#chronic health tag

[thebibliosphere]

Fuckin', hate filling in therapy worksheets.

It's like having homework for your mental illness.

Like great. I've escaped the phase of my life where algebra is mandatory, but now I'm trying to triangulate the source of The Horrors.

At least when you solved for X, there was one answer.

[ebonyheartnet]

*banging pots and pans*

Edit 12/21/23: If you still need a refill urgently and your doc’s already closed, please continue to reach out on 12/22/23! There’s a chance it might not get in before the long weekend, but you won’t know if you don’t try. Either way, the sooner the process starts, the better!

Everybody with maintenance meds, now is the time to get end of the year refills. If it needs to be taken care of before second week of January, reach out ASAP. This goes double for prior auths.

Please understand that virtually every office is short staffed, even with all hands on deck. Most of us are also dealing with some type of lingering issues from COVID, and pharmacies are at a turning point (looking at you, pharmacy tech strikes 👀👌🏽). There’s not just a chance of delays, there’s a likelihood. I just want everyone who can avoid the ER for the next two weeks to do so. It’s going to be even worse than usual.

TL; DR: 12/21/23 morning is pretty much last call for timely med refills through January 5th, 2024.

Best wishes,

Your chronically ill medical scheduler w/ ADHD (who is filing their refills Right Now)

Edit: quoting @morallydiseased in the notes

“That goes for your chronically ill pets too. Don't wait to refill meds only to discover that your animal is overdue for blood work and an exam and you can't get in until mid-January. Shipping sucks ass this time of year so don't wait.”

Edit: one more quote from @kiana996

“Also, if you get your meds through the VA and can't renew online CALL YOUR NURSE LINE. Explain the situation and ask them to help you get the meds renewed. They can connect you quickly to your doctor, or sometimes can just do it through their system.”

[radley-writes]

me, a person with a known immune deficiency that makes me very vulnerable to stomach bugs, whenever I get a stomach bug:

[anjiefiction]

A little update

Well, the short of it is: they found two retina holes with a bit of fluid in my left eye. Had to get them lasered up to prevent a retinal detachment. My follow up appointment is in 2 weeks so crossing my fingers that all will be well.

[allalrightagain]

In the past week and a half, I’ve written 5k, including 10 microfics (mostly for the workshop I’m hosting at hpffwg), hit my smart watch’s default fitness goals 5 consecutive days, made dinner three times, and grocery shopped in person.

I’d like to thank spring break, my rheumatologist, and the vitamin b12.

[spoonyglitteraunt]

TFW your baseline health is so fun you're not sure if you might've had the plague

[poetry-protest-pornography]

Taking a pain killer with caffeine and my anti-tachycardia meds at the same time and letting them fight it out in the world's stupidest battle royale where I am inevitably the loser

[snailtrain]

Success!!!

I get to pick up a scrip for my (very needed) medications after work today ♥♥♥♥ soon I shall be Revived and have actual energy to devote to things, outside of the exhausted manic spikes I've been able to muster up.

[thebibliosphere]

Every time someone well-meaning suggests I see a chiropractor for my migraines, I have this little moment of "ah, you're new here. You weren't here prior to 2018 when a chiropractor very gently adjusted my neck for my migraines, and I ended up having to get an emergency MRI because the ensuing symptoms were indicative of a brain bleed."

It wasn't a brain bleed. The muscles on the entire right side of my neck "just" tore (Spoiler there is nothing "just" about that kind of traumatic injury. I am still in physical rehab for it), and I couldn't hold my head up, see straight, walk or do any of the things I'd previously taken for granted until several weeks later when the area finally started to heal.

This was before I knew I had Ehlers Danlos, btw. But this is true even for people who don't have a connective tissue disorder: Don't let chiropractors touch your neck.

There are a lot of vital nerves and blood vessels there, and even gentle adjustments of the area can have life-threatening consequences.

I know chiropractic care can be pain relieving--I still get it for my lower back and hips because I work with a chiropractor who knows about Ehlers Danlos Syndrome, and sometimes my hips need to be popped back in at short notice, and it's easier to hop walk in and see her than wait for physical therapy--but it is a short-term relief that doesn't actually correct why something is happening.

If you can afford it, physical therapy will likely help more in the long term. I know not everyone can afford it, and that's why chiropractors have such a booming trade in the US, but please, I'm begging you, don't get your neck adjusted.

The spinal cord specialist I saw after my injury told me the number one reason he used to see people for traumatic brain injuries was car wrecks, followed by other major roadside injuries. He said those numbers were still the highest, but after that, the majority of his patients were survivors of chiropractic injury.

Do Not Get Your Neck Adjusted.

It's been over 5 years, and I still can't move my neck properly on my right side. I still struggle to eat and drink because my muscles will randomly seize up. It feels like my skull no longer fits on top of my spine because of the scar tissue. Please. I just want people to be safe.

And if you are a chiropractor reading this and thinking, "Well, I've never injured anyone, skill issue." No. You Have Gotten Lucky. Rethink how you apply your trade. Please, you can still help people while recommending safer options for specific body parts. Learn to do pressure point release and acupressure. Teach patients how to stretch and relax the area safely. Just fucking stop cracking people's necks like pop rock candy.

[ebonyheartnet]

Me: Okay, I really want to get things done, but I’m sitting down as soon as I get up. Brain, what’s happening?

Brain: Alright, so you know how there’s the ADHD thing?

Me: Yeah, but this doesn’t feel like it’s just that.

Brain: You’re not wrong, but I don’t think you wanna know.

Me: It’s not gonna get better if I don’t figure it out.

Brain: :/

Brain: I’m gonna add them, but don’t say I didn’t warn you.

-Hips has entered the chat room-

Hips: AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA

Me: Oh my god, kick them! Kick them now!

Brain: Sorry, they have admin access.

Me: WHY WOULD YOU MAKE THEM AN ADMIN?!

Brain: *shrugs*

Brain: You ignored them for so long that this was the only deal they’d take.

Hips: YOU’RE GONNA HEAR ME, MOTHERFUCKER! YOU’RE GONNA HEAR ALL OF US!

-Shoulders, Spine, and Ankles have entered the chat—

Me: Bullying!

-Abdomen, Calves, Thighs, Knees, and Scalp have entered the chat—

Me: Brain, do something! This is bullying!!!

Brain: Sorry dude, but I can’t go against the union. That’s scab behavior. :/

Me: UNIONS DON’T JUMP INNOCENT PEOPLE!

Hips: K

Shoulders: U

Knees: N

—Several body parts are typing—

[insufficient-earth-skills]

Only spoonies know how validating it is to hear a doctor say, unprompted, that the diagnosis you were given 10 years ago is bullshit and is not actualy recommended to be given anymore.

[anjiefiction]

Hello. Love your story.

Just wanted to say, don't be worried. I have had those too. Everything will work out. Good luck.

Thanks anon 💜 hopefully our eyes and vision will be fine for all the years to come. Honestly that's really all I'm asking for right now.

[radley-writes]

I was gonna say ‘shout out to all the people with ‘gross’ chronic health problems who are never going to see themselves in fiction in a positive light because there’s no way to make sitting on the loo for four hours glamorous’ and then realised I’m an author and not a coward so

Which of my beloved OCs should receive my debilitating digestive problems?

[spoonyglitteraunt]

Real question, do any of you get tired from going in the shower? Not like oh I had a long day this is just one thing too many today, tired. But I am moderately ok going in, but the second I get out, bam gone are all the spoons.

See I live with people who think taking a shower is refreshing. May in fact boost their energy levels. For me however it’s instant loss of all energy for the day. No matter if I just got out of bed or not.

I don’t know what exactly does it either. Is it the movement, the stretching? It could be I suppose, although you’d expect a more gradual decline. Or if it is my body’s usual way of just going all soufflé as soon as we are done, you’d expect it to hit when you go sit down. But nope. The second I step out of the shower it’s like, I need to sit down or I’m going to be lying down in 0.2 seconds flat.

I’ve considered it might have something to down with the temperature shift, but idk. What I do know is that it’s exhausting and annoying. And I’d like to know if it’s just me.

[allalrightagain]

Okay I know this is literally why I’m in PT but— people with normal joints, how long does it take y’all to recover from a workout and stop being sore?

There’s no way everyone is actually walking around with 3-4 day recovery times and working out every day, right?? Please tell me this is a me issue and everyone else isn’t a masochist