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endoflifespecialist · 4 years
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This little one at 4am decide it was crawl into bed time. She draped herself right across me and that was that. #dowsyndrome #trisomy21 #kids #momlife #ablefinder (at South Ogden, Utah) https://www.instagram.com/p/CEOp1yAhUD2/?igshid=iwwevopht7ma
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lucykimbow · 6 years
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These Parents Are Here To Show The Positive Sides Of Raising Kids With Autism
Children with autism spectrum disorders face many challenges navigating life as they grow up, but we shouldn’t forget that their parents face many difficulties as well. Parents of autistic children sometimes admit that the challenges of autism can create an overwhelming and often isolating experience, as other people fail to fully understand exactly what they’re going through. But many parents have found an outlet through social media, to seek and offer their support while advocating for autism awareness. You’re about to meet some amazing families and hear all about their journeys with autism.
This Mom And Son Gave A TEDx Talk About Their Journey
Photo: @benjitalk / Instagram
This is Debby and her son Benji, who was diagnosed with autism when he was three years old. Debby has shared her and Benji’s experience on their blog, Benji Talks. Benji did not speak at the time and the doctors told Debby that they worried he might not ever gain that ability.
But many years later, Benji is a teenager on the cusp of entering high school. He is very talented with the ability to play multiple instruments and has an uncanny memory for major roadways in the United States. In 2017, Benji even gave a TEDx talk and shared his experiences growing up with autism.
_WF.postContent={"pages":{"1":{"position":1,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/1\/","content":"
This Mom And Son Gave A TEDx Talk About Their Journey\n\n
Photo: @benjitalk \/ Instagram\n
This is Debby and her son Benji, who was diagnosed with autism when he was three years old. Debby has shared her and Benji's experience on their blog, Benji Talks. Benji did not speak at the time and the doctors told Debby that they worried he might not ever gain that ability.\n
But many years later, Benji is a teenager on the cusp of entering high school. He is very talented with the ability to play multiple instruments and has an uncanny memory for major roadways in the United States. In 2017, Benji even gave a TEDx talk and shared his experiences growing up with autism.\n"},"2":{"position":2,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/2\/","content":"\n
Benji Inspires Other Families To Never Give Up\n\n
Photo: @benjitalk \/ Instagram\n
Benji is one of many autistic kids who overcome the challenges that come with ASD. 2017 was an especially big year because Benji had his Bar Mitzvah ceremony. While Debby offered a low-key celebration, Benji asked her, \"I have climbed some seriously big mountains, don't you think I deserve a traditional Bar Mitzvah?\" He then went on to impress a room of 250 people in leading the service entirely by himself.\n
Debby writes, \"So maybe if you are told that your child will never be able to speak, learn or socialize, think of Benji and have hope.\" Benji has even taken over writing the blog himself.\n"},"3":{"position":3,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/3\/","content":"\n
This Mom Has Learned A Lot From Her Son\n\n
Photo: @iamemmykate \/ Instagram\n
Emmy is a mother of two, whose son Boston has autism. Despite the challenges of being a mother of two young children, let alone grappling with the challenges of autism, Emmy shares with her followers that she wouldn't trade her children for anything in the world.\n
One thing that's consistent among all parents of autistic children is the unconditional love and support that they feel towards their children. Parenting young children is difficult enough, but the added challenge of autism can make things that much harder. It's okay for these parents to admit that, especially when they have a strong community online to support each other.\n"},"4":{"position":4,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/4\/","content":"\n
Her Son Has Helped Her Be More Understanding\n\n
Photo: @iamemmykate \/ Instagram\n
Emmy shared this photo of her son Boston after a difficult day of trying to get to the hospital for his sister's doctor appointment. It proved especially overwhelming due to the number of people that were around, but thankfully an understanding passerby noticed he was having a difficult time and helped Emmy and her kids get where they needed to go.\n
On World Autism Day, Emmy wrote, \"It\u2019s about little lives, it\u2019s about learning, teaching, understanding, it\u2019s about embracing different but most of all it\u2019s about acceptance, love and humanity... Thank you Boston, for teaching me what true love is, what true compassion is, what true understanding is.\"\n"},"5":{"position":5,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/5\/","content":"\n
Kids With Autism Are Still Like Any Other Kids Their Age\n\n
Photo: @ablefinder \/ Instagram\n
Four-year-old Laurence was featured on Able Finder, which is a site that shares the stories of other differently abled peoples all over the world. In addition to autism, Laurence was born with a malformation on his left eye which exacerbates the developmental challenges faced with autism. Despite this, Laurence's mother Fern shares that he is still like any other boy his age.\n
\"He is always full of fun and loves to be outdoors. He has a real passion for Lego and wants to build the kits as independently as possible. He also loves to bake, would happily do so every day and his particular favourite is chocolate brownies,\u201d Fern tells Able Finder.\n"},"6":{"position":6,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/6\/","content":"\n
This Mom Says The Bad Days Are Why We Need To Raise Awareness\n\n
Photo: @fvs_life \/ Instagram\n
World Autism Awareness Day is on the first day of April, and it kicks off Autism Awareness Month. Autism supporters all over the world wear blue to advocate for autism awareness. Fern shares this photo of Laurence sporting blue attire in honor of the day but discloses that it was from the previous year.\n
Fern writes, \"[Unfortunately], it was a bad (autism) day for us, lots of worries, tears and meltdowns but this is why we need to share this.. to help raise awareness and understanding of what Autism is and means for us. \"\n"},"7":{"position":7,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/7\/","content":"\n
This Single Mom Didn't Know What To Do\n\n
Photo: @andthispotato \/ Instagram\n
This is Nicole and her son, Levi. Nicole started her blog And This Potato to foster a community from which to offer and receive support from others who share similar experiences in raising a child with ASD.\n
Nicole writes on her blog, \"When Levi was diagnosed at 2 1\/2 with nonverbal autism I felt lost and afraid of what the future might hold. It felt like navigating through unknown territory alone. Autism had never touched my family or friends so I threw myself at the mercy of the All-Knowing Google and Facebook support groups... I found myself in the winter of 2016 as a struggling single mother of a special needs child.\"\n"},"8":{"position":8,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/8\/","content":"\n
She Had Misconceptions About Autism\n\n
Photo: @andthispotato \/ Instagram\n
Nicole is also a single parent, so her journey in raising Levi is certainly not easy. This was another reason she decided to start her blog and communicate with other parents going through the same struggles.\n
Nicole writes, \"[Before] Levi, I had no idea what autism really was. I thought autism was a behavioral disorder. I thought parents used autism as an excuse to not vaccinate their children. Wow-- I was so wrong! I acknowledge I was severely misinformed about autism. I choose to remember what I used to think about autism... so if I get a dirty look or comment from someone because of Levi, I know that they're probably just misinformed like I was.\"\n"},"9":{"position":9,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/9\/","content":"\n
Every Little Step Counts\n\n
Photo: @andthispotato \/ Instagram\n
What may seem like a small step for most people is actually a big leap for someone with autism. Nicole shares that Levi's auditory sensory issues were so bad that attempts to impart 'listening therapy' led to a huge meltdown. Eventually, something amazing happened when Nicole tried new headphones hooked up to a DVD player for Levi.\n
\"I put on Cars and put the headphones on his head, expecting him to just throw them off and be done with them in an instant. It's been 10 minutes and their [sic] still on. This is HUGE! This opens the door to many, many things. I'm so proud,\" she shared.\n"},"10":{"position":10,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/10\/","content":"\n
Let Them Be Little\n\n
Photo: @andthispotato \/ Instagram\n
Nicole and Levi are certainly on this journey together. Because Levi is still pre-kindergarten age Nicole also gets to experience the joy of raising a boy, apart from the challenges they both face because of ASD.\n
With this photo, she shared, \"He's covered in dirt but having a blast. Good days are hard to come by in January and we only have hours before the rain. It's taking me a lot not to stop him. The mother and girl in me is like 'Eww, you're so dirty. Stop!' But he's so happy. Boys and dirt go hand-in-hand. Who am I to stop love?\"\n
The next mother and son also know a little thing or two about progress...\n"},"11":{"position":11,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/11\/","content":"\n
Different, But Not Less\n\n
Photo: @ablefinder \/ Instagram\n
Ethan is a boy from Texas who is growing up with autism. His mother is behind his Instagram account where she shares moments from Ethan's autism journey.\n
His mother tells Able Finder, \"I wouldn't have my son any other way. Without all the things that Ethan is judged for, I wouldn't have Ethan at all. He is bright like the sky, LOVES his cars and anything with wheels really. He's caring, loving, happy and so brave. Ethan is Ethan and I will always be there for him. I will always be his advocate, best friend, and loving mom. My son has autism, it makes him different but by no means less.\"\n"},"12":{"position":12,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/12\/","content":"\n
Progress Takes Time\n\n
Photo: @ethans_adventures \/ Instagram\n
On Instagram, Ethan's mother shared a video of him in which he opens a gift, giddily marveling at what's inside. He even says a few sentences. Another mother asked her when Ethan started to talk since her own two-year-old is still nonverbal.\n
Ethan's mother replied, \"[Ethan] started putting two-three words together a few months ago. So very recent. We are still working on it sometimes he doesn\u2019t know how to associate words with meanings. He\u2019ll get there trust me. My son was also that 2,3,4,5 yr old non-verbal.. but look at him now... Progress is amazing.\"\n"},"13":{"position":13,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/13\/","content":"\n
There Are Good Days And Bad Days\n\n
Photo: @ethans_adventures \/ Instagram\n
Ethan's mother uses the account to advocate for autism awareness, sharing that despite the milestones and moments of progress, it isn't always easy. Despite the judgments she and Ethan get from passersby, she keeps her head held high.\n
\"I am an Autism mom, we have good days, we have bad days and days we try to forget. I watch my child struggle on a daily basis. I watch him trying to work with the world around him, it hurts. I hate seeing him struggle so much, it hurts that a lot of the time we get unnecessary looks. Some people just lack understanding of what Autism is... So please be kind, because he can\u2019t control the way he is,\" Ethan's mom once shared.\n"},"14":{"position":14,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/14\/","content":"\n
The Tough Days Make You Stronger\n\n
Photo: @ethans_adventures \/ Instagram\n
Ethan's mother says it's okay to admit when things are hard. With this picture, she shared the following:\n
\"I rarely post about the days where autism isn\u2019t good to us. I try to keep it as uplifting and supporting as possible... It\u2019s okay to talk about the ugly days because speaking the raw truth about parenting a special needs child, will bring people more understanding and we would have less judgment..... Parenthood isn\u2019t always sunshine and giggles. Sometimes is depression, meltdowns, tears, and anger. This is for those mamas going through hard times. Remember the struggle you\u2019re in today is developing the strength you need for tomorrow.\"\n
The next mom acknowledges she couldn't have done it without the strong support team behind her.\n"},"15":{"position":15,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/15\/","content":"\n
This Mom Is Thankful For Her Son's Loving Sister\n\n
Photo: @keepingupwithkaedyn \/ Instagram\n
Kortney is a mother of two whose oldest, seven-year-old Kaedyn, has autism. Kortney has shared how grateful she is to her daughter and Kaedyn's younger sister, Brookelynn, who continually displays unconditional love and support despite the strain autism might place on her relationship with her brother.\n
Kortney writes, \"She helps in so many ways with Kaed. Helping him with breathing exercises, loving him unconditionally even when he's unfair to her, always having a forgiving and understanding heart, the list goes on and on. Having Kaedyn as her brother has helped make Brookelynn this strong, independent, helpful human that she is.\"\n"},"16":{"position":16,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/16\/","content":"\n
Teachers And Therapists Are Essential\n\n
Photo: @keepingupwithkaedyn \/ Instagram\n
Parents of autistic children often employ a number of specialized therapists and teachers to help their children develop to their full potential. Kortney also admits that some days are not as great with others, especially when there's a meltdown. In one post, Kortney expressed her gratitude for Kaedyn's occupational therapist, who knows exactly how to bring her son to a peaceful state.\n
Kortney writes, \"She has been working with Kaedyn for a year and a half and at one time she was the most disliked person in Kaesyn's world. But the relationship they've built and earned trust make me extremely happy. She knows exactly what he needs when he needs it.\"\n
The next mom admits that autism put her in a whole new world.\n"},"17":{"position":17,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/17\/","content":"\n
Slow Progress Is Still Progress\n\n
Photo: @cayhargarten \/ Instagram\n
Caylin is the mother of two young boys who both have autism and she is more proud than ever to be their mom. Here, she shares a photo of her younger son, who she refers to as B, beginning to drink from a glass.\n
Caylin writes, \"To some, drinking from a glass may seem so simple, but when you lack the muscle tone in your mouth area it can make it very difficult... He will only drink out of a select few sippy cups and still struggles with drinking from a straw. He has made slow progress in this area, but progress is progress.\"\n"},"18":{"position":18,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/18\/","content":"\n
Her Negative Thoughts Give Her A Reason To Keep Fighting\n\n
Photo: @cayhargarten \/ Instagram\n
Caylin is also unafraid to admit that being the parent of a child with ASD is incredibly difficult and a totally different experience from that of other parents.\n
\"I'm starting to see more and more how having children with special needs literally puts you into a whole different world. You feel guilty focusing on the negative, but the negative is things that need to be worked on. The negative is the reason you fight to get your children the services they need and the support they deserve. The negative one day turns to positive as you see them improve which makes the fighting, the guilt, the heartbreak, and tears, all worth it,\" Caylin writes.\n"},"19":{"position":19,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/19\/","content":"\n
Autism Is An Ongoing Learning Course\n\n
Photo: @joshua_ryans_beautiful_mind \/ Instagram\n
Sherry is the mother of Joshua, a four-year-old boy who also has ASD. Like most parents of autistic children, Sherry is aware of how difficult it can be to bring your child out of the house. This was something she experienced during the holidays.\n
Sherry writes, \"Holidays can be overwhelming for our kiddos on the spectrum. So as a parent today more than anything I need to remind myself to remain calm and think about sensory overload issues and try to be proactive to maybe reduce meltdowns... Autism is such an ongoing learning course for us. Just when we think we may have a grasp on things... nope we don't.\"\n"},"20":{"position":20,"url":"http:\/\/www.giveitlove.com\/these-parents-are-here-to-show-the-positive-sides-of-raising-kids-with-autism\/20\/","content":"\n
This Mom Wishes People Weren't So Quick To Judge\n\n
Photo: @joshua_ryans_beautiful_mind \/ Instagram\n
Like most parents of autistic children, Sherry hopes that others would look at her child and others like him from a place of more understanding. As stated before, a lot of the looks and judgment that ASD families face is due to ignorance.\n
Sherry writes on her page, \"My wish is for others to not judge so quickly\u2026 don't judge that mom with the screaming child flailing all over the floor... don't judge that child who is melting down because all you see is a screaming 'undisciplined' kid because YOUR kid would never do that.\" Sherry hopes that people would communicate better and even offer help when they see these types of situation.\n\n"}},"description":"
Children with autism spectrum disorders face many challenges navigating life as they grow up, but we shouldn't forget that their parents face many difficulties as well. Parents of autistic children sometimes admit that the challenges of autism can create an overwhelming and often isolating experience, as other people fail to fully understand exactly what they're going through. But many parents have found an outlet through social media, to seek and offer their support while advocating for autism awareness. You're about to meet some amazing families and hear all about their journeys with autism.","nextPostLink":"http:\/\/www.giveitlove.com\/quiz-can-you-guess-the-board-game-from-one-image\/"};_WF.emit("flexformat_init");
The post These Parents Are Here To Show The Positive Sides Of Raising Kids With Autism appeared first on giveitlove.
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endoflifespecialist · 4 years
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This little lady got a hat from Γιαγιά last year from the fair. She loves it. We had to strike some poses for the #instagram #downsyndrome #nothingdownaboutit #trisomy21 #ablefinder @ablefinder @hdangle1 #runningforevilyn #herlifematters (at South Ogden, Utah) https://www.instagram.com/p/CEuFpoTBr_c/?igshid=4pjowgzvxpdc
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endoflifespecialist · 4 years
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A girl and her 🐓. #downsyndrome #chickens #animalsofinstagram #trisomy21 #ablefinder #advocatelikeamother https://www.instagram.com/p/CA9HsphhPCG/?igshid=rzyfoavu0mcn
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endoflifespecialist · 5 years
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This little 💡 of mine, I’m gonna let it shine.... #evilyn #runningforevilyn #downsyndromeawareness #trisomy21 #ablefinder #ablefinderambassador @hdangle1 @ablefinder (at Provo, Utah) https://www.instagram.com/p/B9xcUBNhqDJ/?igshid=1a1jidl7jay6k
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endoflifespecialist · 5 years
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I’ve started blogging again check it out the link in bio. #runningforevilyn #ablefinder #downsyndrome #downsyndromeawareness #downsyndromebaby https://www.instagram.com/p/B7l8mVRBNDb/?igshid=fa0codb2v5r9
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endoflifespecialist · 5 years
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#ogdenregionalmedicalcenter getting blood drawn for celiac‘s and thyroid. Also got an X-ray of our neck to make sure nothing is fused together. She got a bear at the blood draw and another at the X-ray and still one more stuffed puppy for being so cute with the big puppy. Lol #puppies #downsyndromeawarenessmonth #downsyndrome #trisomy21 #nothingdownaboutit💙💛 #ablefinder @ablefinder @hdangle1 #runningforevilyn (at Ogden, Utah) https://www.instagram.com/p/B4S8PJ8hqCJ/?igshid=1g2uky30rgloi
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endoflifespecialist · 5 years
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#lagoonamusementpark was great and we made some memories. #funtimes #downsyndromeawarenessmonth #downsyndrome #trisomy21 #nothingdownaboutit Even #evilyn made some friends. #runningforevilyn @hidangle1 @ablefinder #ablefinder #ablefinderambassador #ablefinderchatbot (at Lagoon Amusement Park) https://www.instagram.com/p/B4BnRX5h1mt/?igshid=h7491ud84qps
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endoflifespecialist · 5 years
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This little lady loves to dance and play and all the same things that all other little girls her age also like. She also likes to listen and sing the same songs her momma likes. Let this smile inspire and enfold you in warmth, love and unconditional hugs.
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endoflifespecialist · 5 years
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Another of Evilyns photos during liturgy with my friends phone. I really really like this one. She took it with settings and all. She’s known all along and I have just been an innocent bystander to her reflections. Ok maybe not so innocent. She’s been a great guide on this journey called life and she reminds me daily to have patience and love. She reminds me daily that she forgives me when I get angry and she tells me all the time, “Shut up! I love you”! As she pats me on the back. This is my life and could not have asked for a better one. #evilyn #downsyndrome #downsyndromeawareness #orthodox #greekorthodox #ablefinderambassador #ablefinder @ablefinder @hdangle1 (at Greek Orthodox Church of The Transfiguration) https://www.instagram.com/p/B0ZGJKZB6w7/?igshid=rs8rzqkbiu2q
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endoflifespecialist · 5 years
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My mom took this photo of Evi. So happy she loves YiaYai. I also think at some point she was trying to lick her foot pretending to be a puppy. #nothingdownaboutit #downsyndromeawareness #downsyndrome #besties @ablefinder #ablefinderambassador #ablefinder #lovethiskid (at Ogden, Utah) https://www.instagram.com/p/BzdOZu9hIHP/?igshid=1xe3x6goslmct
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endoflifespecialist · 5 years
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My mom took this photo of Evi. So happy she loves YiaYai. I also think at some point she was trying to lick her foot pretending to be a puppy. #nothingdownaboutit #downsyndromeawareness #downsyndrome #besties @ablefinder #ablefinderambassador #ablefinder #lovethiskid (at Ogden, Utah) https://www.instagram.com/p/BzdOZu9hIHP/?igshid=1xe3x6goslmct
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endoflifespecialist · 5 years
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Χριστέ ελέησον #thiskid keeps getting naked and escaping my house. She does this on a regular everyday. Usually I catch her before it happens. This time the neighbors brought her back. I guess I am gonna just have to strap her to my side lol #mommyneedsadrink #downsyndromeawareness #downsyndrome #evilyn #ablefinder #ablefinderambassador (at Ogden, Utah) https://www.instagram.com/p/Bvr__TPHZAd/?utm_source=ig_tumblr_share&igshid=cfls6dz3ylv0
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endoflifespecialist · 6 years
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@bizybeeztoys #bizybeeztoys gets the kiddos to work and play together. #ablefinder #ablefinderambassador #siblings #kiddos #goodvibes #playnice #downsyndrome #trisomy21 #inclusion (at South Ogden, Utah) https://www.instagram.com/p/Btx9pxgHX6y/?utm_source=ig_tumblr_share&igshid=jy6ceabtc4si
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endoflifespecialist · 5 years
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@terahbelle we are so happy she is doing well. Kisses from Evilyn. #prayforindy #ablefinder #strong #strongmom #stronggirlsrule (at South Ogden, Utah) https://www.instagram.com/p/B8DGOI5hZ53/?igshid=1jhm9vtbzk11v
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endoflifespecialist · 5 years
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Watching my daughter play is one of my favorite pastimes. She has a great imagination and even though I cannot understand everything she says I can picture it because of her actions in how she plays. Oh how it would be to have an imagination like that. #childhoodinocence #imaginationiseverything #downsyndromeawareness #nothingdownaboutit #ablefinder @ablefinder @hdangle1 #evilyn (at Dartside) https://www.instagram.com/p/B7MUe31hkTc/?igshid=nta6m1oo01oy
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