my-undiagnosed-life - Tumblr blog

[my-undiagnosed-life]

Humans are adorable.

Supporting evidence:

1. Humans say ‘ow’, even if they haven’t actually been hurt. It’s just a thing they say when they think they might have been hurt, but aren’t sure yet.

2. Humans collect shiny things and decorate their bodies and nests with them. The shinier the better, although each individual has a unique taste for style and colouring

3. Humans are not an aquatic or even amphibious species, but they flock to bodies of water simply to play in it. They can’t even hold their breath all that long; they just love to splash!

4. When night falls and the sky goes dark, humans become drowsy and begin to cocoon themselves in soft, fluffy bedding.

5. Some humans spend time in each other’s nests! Just for fun! It’s not their nest; they’re just visiting each other.

6. Some humans use pigments and dyes to make their bodies flashy and colourful! They even attach shiny dangly bits to their cartalidgous membranes!

7. Humans are very clever, and sometimes adopt creatures from other species into their family units. They don’t seem to notice the obvious differences, and often raise them alongside their own young!

8. If a human sees another creature in distress, they can commonly be observed trying to help! Even at their own risk, most humans are deeply compassionate creatures!

9. If a human hears a particularity catchy sound or tune, it will often mimic it, even to the point of annoying themselves!

10. Sneezes are entirely involuntary, and completely adorable. Especially when the human in question becomes frustrated

11. Humans love treats!!! Some more than others. Many humans will save these treats specifically for a later date when they are in need of comfort or reassurance. IE, pickles, pop tarts, Popsicles, etc

12. They’re learning to travel in space!!! They can’t get very far, but they’re trying!!! So far, they’ve made it to the end of their yard, and have found rocks

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doctors in the 19th century really were like maam i diagnose you with woman

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Commission for the lovely @dracze ♥ Thank you so so much !! This is based on the fiction Half Way Across. Seriously, read it. It’s…stunning. ♥

[my-undiagnosed-life]

Does it really hurt, or is it all in my head?

A novel by me.

Featuring such great chapters as:

- Is my pain tolerance really high or does this just not hurt? - How much would this be hurting a normal person? - Do I need to suck it up and carry on? - At what point does this need medical attention?

and my personal favourite,

- Am I making a big deal out of nothing: will the doctors believe me?

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No one ever teaches you how to mourn your health. You just realize one day that it’s gone, and you are not the same as you were before. Most days, it’s all right, but then something happens: you can’t go to dinner with your family because you’re nauseous, you can’t go hiking because fatigue and pain. You can’t you can’t you can’t, and then it hits you: you are irreversibly changed.

[my-undiagnosed-life]

One thing about chronic illnesses that people really don’t seem to understand is that rest doesn’t make it better, at best it can slow down how bad you feel at that time or help it feel a bit more bearable but it’ll get worse if it wants to whether you’re resting or not

Sometimes you’ll be forced to rest because you can’t do anything else, but that doesn’t mean resting makes it better. When you’re chronically ill, you don’t get better, and rest definitely doesn’t leave you feeling refreshed and full of energy

If your whole body hurts and it’s painful to move then you have to rest but it’s horrible doing that the whole time, I know you’re supposed to rest when you’re sick but actually a lot of spoonies I’ve talked to hate it and would love to be able to be more active but we can’t - the last thing we want to do is spend more time at home in bed on our own

Resting doesn’t make anything better for me, it just helps to stop it being worse - everything can still hurt if I don’t do anything and I’d be happier if I could go out, even if that would hurt much more

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How I visualize my chronic fatigue.

Pencil and watercolors on paper, July 2016

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Telling my therapist about using symptoms/behaviors:

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Honestly feeling so discouraged. Been without my wheelchair for over a year, but everyday I’m getting closer to having to use it full time again. My body hurts worse than ever. 

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Dear able-bodied people,

Just because I am functioning, does not mean I am well. I can force myself to function when I have no other choice. It does not mean that I am having a good day, that my condition is not as bad as it seems, or that my condition is cured/well controlled. It simply means that I am operating outside of my limits out of necessity.

Just because I am functioning, does not mean I am well.

[my-undiagnosed-life]

I can pinpoint the exact moment I fell for you, the moment of no return. It was my head resting on your shoulder. Your bare skin so close to my nose. I inhaled and your soul swam through my body, settling in my lungs, promising to never leave.

Me, 1.2.17, “Me and the Hipster” (via lovelustquotes)

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It Is Never Too Late...

to find love

to start your career

to pursue a passion

to begin your recovery

to start being true to yourself

to love yourself

[my-undiagnosed-life]

do other countries have a groundhog day? do you all gather on February second and watch with bated breathe as a groundhog emerges from its hole? do you forecast the next six weeks of weather based on if the groundhog is frightened by its own shadow and returns to the hole?

[my-undiagnosed-life]

“Basically every time I pet my cat.” - Ann Chen