#chronic migraine

[krillbot]

"I'm just shit at things because I have a migraine" -Ashton Greymoore C3 ep 89 2:39:02

[s-ccaam-era-crepe]

i think everyone who's ever had migraines should be financially compensated forever btw

[riddledem0n]

Yesterday the 12th of May was Fibromyalgia awareness day. I'm a little late uploading it, but spreading awareness is being done nonetheless. Lots of love for my chronic pain people!! <3

[chronicallydragons]

anyone else ever wish they could lie down harder? Like, I'm already horizonal, but I need more horizonal. I need to be absorbed by the floor. I think that would fix me

[p1xelpc]

i love you shower chairs i love you pain meds i love you canes i love you wheelchairs i love you braces i love you crutches i love you nausea meds i love you inhaler i love you weighted blanket i love you ice pack i love you heating pad i love you loose clothing i love you giant water bottle i love you help from other people i love you mobility aides i love you disability aides

[hoothootmotherf-ckers]

I’m so angry at the number of people who have commented on my chronic pain posts like “I don’t have chronic pain so I don’t count but I do have chronic migraines-“

that’s chronic pain. that’s specifically the type of chronic pain I’m referring to.

and I’m absolutely not mad at those people, not in the slightest, but I’m furious at everyone and society as a whole that’s convinced them that they don’t count, that chronic migraines aren’t a genuinely debilitating form of chronic pain and disability.

migraines are chronic pain and have significant impacts on your life and you deserve to have that validated and not brushed off as “other people have it worse” or “not a real disability.”

[chronically-ill-and-feral]

this is the picture I show any doctor when I have to go.

Anymore, when I get asked about my pain, I just hand the doctor my phone. I've been at a constant 8 on the chronic illness side of the picture for a year and a half now. I hate it but I thought this could be useful. I straight up got the off of Google so I am unsure who to credit for the original but I have been a great help to me so I wanted to share.

[drifting-bones]

they should invent walking that doesn't make you feel like you're going to keel over and die

[audhdnight]

Just thinking about the common experience of late diagnosed disabled people of “the normal amount of pain is none” and how we’re just supposed to know that despite *some* level of pain being OUR normal for our entire lives, even if it’s usually not super bad it’s just always there.

Thinking about how, when I told my mother this, she asked me “So what’s hurt?” Which is very different than “what hurts?”

I looked at her, confused. “Nothing is hurt. I just hurt.”

And she says “But where do you hurt?”

“Well, right now it’s my stomach and my ankles-“

She cuts me off. “So you twisted your ankle?”

“No,” I say. “My ankles just hurt. I’ve been walking today.”

Now it’s her turn to look confused. “Just walking doesn’t make your ankles hurt. You must have sprained them or something.”

But I shake my head. “Nope. This just happens on days when I walk more than a little bit. My ankles hurt first, then my knees by lunch time. And if I don’t take a nap and stay on my feet all day, my hips will be hurting too.”

“Oh.”

Joint pain is my normal. Sometimes, if I barely walk all day, the ache in my ankles is barely noticeable and doesn’t affect my functioning because I’m used to it. If I do what most able-bodied people would consider to be a “normal” amount of walking, almost all of my joints will hurt by supper. If I have to wash dishes or run any errands, I’ll hurt so bad I can’t walk for the rest of the day.

Then there’s the chronic migraine attacks. I used to have them multiple times a week as a child, and no matter how I explained myself, nobody ever understood that they weren’t just headaches. I experienced those too, and frequently, but they were not the same. Thankfully, at the age of eleven, I found an article explaining migraine triggers. I was able to identify a few of my own triggers, and the frequency of my migraine attacks reduced to maybe a couple a month. For a few years I was basically on cloud nine, I’d never experienced such a lack of pain before and it was so freeing. Unfortunately, migraine is a progressive condition, so the attacks have gotten more frequent over the years.

And then there’s the “random” pains. Some mornings I wake up and my stomach hurts. Or my chest. Or my back. These are just things I have to live with, because my body’s connective tissue is… well, for lack of a better word, faulty. And I never knew that other people didn’t experience this, because how could I? We never talked about it. Sometimes I’d hear people complain about back aches and just assume they were like mine. Of course, I knew that injuring yourself could cause muscle aches, obviously. But I just assumed that *most* of the time, other peoples bodies hurt like mine did. I didn’t realize that humans aren’t supposed to “just hurt” without a connected incident.

And when I try to explain this to able bodied people, their response is always the same. “Well, everyone’s back hurts sometimes.” “Everybody gets headaches sometimes.” “You’re not special just because you’re too lazy to walk. I still go to work when I don’t feel good.” And no matter how many times I try to say that No, you don’t get it, I *always* hurt, they still brush me off and dismiss me.

[mami-chaos]

Normalise mourning the life you may have had before chronic illness took over.

[spookysalem13]

I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.

This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.

I don't get to live my life, I'm surviving not thriving.

[tofu-bento-box]

i’ve started saying “i’ve been having health issues” like some sort of suburban mother and gotta say. would highly recommend. lets people know you’re not doin’ too hot without leaving room for questions. gets them off your ass. makes you mysterious. am i shitting myself blind or wasting away like a delicate victorian maiden? who knows! not you!

[eatfriesandsleep]

able-bodied people always have the audacity to say “you’re tired because you sleep too much”

[wearingmystripes]

no offense to able bodied people, but when i say i’m tired and you say you’re tired we are NOT talking about the same thing

[melodymorningdew]

I cannot fight for my health and fight the world at the same f**king time.

[my-illness-and-me]

Reminder:

Chronic Illness does not make you a burden.

Chronic Illness is a burden on you.