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#PoTs
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how does one cope with severe fatigue when going to school full time and working part time. just. conceptually how can that be done
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beranibear · 2 days
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Sometimes being non-binary, young, having dyed hair, tattoos, piercings and looking able bodied is a curse when having to sit in the accesible seating areas.
Today I was blessed with sitting next to a group of four lovely older people who were happy to talk and didn’t judge, question or stare at me. I was wearing my sunflower lanyard, had my assistance plushie in my lap, noise cancelling headphones but they still talked to me like I was a normal adult.
It’s not often this happens and it makes me quite sad that I am so overwhelmed with happiness over something that people often take for granted. This is something all people of all races, sexualities, genders, abilities etc. should be experiencing every day. This shouldn’t be something that is a rare thing for me (and all others like me) to experience.
Thank you for being so kind. You prove not all older people are uneducated, ignorant, rude or just straight up cunts.
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Caveria for tax
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melblink13 · 2 days
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Hi! I’m a chronically ill design student studying the experiences of people with chronic health conditions interacting with primary care If anyone would like to take my survey that would be great!
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Cat Planter by KeKiwi on Etsy
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vtk13 · 4 months
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“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child
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This makes so much sense
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lessonstobelearned · 3 months
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There needs to be more allowance for disabled people to be angry. People want us to be somber and quiet. Sad at our condition and how hard life is. And yeah that’s allowed. But we’re also allowed to be fucking pissed off. People don’t help, people infantilise, governments don’t supply enough support, places aren’t accessible. This isn’t momentary. This is forever. There are so many things we can’t do and so many things we can’t be. Life isn’t fair. It likely won’t get fair enough for most to be comfortable. Yeah, I’m grieving, I’m sad, but I’m also FUCKING ANGRY.
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seven-winged-liar · 19 days
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Finished and sealed GO pots!
I love how they turned out <3
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gayaest · 4 months
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[ID in alt-text]
Bora! She’s blasian (black and korean!) she has POTS (postural orthostatic tachycardia syndrome) and Chronic Pain! 🩷💜
She takes her rollator everywhere!
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thatchronicfeeling · 4 months
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Reminder that it's less than a month before pharmacies will be closed for end-of-year holidays. Make sure that you will have enough medications to see you into the new year.
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hellyeahsickaf · 1 month
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When I say "I can't do that" what I'm not saying is:
I don't feel interested in doing that
I don't care enough to
I'm too good to be doing that
I don't think you deserve that of me
I'm not in the mood to do that
Not now, I'll do it later
Maybe
If that's what I meant, that's what I would say
What I am saying is:
It will negatively affect me in ways I can't afford
I simply can't physically fucking do that
I can't risk the potentially severe consequences I may experience if I overestimate my ability to do that
And if I explain that I am unable to do that, it is not an invitation to:
Tell me how much my disability hurts your feelings
Ask if I'm sure
Interrogate me because you believe yourself to be the judge of how unwell is unwell enough
Put words in my mouth ("why don't you care?")
Tell me how easy it would be
Remind me of how many other things I've been unable to do. I keep the score more than you do
Accuse me of exaggerating or faking to avoid doing it
Ask me again shortly
Make assumptions about additional explanations. (I must be mad at you, I must not care about this)
Offer compensation in return ("I can pay you" "we can do something you want to do after" "I'll get you something you like")
Ask what it would take for me to suddenly be capable of doing it
Tell me how you do things you have to do when when you're tired and then you can just rest and recover. I am not like you
Remind me of a time I was able to do that. Either I had more spoons or was less severely disabled if at all.
Say that if I was well enough to do X today, I should be able to do this as well. Energy doesn't work that way. Are you capable of running 8 miles right this minute just because you were okay to work a 10 hour shift today? That's what I thought
Suggest simply doing it a certain way ("take your time", "do it sitting down", "we can stop and take breaks", "just take your painkillers", etc)
But it is an invitation to:
Leave me the fuck alone about it 💕
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chronicallydragons · 2 months
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anyone else ever wish they could lie down harder? Like, I'm already horizonal, but I need more horizonal. I need to be absorbed by the floor. I think that would fix me
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1980s-slasher-film · 1 year
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Accommodations are not special, they’re not a leg up, they’re not a benefit. They’re not putting anyone ahead in the race, nor are they taking anything away from others.
They exist to put us on a level playing ground to everyone else, and nothing more.
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I think the reason why people want to know what's "wrong" with disabled people is because they want to reassure themselves.
They want you to say you were in a horrific accident or that you have a well known and treatable disease because they think they can stop it happening to them.
They think their health is a given because they aren't a dangerous driver/ an alcoholic/a drug user/obese/an unhealthy eater etc. Obviously this isn't true but it's easier for them to think of it like that.
Until one day they meet someone who did nothing. They're not really asking "what's wrong with you". They're asking "what went wrong" because they think they can avoid it.
So when they meet someone who made all the right choices, who was healthy, who was safe and one day woke up sick and never got better, it scares them because some part of them realises that it could happen to them.
They can exercise and eat a balanced diet and be as careful as possible and it doesn't do a thing and they can't do a thing about it. That terrifies able bodied people.
People like to look for something or someone to blame and they hate it when there's nothing there.
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i-the-spoonie · 8 months
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Feeling this right now :(
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pots-plus-pans · 1 year
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destigmatize having a body/body parts that look “gross”
destigmatize having a reoccurring rash that you can’t control
destigmatize “strange looking” veins
destigmatize “gross” scarring
destigmatize having bodies that are broken and express that
destigmatize being disabled and having “atypical” physical manifestations of said disability
disabled bodies are beautiful
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