#actually autistic

[drchucktingle]

this was a comment on one of my post from a recent live event. it was photos of joyful queer buckaroos celebrating together and proving love is real through creation, community, and a trot of love. most important I AM LITERALLY IN PHOTO AS A REAL FLESH AND BLOOD HUMAN

it got me thinking about how DEEP AND VICIOUS the irony poisoning of these early internet communities goes. the way buds like this cannot fathom someone just being a sincere person unrelated to their OWN old days of cynical posting. it is fascinating, and i will admit, sad too

despite a DECADE of work, countless live events, 350 tinglers written well before large language models were a thing, there are still people who cannot imagine someone like me could exist. it is a strange place to be. not just part of me, but my entire EXISTENCE is often gatekept

it is easy to say ‘well chuck your art IS strange’ but honestly i think it is more than that. magical realism is common. there are stories about dinosaurs and bigfeet and unicorns. this scoundrel reaction is about two unspoken things: my art is neurodivergent, and my art is queer

heres the thing: I WILL BE FINE. what concerns me is not an issue of MYSELF, it is a concern for the other young outsider buckaroos who see comments like this one and think ‘is that what they will say if i express MY unique way? will i be dehumanized like this at every turn?'

i will be honest, i cannot say that WONT happen, but i CAN say this: for as deep as this irony poisoning goes, it is slowly dying. the way i was treated at the start of my career is LIGHTYEARS DIFFERENT from the way i am treated now. there is a massive shift towards sincerity

BUT MORE IMPORTANTLY. to young artists trotting up, the things that i am harassed over and doubted for and made fun of for are NOT tangental to what has made me successful, THEY ARE LITERALLY THE SAME THINGS THAT HAVE MADE ME SUCCESSFUL. YES I AM STRANGE, WHAT OF IT?

the things that you tuck away for fear of a review that says ‘there is a PROBLEM with this art because it has always been done another way’ THOSE ARE YOUR SUPERPOWERS. the gatekeepers want you to tuck those parts of yourself away because THEY TUCKED AWAY THOSE PART OF THEMSELVES

never forget that your unique way is PURE UNFILTERED 100 PERCENT ROCKET FUEL. it will stick out (maybe, if you are lucky, scoundrels will even say that someone like you could never actually be real), but sticking out isnt so bad when you are waving the flag of love.

in fact, when youre waving the flag of love, sticking out is pretty dang cool. what are flags for, after all? LOVE IS REAL BUCKAROOS. thank you for reading, and if you enjoyed this long post then please consider preordering BURY YOUR GAYS.

LETS TROT

[anexperimentallife]

[madpunks]

we are so ableist about memory. people with good memory take for granted the fact that they can recall as much as they can, and use that to taunt, guilt and threaten people with memory issues. many neurotypes and mental illnesses cause memory lapses. traumatic brain injuries can cause memory lapses. brain cancer can cause memory lapses.

even if your memory is good, it's not right to guilt someone because they can't remember something. trust me, people with memory problems are desperately trying to remember: it's just that we literally can't. it is a very literal "i can't remember".

[autiebiographical]

Things like depression, anxiety, and a whole host of other things can really mess with a person's memory.

[autism-affirmations]

my friends love when i stand in the corner and dont speak for hours

[my-autism-adhd-blog]

Autistic Callum

[jewishdragon]

Laios' stats.

Ohmygod it really is that meme. Laios would be too powerful. Social skills nerfed by autism.

(from the dungeon meshi world guide)

[desire-mona]

neil autism. neil being super upset when mr perry changes what extracurriculars he's taking without his permission. neil stimming when he's writing the fake permission letter. neil wanting to be an actor because its far easier to play out a pre-written interaction than to have an actual interaction. neil "autistic extrovert" perry.

[autismaccount]

I've reached 35 responses! They're very interesting, but the sample size is still small, and I don't think it's at all representative of the Tumblr autism community. If I can't reach at least 100 responses, I don't think I'll be able to analyze Tumblr community views on support needs in depth. I'll still post descriptive statistics for the overall sample, but I won't have the statistical power to do anything else.

I'd really appreciate if everyone could help by taking the survey and reblogging this post to their followers!

As a reminder, the survey is meant to understand how people use support needs labels. For example, what makes someone low support needs and not moderate support needs? The survey also helps show what the community is like in general in terms of demographics and experiences!

A summary of the current survey results are under the Read More. Again, especially if a community that you're in is under-represented, please help by spreading the survey link! I'd especially love to hear from more people AMAB, racial/ethnic minorities, people who are not yet diagnosed or were diagnosed as adults, and higher support needs individuals!

Age: Most participants are young; 60% are under age 25%, and 20% are under 18.

Gender: Over half of the sample is AFAB nonbinary, almost 1/3 is trans men, and almost all of the remainder (14%) is cis women. Only 2 people who are AMAB have taken the survey.

Race/Ethnicity: Non-Hispanic White people are very over-represented, making up 82% of the sample.

Diagnosis: 57% are professionally diagnosed, 20% are informally or soft-diagnosed, and 14% are seeking a diagnosis. Only 9% are neither diagnosed nor seeking a diagnosis.

The most common diagnoses are ASD with no level (33%), level 1 ASD (25%), and "mild autism" (13%).

16% were diagnosed before age 8, 24% between ages 9 and 15, 32% between ages 16 and 18, 12% between ages 19 and 25, and 16% over age 25.

Autism Support Needs: The most common self-identified support needs label is "low-moderate" (43%), followed by low (23%) and moderate (14%). Most would benefit from but do not need weekly support (31%), only need accommodations and mental health support (17%), or rarely need any support (6%).

Autism Symptoms: On a severity scale of 0 (not applicable) to 3 (severe), the average is 1.7 overall, 1.8 socially, and 1.7 for restricted-repetitive behaviors. The most severe symptom is sensory issues (2.1), and the least severe are nonverbal communication and stimming (both 1.5).

83% are fully verbal, and 97% have no intellectual disability.

38% can mask well enough to seem "off" but not necessarily autistic. 21% can't mask well or for long.

Most experience shutdowns (94%), difficulties with interoception (80%), meltdowns (71%), alexithymia (71%), echolalia (69%), and autistic mutism (66%). Very few experience psychosis (14%) or catatonia (11%).

Self-Diagnosis: 20% think it's always fine to self-diagnose autism, 29% think it's almost always fine, 31% think it's only okay if an assessment is inaccessible, 71% think it needs to be done carefully, and 11% think it's okay to suspect but not self-diagnose.

15% think it's always fine to self-diagnose autism DSM-5 levels (including if the person has been told they don't have autism), 15% think it's fine as long as autism hasn't been ruled out, 21% think it's almost always fine, 18% think it's only okay if an assessment is inaccessible, 36% think it needs to be done carefully, and 36% think it's okay to suspect but not self-diagnose.

26% think it's always fine to self-diagnose autism support needs labels (including if the person has been told they don't have autism), 29% think it's fine as long as autism hasn't been ruled out, 37% think it's almost always fine, 29% think it's only okay if an assessment is inaccessible, 43% think it needs to be done carefully, and 6% think it's okay to suspect but not self-diagnose.

Disability: 71% feel disabled by autism, 17% feel disabled by another condition but not autism, and 11% are unsure.

Comorbidities: The most common mental health comorbidities are anxiety (68%), ADHD (62%), and depression (56%).

The least common mental health disorders are schizophrenia spectrum disorders (0%), bipolar disorders (3%), tic disorders (6%), substance use disorders (6%), personality disorder (9%), and OCD (9%).

The most common physical health comorbidities are gastrointestinal issues (29%), connective tissue disorders (29%), autoimmune disorders (24%), neurological disorders or injuries (24%), and hearing/vision loss (24%). All others are below 20%.

Overall Support Needs: When considering comorbidities, the most common self-identified support needs label is moderate (37%), followed by low-moderate (31%) and low (17%).

[atomicraft]

Tremors: a zine about being an artist with chronic shaky hands!

hello !! I’m atomic, and we’re an artist with a mild hand/limb tremor, so what better thing to do then make a zine about it 👀

[itsaspectrumcomic]

Why do you think neurotypical people mistake neurodivergent people for be really sarcastic?

Possibly because we tend to be super direct whereas neurotypicals usually dance around the point a lot more. So when we say something bluntly, they get all confused because that's not how they would communicate it, so they assume sarcasm. Probably also our tone - a lot of autistic people struggle to control their tone or naturally have a 'flat-affect' which can come across as sarcastic.

It's annoying to be misinterpreted constantly, but also sometimes people think I'm being incredibly funny for stating something obvious so 🤷‍♀️

[anexperimentallife]

[autie-j]

Something to be said for how sometimes it can feel isolating to be autistic. Like how peers are able to do things that you'll never be able to do on your own or much later than them, like drive, move into your own place, work, advocate for yourself in things like doctors appointments, etc. And just like connecting and making friends with other people being very hard

[zebulontheplanet]

I get so frustrated when talking about the fact I’m nonverbal and people go “well you type good so you’re fine” and that makes me so frustrated because like…typing doesn’t replace the fact I can’t speak! It doesn’t replace the fact that I’ve had hours upon hours of intensive therapies to get me to type the way I can, to express myself the way I can. And some were emotionally damaging. That doesn’t go away.

It doesn’t take away the ableism I face. Or the fact that if im trying to communicate with someone, our disabilities could collide and make it difficult to communicate. It doesn’t change that. And it doesn’t change the continued regression I am going through. It doesn’t change any of that! It doesn’t change that I’m constantly frustrated because my device is so slow compared to my thoughts. Or that other people find it very slow and get annoyed with me.

It’s honestly frustrating when people say this, because although I’m privileged to be able to type in the first place, that doesn’t change the ableism, frustrations, and therapies that I’ve gone through. I’m not “just fine” I’m constantly struggling to try and adapt to a situation and world that wasn’t meant for me. That is continuously ableist.

Im privileged, but that doesn’t mean I still don’t struggle.

[autism-affirmations]