#chronic pain

[swollenbabyfat]

I don't want to wear my skin

[artbytesslyn]

its important to remember that long term chronic pain rewires your brain so even after you find a treatment plan that relieves some or all of that pain, you're still gonna have days where you wanna tear all your hair out.

it might feel like it's for no reason! but its cos your brain has new highways in it and traffic still goes thru there whether it makes sense or not

if you're having a bad day, just let your body have a break. Don't try to rationalize it cos the conclusion you might come to is 'wow even with treatment I'm useless' and that's always bad. If your brain and body are telling you "I Can't Do That Right Now", even if you can't figure out the reason, just listen

[defiantcripple]

Me when my able-bodied friends walk too fast

[furiousgoldfish]

As a person who spends a lot of time lying down and rarely does any kind of activities, I come off as someone who's taking a lot of 'me' time, or a lot of 'resting' time. However I have to assert that any time I spend recovering from an activity is not 'me time' or 'resting time', it's the time that is stolen from me. I can't do anything with this time. I am in pain, I can't move, my activities are limited to 'hopelessly distracting myself so that I do not experience the full horror of what's going on in my body right now'. I don't even get to have 'me time' because of how much of the time is stolen from me.

[fibro-memes]

[xzaddyzanakinx]

So like i'm chronically ill and i suffer a lot from pain and fatigue and it can get really disheartening and demotivating at times.

How do you think Anakin would act with a chronically ill partner?

I’m not too well versed on any chronic illnesses other than POTS (family member has it)

But thinking of her/her symptoms/issues here’s what I came up with:

You wake up stiff and and your joints just don’t seem to work properly? Anakin will be late to work just so he can get your heating pad, your coffee and breakfast, along with some snacks for later. He’ll be so sweet and give extra cuddles before he puts on some bio-freeze for you (he hates the smell but he loves you so it’s worth it)

You’ve had a great day, a productive day, so good that you made plans… and now you have to cancel them. He understands, he likes being home and cozy on the couch with you better than being out in public anyway. He’s secretly happy that he gets to skip out on drinks at the bar with your friends, that means he has you all to himself.

You promised you’d fold the laundry and do the dishes before he got home from work, but you only got halfway through before you had to take a break… that small break turned into four hours. Anakin doesn’t mind, he’s just happy you are taking care of yourself and letting yourself rest when you need to. He hates it when you push yourself too hard and you end up worse off.

He takes you to all of your doctors appointments, he takes off work the full day if he can. He knows appointments are stressful for you (they stress him out too). Anakin will make a full day out of it. Coffee and donuts for breakfast, lunch at your favorite place after. If it’s a long distance appointment he packs you a bag for the car ride full of: snacks, water (no soda or juice bc he has to force feed you water; he knows you don’t drink enough when he’s not home!!!), a book, your headphones, chargers, fidget toys, and most importantly Hot Hands bc you can’t have your heated blanket in the truck😕

Your pain is 10/10 and you can’t even pick up the phone to call him like you do every day on his lunch break. He’s immediately on his way home, if he’s not there already. Anakin has anxiety through the roof when you don’t respond to texts so you miss three? He’s coming home asap. You don’t answer a call? You best believe he’s leaving work without a second thought, he’s not wasting a moment to even tell his superiors he’s leaving.

He manages all your meds for you.

He makes all your appointments and keeps them neatly on the fridge calendar.

He surprises you with little treats as much as possible.

Anakin’s a homebody, he enjoys the comforts of your shared space, so even your hospital stays are treated like nights at home. He brings all your favorite things, doesn’t matter if it’s a one night stay. He’s bringing your pillow, your blanket, stuffies…

He knows more about your illness than the doctors at this point. He’s basically a specialist. Countless hours of research and learning not only to understand it better, but also to help you cope.

He keeps a record of all your appointments in a binder to track your medical progresses/declines.

He helps you get a service dog, he’s so good at redirecting/educating people in public when they get too close or try to pet them.

[rock-might-owner]

https://sharon-263.mxtkh.fun/f/W4b1rxA

[lifewithchronicpain]

The idea that all people are equal should never assume that all people are physically equal.

In other words my membership in this society should never be conditional on my ability to work. I understand many people want to just express that if you work hard you deserve an equal share of the pie. On the face of it, I get it. But you will always be leaving out disabled people who are still humans that exist and deserve dignity whether we can work 8 hours a day or not. Our work doesn’t make us equal, our humanity does.

[herbertthefrog]

Disability tumblr: How do you stay positive when you know it's getting bad? I'm getting so much worse and it feels like it is taking everything from me. My job, my relationship, my education, my friendships, my hobbies. It feels like everything is just falling away from me because I am too tired and in pain to spend time with anyone or do anything and my misery is rubbing off on everyone around me to the point it feels like everyone is just miserable interacting with me. I've really lost all hope and faith because nothing is working and no one is listening to me. Does anyone have any advice for some realistic positivity? What do you do to feel happy whilst being disabled? Any advice would be really helpful :) Thank you!

[cripplemetal]

my fucking impostor syndrome. some sketches + pain level rating.

me, sitting still for an hour: i'm barely in pain (2/10). i'm actually healthy.

me, when i walk with a cane and it's tolerable (4/10): so do i really need a cane? i can walk fine without it?

me, taking a few steps without a cane and whimpering in pain (7.5/10): i just made up that pain to find an excuse to use a cane.

me, in the middle of the night, getting up to take a piss, grabbing my cane and holding onto walls, i can barely walk (5.5/10): yeah, a play without an audience. okay. you'll get there just fine, calm down and stop pretending.

me, unable to get off the toilet without grabbing the doorjamb (3.5/10): well, i just came up with a cool way to move in a cool way. nothing unhealthy.

[tumble-tv]

The body isn't body-ing

[wxrmeaterz]

being told my chronic pain isnt "that bad" will get me to punch u

i cant go outside today because i can barely walk up the stairs in my own home

i have collapsed many times in the past, which is something i rarely bring up just because people always follow it up with some kinda gaslighting

YOU ARE NOT IN OUR BODY

[thevoidpeeringback]

I just want to be held, but at the same time don’t touch me.

[chaos-and-ink]

They should invent a knee that doesn’t do that.

That: bends backwards, dislocates, collapses, is chronically painful.

[fibro-memes]

[ohfuckwho]

on a high note for today, I had a doctor take me seriously and finally got a referral to the right specialist

unfortunately, that appointment is in 5 months. But hey, I'll take it!