#Invisible disability

[createyourownnarrative]

As a Covid Long Hauler for almost 4 years, I have always said I feel like Covid aged more 10-20 years. Maybe there is truth to this in the brain? This is terrifying. Just furthers my depression that years were robbed from my life. Robbed. Stolen. Shaved off.

Article Below:

[eviestardust]

The T in Tachycardia - Malevolent Comic

The idea of Arthur having tachycardia has always been really special to me, so here’s a quick comic exploring that :]

People with invisible disabilities I SEE YOU!! Take some time to rest you deserve it <33

[problem-project]

So I found out today that the black spot in my vision is officially permanent and that if my medicine doesn't start working again at a higher dose, then I will need a stent/shunt placed in my head. Brain surgery scares me so much, but it's impossible to function every day if I don't somehow get my head pressure managed 😞 send me positive vibes and well wishes pls, it sounds like I might need it 🖤

[lupusbaby]

Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.

[chroniclesofchronicillness]

This makes so much sense

[yellow-dress-basil]

Since the Paralympics are happening and I’m seeing all sorts of people saying “See? This person doesn’t let their disability stop them!”

I would like you to remember that Paralympions are OLYMPIC LEVEL ATHLETES.

How would it feel if I compared your output to that of a literal olympic athlete and used that to justify not helping you or giving you what you need?

Oh, well Michael Phelps and Simone Biles can do it - why can’t you?

Thats how you sound.

[zebulontheplanet]

Just a reminder that people who still live with their parents as adults deserve respect and for you to stop being ableist. There are multiple reasons someone could still live with their parents! From invisible to visible disabilities, finance issues, and more!

Stop using the “well they’re gonna turn into a creep living in their parents basement” punchline! It’s disgusting. STOP. BEING. ABLEIST. STOP. FORGETTING. THE. POOR.

[fadingwonderlandkryptonite]

Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.

[potsiepumpkin]

Useful information

[hellyeahsickaf]

I found an extremely dope disability survival guide for those who are homebound, bedbound, in need of disability accommodations, or would otherwise like resources for how to manage your life as a disabled person. (Link is safe)

It has some great articles and resources and while written by people with ME/CFS, it keeps all disabilities in mind. A lot of it is specific to the USA but even if you're from somewhere else, there are many guides that can still help you. Some really good ones are:

How to live a great disabled life- A guide full of resources to make your life easier and probably the best place to start (including links to some of the below resources). Everything from applying for good quality affordable housing to getting free transportation, affordable medication, how to get enough food stamps, how to get a free phone that doesn't suck, how to find housemates and caregivers, how to be homebound, support groups and Facebook pages (including for specific illnesses), how to help with social change from home, and so many more.

Turning a "no" into a "yes"- A guide on what to say when denied for disability aid/accommodations of many types, particularly over the phone. "Never take no for an answer over the phone. If you have not been turned down in writing, you have not been turned down. Period."

How to be poor in America- A very expansive and helpful guide including things from a directory to find your nearest food bank to resources for getting free home modifications, how to get cheap or free eye and dental care, extremely cheap internet, and financial assistance with vet bills

How to be homebound- This is pretty helpful even if you're not homebound. It includes guides on how to save spoons, getting free and low cost transportation, disability resources in your area, home meals, how to have fun/keep busy while in bed, and a severe bedbound activity master list which includes a link to an audio version of the list on Soundcloud

Master List of Disability Accommodation Letters For Housing- Guides on how to request accommodations and housing as well as your rights, laws, and prewritten sample letters to help you get whatever you need. Includes information on how to request additional bedrooms, stop evictions, request meetings via phone, mail, and email if you can't in person, what you can do if a request is denied, and many other helpful guides

Special Laws to Help Domestic Violence Survivors (Vouchers & Low Income Housing)- Protections, laws, and housing rights for survivors of DV (any gender), and how to get support and protection under the VAWA laws to help you and/or loved ones receive housing and assistance

Dealing With Debt & Disability- Information to assist with debt including student loans, medical debt, how to deal with debt collectors as well as an article with a step by step guide that helped the author cut her overwhelming medical bills by 80%!

There are so many more articles, guides, and tools here that have helped a lot of people. And there are a lot of rights, resources, and protections that people don't know they have and guides that can help you manage your life as a disabled person regardless of income, energy levels, and other factors.

Please boost!

[eptck]

anyway

[sunnywalnut]

Local PSA: invisible disability does NOT mean you can live your life like a "normal person" invisible disability meant that if a stranger looks at you in public they wouldn't know what's going on.

Like if a wheelchair user were to decide to run into a corner store to grab a candy bar because they know that their legs can last that long without, the cashier wouldn't know.

Or someone with "mild" scoliosis walking upright through their shoulder leans slightly to the left. Maybe they just have bad posture. The lady in the next isle thinks to herself.

The person with EDS or POTS or whatever sort of condition wearing compression gloves out and about. Perhaps it's a fashion statement?

Or what about the people with intestinal issues? They can look like "normal people" too.

You never know what someone is going through.

You never know what they might need to survive or if they're on the edge of a flare up or even if they are currently going through one just by one look.

I think both disabled and non disabled need to realize this. You're not "no longer disabled" because you can "live without" disability aids. They're there to help you. To make your life easier. If living without a cane is going to make it more likely you'll fall over and hurt yourself, use the cane.

If you need to sit down to do dishes or cut vegetables because you need to save your legs for taking out the trash, sit down.

If you need a shower chair because you don't know if you'll pass out, use the shower chair.

People are going to judge you regardless for multiple reasons out of your control.

I'd rather they judge you while you're being safe.

You don't need to struggle to be "normal."

You can just be you.

However that looks for you.

Use your disability aids.

[tumble-tv]

"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽

[murielsbottombitch]

why is it so hard for able bodied people to believe that doctors are sometimes just incompetent? you realize doctors are people, right? people that can be bad at their job. that happens sometimes. they don't know everything because there's a piece of paper on their wall that says they're smart, actually. they can sometimes be wrong, actually. they can sometimes cut corners and take the easy way out, actually. they can sometimes hate their job and make that their patients problem, actually. doctors aren't all saints who do everything right the first time. please stop invalidating disabled people when they complain about their terrible treatment at the hands of medical professionals. please stop putting the feelings of doctors over the lives of their patients.

[colourmeastonished]

Body swap movie where one of them has invisible disabilities and when the other one lands in their body they immediately collapse catatonic on the floor from the pain and fatigue and the first one is like 'oh damn guess I don't have to worry that I'm faking it anymore'

[masculinerose]

I really wish butchhood wasn't conflated with being a protector so much, honestly.

I'm a very vulnerable butch. I'm chronically ill, invisibly physically disabled, and have a lot of mental health issues. My masculinity doesn't inherently make me more strong or powerful.

But there's a huge amount of butch culture built on butches being protective of femmes, or just being strong and working in very physically laborious jobs. It feels disheartening to be locked out of a major part of my culture, just because I'm disabled.

So here's to all the disabled butches who want, or are expected to, be strong because toxic masculinity has taught us the mascs are the protectors, but we can't be.

We're the ones who need people to slow down for us. We're the ones who need to sit down and catch our breath after walking a bit. We're the ones who need help. And that doesn't make us any less butch.