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#Ist
doctormagnet · 1 month
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If Exercise Actually Helped As Much As You Say It Does, We Would Not Be Having So Much Trouble Helping People Manage This Condition.
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adam-sztuk · 4 months
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"And although I don't understand why, you and I have this special thing that makes me want to return to your lips one more time."
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zurko48 · 8 months
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toomanyacronyms · 4 months
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Anyone else with Inappropriate Sinus Tachycardia (IST) or Postural Orthostatic Tachycardia Syndrome (POTS) not on meds by choice?
I tried a med to help my body retain salt that didn't really make a noticable difference. Then a beta blocker that made me feel horrible and had to stop after three days. My main treatment is basically salt, water, compression socks, and currently have a rollator but looking into an active wheelchair.
I also failed the Levine Protocol because my symptoms don't really let up enough for me to lay on the floor. I can't build exercise tolerance.
Feel free to answer in the replies!
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ectogeranium · 4 months
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People with chronic body illness, how do you cope? I've only been chronically ill for almost a year and I feel so lost, and like there's no end in sight. I miss what normal feels like. I miss the feeling of not feeling. I'll never feel that way again, and that thought is enough to bring me to tears. Will I live a normal length of life? What even is normal anymore? Does it get better? Will I ever be able to truly cope? I've been avoiding accepting that I'm ill this entire time, and I currently feel like I won't ever accept it. It sucks so much. I feel like I'm drowning in a sea of so many emotions. As much as it sucks to admit, but I'm scared. Scared of the day to day. Scared of the future. I need advice. Anything would help.
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zikllop · 5 months
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Ich brauche leider nichts Außer einer Seele, die verwandt mit meiner ist.
Azad & PA Sports – NICHT ALLES GOLD
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scotianostra · 2 months
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Charles Darwin, was born on 12th February 1809 in Shrewsbury, England.
Yes he is English, but he attended Edinburgh University and he liked us Scots in general, going by this quote from the man:
“Scotchmen are so civil and attentive, It is enough to make an Englishman ashamed of himself.”
As a medical student in Edinburgh, It was on the shores of the Forth, at Prestonpans and elsewhere, that he carried out some of his early scientific work. Long before he became famous for what he discovered in distant southern seas and lands and then used in development of the Theory of Evolution,
Darwin became an expert in the marine life, especially barnacles, of the Lothian coast. He also learnt how to stuff birds (a skill that would be invaluable when collecting scientific specimens during his southern voyage on the ship Beagle, years later). His teacher was a freed black slave, John Edmonstone, who lived in the same Edinburgh street as Darwin. Edmonstone had told him about the South American rainforest in his native Guiana. It’s fascinating to think that this man, John Edmonstone, whose name is all-but forgotten, taught a key skill to Darwin, taxidermy, one of the most influential figures in science. He also gave young Charles an early taste, in his imagination, of one of the globally important natural habitats whose pleasures he would later experience at first hand. Darwin wrote of him:
“By the way, a negro lived in Edinburgh … and gained his livelihood by stuffing birds, which he did excellently: he gave me lessons for payment, and I used often to sit with him, for he was a very pleasant and intelligent man.”
As well as being complimentary of us Scots, Darwin was also a fan of our capital city, he arrived in Edinburgh in October 1825. He and his brother lodged at 11 Lothian Street. He described his lodgings in a letter to his father:
“We got into our lodgings yesterday evening, which are very comfortable and near the College. Our Landlady, by name Mrs Mackay, is a nice clean old body, and exceedingly civil and attentive. She lives in 11 Lothian Street, Edinburgh and only four flights of steps from the ground floor which is very moderate to some other lodgings that we were nearly taking. The terms are 1£-6s for two very nice and light bedrooms and a nice sitting room; by the way, light bedrooms are very scare articles in Edinburgh, since most of them are little holes in which there is neither air not light.
“We set out and walked all about the town; which we admire excessively; indeed Bridge Street is the most extraordinary thing I ever saw, and when we first looked over the sides we could hardly believe our eyes, when instead of a fine river we saw a stream of people.
“We have just been to church and heard a sermon of only 20 minutes. I expected from Sir Walter Scott’s account a soul-cutting discourse of 2 hours and a half.”
Not all was good though, Darwin had no time for Alexander Monro tertius, who had followed his grandfather and father as professor of anatomy, as he describes in a letter to his sister Caroline:
Monro “made his lectures on human anatomy as dull as he was himself.” “I dislike his lectures so much that I cannot speak with decency about them. He is so dirty in person and actions.”
Some years later Darwin visited Edinburgh again, in 1838, on his way to study the geology of Glen Roy. He spent some time on Salisbury Crags, studying the geology described by Hutton.
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strugglinguist · 7 months
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I've had a realization, and I need to share it before I forget it. We need some context first, though.
My therapist and I talked at length about how to navigate the start of the new semester in the best way possible for me in terms of the change in routine, sensory issues, mobility needs, etc. She wanted me try to be proactive rather than reactive to the situations that arise. (She's a very good therapist.)
Sorry this is a long one. Click for more I guess...
For example, I have a heart condition called Inappropriate Sinus Tachycardia (IST). Along with what I like to think of as a medical license to be inappropriate at any time, it means that my heart will race for no reason. Sometimes it's postural like POTS, so I can stand up too fast... but I can also just... feel like I'm sprinting when I'm sitting very calmly. Imagine you sprinted on and off all day. You'd be exhausted at the end of the day, too! With meds now, it's a lot better than it was... so it's more like... I'm jogging throughout the day? The analogy has gotten away from me. 🤷‍♀️
Whenever my heart races, I get really hot and break out in sweat from everywhere. This would just be annoying, but I am REALLY REALLY heat-sensitive. It is one of the top 3 ways I will go into an Autistic meltdown. So my heart races, I get hot and sweaty, and then I can't focus on anything else. It doesn't take long for the situation to get out of hand. I know this, so I have a little desk fan I take with me to classes if I need moving air. This is when my therapist BLEW MY MIND! (She really is a very good therapist.)
She told me that the accommodations I had allowed for myself (sitting while teaching and a fan if I need it) would not avoid a meltdown because they are things you do to maintain equilibrium... if I'm already overstimulation, I don't need maintenance. I need to shock my nervous system back into maintenance. She said, "When you're overstimulated like that, you don't need a fan. You need ice." And like... yes duh! So I got one of those face rollers people use for their skin routine, and it was my "shock" to take with me. And it works AMAZINGLY. Seriously. Life changed.
After all of our prep, this week was a true gauntlet of a test. What was supposed to be a one day adventure of helping the roommate buy a car turned into a 7 day marathon of phone calls, discoveries, learning way too much about the state of car insurance in this country, and then finally getting everything in order for the DMV to close for a holiday weekend. It was also the first week of classes, so I was returning to my job that very loudly rejected me this summer. It's hopefully my last year in academia, so I'm feeling every emotion. Oh and my dad was in the hospital for an amputation. Basically... it was ripe for meltdowns basically every day. And let me tell you... not a one. This summer I've been having a meltdown about once a week. I can't... this therapist deserves all of the money.
Now for my realization! (Remember that was where we started?) I realized that in the past when I knew I was overstimulated and couldn't promptly exit the situation, I would try to dissociate and go to a happy cold place. Somehow, I had subconsciously bought into the idea that Autistic sensory needs are mental needs... and they are quite literally physical, nervous system needs. And when you treat them as such, and don't try to "just push through" the very real physical situation you are in that you are sensitive to... life gets exponentially better. Seriously. My life is so much better. I just needed to share. 😊
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I've seen a lot of people self-diagnosing with POTS recently which is very valid but it's worth mentioning that if your tachycardia is seemingly random (not associated with orthostatic changes) it could be a similar but less common condition called Inappropriate Sinus Tachycardia (IST). This is characterized by a heart rate of more than 100bpm at rest with no determinable cause. If you suspect you have IST but have a doctor who isn't a fan of self-diagnosis, I would recommend getting a finger pulse oximeter and taking your heart rate whenever you're feeling ill. Record it in a chart or journal and bring it in to your doctor. There is no cure but there are treatments like medication and reduction or removal of triggers like caffeine. I've also found deep pressure therapy, especially when provided by an animal, to be very helpful but I'm not sure about the science behind that.
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thatforestprince · 3 months
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people underestimate just how dizzy you can be lying down and not moving your head at all
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aelianated-star · 10 months
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Nothing like almost passing out while peeing to humble you
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doctormagnet · 2 months
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i think every disabled person should be allowed to punch their doctors in the face at least once and face 0 legal consequences
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adam-sztuk · 4 months
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Let our bodies flow 😏😉
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zurko48 · 2 years
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Telling my doctor “can you just put me down, yknow…like they do with sick dogs”
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toomanyacronyms · 5 months
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For context, I have been suffering from Inappropriate Sinus Tachycardia for my whole life and finally got diagnosed two years ago.
I have been to two different physical therapists. I got exercises that don't help like the physical therapists claimed they would. I have been moving and exercising my whole life and have never gotten better. I finally got the second physical therapist to sign off on a rollator. Unfortunately, it only helps a little bit. It's nice to have something to lean on or sit on when needed, but sitting for a less than five minutes doesn't fill my energy levels and I'm back to square one when I have to stand back up.
I'm so worried I'm going to have to make a case for a wheelchair at my next doctor's appointment. I couldn't care less if I have to pay out of pocket. It's trying to get my doctor to understand I have spent my whole life trying and failing to condition myself. I'm worried that I'm going to need to write a detailed report on why my sollater isn't enough.
Does anyone else have similar experiences? I feel so alone and lost right now.
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itsnotthesameanymore · 11 months
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Ich hole, was mir zusteht und geb alles Mama
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