would hold him more. Kiss on him more. God gave me more moments with him and he is home with me. I am thankful for that. Let’s please remember the parents that don’t have that luxury. Let’s keep them ever in our thoughts and prayers.. Also, if you have someone you know that has a child like my son, be there for them. Give them words of strength and lift them up when days like last week happen. We need it. It takes a village to raise my tribe. I have a pretty awesome village. I am thankful to God for that. #village #tribe #medicallyfragile #specialneeds #cerebralpalsy #icu #rsv #cherisheverymoment https://www.instagram.com/p/Bw1eIv7F0GY/?igshid=110p01xwz3j00
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Everyday I am impressed by this dynamic duo!!! They are my SuperHeros!! #servicedog #servicedogteam #servicedogsofinstagram #notallheroswearcapes #happyboyhappydog #pomcisland🌴 #proopiomelanocortinawareness🌴 #proopiomelanocortin🌴 #medicallyfragile #hemakesmesoproud🌴#servicedogtuck #NateTheGreat🌴 https://www.instagram.com/p/BwCwqEEJHOC/?utm_source=ig_tumblr_share&igshid=or0er908o3ij
#servicedog#servicedogteam#servicedogsofinstagram#notallheroswearcapes#happyboyhappydog#pomcisland🌴#proopiomelanocortinawareness🌴#proopiomelanocortin🌴#medicallyfragile#hemakesmesoproud🌴#servicedogtuck#natethegreat🌴
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