#chronic fatigue

[furiousgoldfish]

As a person who spends a lot of time lying down and rarely does any kind of activities, I come off as someone who's taking a lot of 'me' time, or a lot of 'resting' time. However I have to assert that any time I spend recovering from an activity is not 'me time' or 'resting time', it's the time that is stolen from me. I can't do anything with this time. I am in pain, I can't move, my activities are limited to 'hopelessly distracting myself so that I do not experience the full horror of what's going on in my body right now'. I don't even get to have 'me time' because of how much of the time is stolen from me.

[lifewithchronicpain]

The idea that all people are equal should never assume that all people are physically equal.

In other words my membership in this society should never be conditional on my ability to work. I understand many people want to just express that if you work hard you deserve an equal share of the pie. On the face of it, I get it. But you will always be leaving out disabled people who are still humans that exist and deserve dignity whether we can work 8 hours a day or not. Our work doesn’t make us equal, our humanity does.

[fibro-memes]

[herbertthefrog]

Disability tumblr: How do you stay positive when you know it's getting bad? I'm getting so much worse and it feels like it is taking everything from me. My job, my relationship, my education, my friendships, my hobbies. It feels like everything is just falling away from me because I am too tired and in pain to spend time with anyone or do anything and my misery is rubbing off on everyone around me to the point it feels like everyone is just miserable interacting with me. I've really lost all hope and faith because nothing is working and no one is listening to me. Does anyone have any advice for some realistic positivity? What do you do to feel happy whilst being disabled? Any advice would be really helpful :) Thank you!

[mybodychoseviolence]

standing…..for two hours…….with a condition that means my blood Does Not Do Its Job……..i am not a fan

[ohfuckwho]

on a high note for today, I had a doctor take me seriously and finally got a referral to the right specialist

unfortunately, that appointment is in 5 months. But hey, I'll take it!

[matchakuracat]

No you don't understand what it's like for me. You won't understand what it's like to be chronically ill unless you've personally experienced being chronically ill yourself.

You don't need to fully understand or relate to someone's experience to be empathetic and listen to them.

Saying that you understand when i know for a fact that you don't doesn't make me feel better. Actually listening to what I'm saying does.

[chronicpaingirlie]

nothing to get rid of the imposter syndrome like being in so much pain you physically cannot move out of bed or sit upright 🫡

[bluejayqueen]

Is anyone else out here flaring up really bad because it's getting warmer out?

I'm out here fighting.

[appoxy-is-tired-and-in-pain]

my autistic ass when someone talks about "masking" in a subtle enough way so that I have no idea if they support masking in public (wearing a mask) or if they think people with invisible disabilities should mask (hide their disability and act like abled people) because it's "better for everyone" (ps. it is not, fuck ableists)

[thevoidpeeringback]

I just want to be held, but at the same time don’t touch me.

[dog-gutz]

I met with my psychiatrist today, who is absolutely wonderful, and asked for her opinion on what my cardiologist had told me. She basically said, that because my symptoms started before my medications, it is unlikely the medications have caused the symptoms I'm experiencing. She said a lot of doctors see people who struggle with psychiatric problems and blame those problems/medications right away, but she said she would seek a second opinion. She also said that if she ever makes me feel like this doctor has made me feel to tell her, because she never wants to make me feel this way. Seen as my psychiatrist has known me for almost a whole year now, I'm going to trust her judgement and agree with her, and go see this new doctor in May and see what he has to say. I can't even express how much I appreciate my psychiatric care team, they do so much for me and always listen, I can't imagine seeing anyone else.

[spookysalem13]

My health has lead me to needing to call out from work again. I feel so guilty.

This time its my fibromyaglia and rheumatoid arthritis that's causing weakness and pain throughout my whole body. Severe swelling and agony in my joints.

My brain is so entirely fogged I can't even verbally articulate a sentence properly. I don't know why, please let me know if you're also chronically ill, especially if you deal with a lot of high inflammation levels. And if you also struggle to articulate speech as your inflammation levels rise. Because for me, it seems to be my first signal something isn't right.

So today is an under the heated blanket, in bed with my kitty kind of day.

The fatigue is so bad I anticipate sleeping a great deal. Other than sleep my intentions are to spend time in my social media communities today. It's always comforting to me.

[fibro-memes]

[running-out-of-spoons]

here's the thing neurotypical able bodied people don't understand: the only thing worse than being on meds is not being on meds

[spacedocmom]

Doctor Beverly Crusher @SpaceDocMom You're allowed to have good days and bad days within your health conditions, or even good hours and bad hours all in one day. Your condition hasn't disappeared when you're in a good moment and you're not faking it when it's at its worst. I believe you. emojis: black heart, blue heart, masked, spoon 4:55 PM · Apr 18, 2024