#epstein-barr

[transgriffin]

PSA: If you had Epstein-Barr at any point in your life, and a Covid-19 infection later on, pay attention to the state of your daily spoons, energy, and attentive capabilities 3 months later.

I had Epstein-Barr 9 years ago, and Covid at the end of May. It is now mid-August and I am exhausted, confused, in a constant daze, brain-fogged, and my ADHD symptoms, especially executive dysfunction, are worse than ever.

Covid can reactivate Epstein-Barr viruses, and the viral load is well-measurable 3 months post-Covid, as far as I have gathered from a German source.

I'm going to ask to get tested for my current Epstein-Barr viral load.

Stay safe, everyone. I got that fuck-ass shit Covid virus in May 2024, when everyone was confidently parroting how "Covid is over". And that despite routinely washing my hands and masking in public transport.

I am 99,9% sure that I am dealing with Long Covid here.

I hate everything right now.

Get boostered if you can.

[iammadelinepod]

While I have been on Tumblr for at least a decade as a nerd girl/nerdfighter I haven't been sharing what's been going on with me in a larger sense. I'm not sure if I'll connect up my personal Tumblr with this(so it won't look like I have followed you back but I probably have), I'll have to have a think about that as my personal Tumblr has been an oasis as I've been fighting to stay alive against ridiculous and seeming unsurmountable odds. I sum it up here in a article I wrote for the disability Alliance of British Columbia last fall

https://disabilityalliancebc.org/article-im-fighting-to-live-but/

Full story in the I am Madeline podcast

https://anchor.fm/i-am-madeline

As I did in the Twitter account in their pinned tweet I will include all of the media articles that have been done so far as well as the Reddit thread that included much kindness and a lot of stuff that made me want to bang my head against a wall. Also some articles about post viral syndrome and me particularly long covid as those are the new additions to the post viral syndrome community. I don't have a lot of energy probably because of my disease but because of the dyslexia textual communication can be quite difficult for me so I'm not going to try to edit the file that I kept the media links and the general medical articles and. So I hope you can make sense of it and that all of the links still work.

I think / hope that I should be able to pin this to the top of this tumblr

In no particular order here is the link dump

Gfm

https://gofund.me/cff39173

https://www.gofundme.com/f/MadelinesMiracle?utm_medium=copy_link&utm_source=customer&utm_campaign=p_lico+share-sheet

Citr ep April 6 2023

https://www.citr.ca/radio/all-access-pass/episode/20230406/

Petition

https://www.meaction.net/2022/03/01/you-can-still-help-madeline/

https://dir.gov.bc.ca/gtds.cgi?show=Branch&organizationCode=HLTH&organizationalUnitCode=MH

Dabc Nov 2022

Blog

https://disabilityalliancebc.org/article-im-fighting-to-live-but/

Pdf mag

https://disabilityalliancebc.org/transitionfallwinter22/

Tyee November 14 2022

https://thetyee.ca/News/2022/11/14/Chronically-Ill-Dying-Poverty/

Chatelaine

https://www.chatelaine.com/health/maid-assisted-death-poverty/

Podcast

https://anchor.fm/i-am-madeline/episodes/Ep--1---How-do-you-solve-a-problem-e110jks

https://anchor.fm/i-am-madeline

(https://www.iammadeline.com/)

City tv news Hana Mae change of by-line

https://vancouver.citynews.ca/2020/07/27/vancouver-woman-disabilities-medically-assisted-dying/

Media

News 11:30

https://www.citynews1130.com/2020/07/27/vancouver-woman-disabilities-medically-assisted-dying/

https://www.citynews1130.com/2020/11/24/vancouver-woman-me-covid-19/

Tyee article

https://thetyee.ca/News/2021/07/05/I-Should-Not-Have-To-Beg-For-My-Life/

Canada land podcast

https://www.canadaland.com/madeline-medical-assistance-in-dying-priced-out-of-life/

https://www.canadaland.com/podcast/723-the-high-cost-of-living/

Update

https://www.canadaland.com/podcast/741-updates-on-pretendians-porn-and-being-priced-out-of-life/

Millions missing simulcast

https://twitter.com/millionspod/status/1450838974864445440?t=tiE3pZtRLB9LiRVXIg4u8g&s=19

My Op-ed

https://quoimedia.com/canadians-with-disabilities-like-me-are-choosing-to-die-because-we-dont-have-the-financial-resources-to-live/

https://ipolitics.ca/2021/11/15/the-disabled-are-choosing-to-die-because-they-cant-afford-to-live/

Reddit post about op-ed

https://www.reddit.com/r/onguardforthee/comments/qul8c3/the_disabled_are_choosing_to_die_because_they/

are live on QUOI Media’s website.

https://quoimedia.com/canadians-with-disabilities-like-me-are-choosing-to-die-because-we-dont-have-the-financial-resources-to-live/

https://quoimedia.com/des-canadiennes-et-canadiens-en-situation-de-handicap-comme-moi-choisissent-de-mourir-parce-quils-nont-pas-les-moyens-de-vivre/

INFO

Gender bias in research

https://pubmed.ncbi.nlm.nih.gov/33232627/

Costs two to three times more to be disabled

https://pubmed.ncbi.nlm.nih.gov/31026771/ https://pubmed.ncbi.nlm.nih.gov/31026771/

Mayo

https://www.mayoclinicproceedings.org/article/S0025-6196(21)00513-9/fulltext

Bateman Horne PDF

https://twitter.com/BatemanHorne/status/1462907081686540290?t=MzYkyjZ_-QYAH4_td5zUFA&s=19

NICE COMM

https://www.nice.org.uk/news/article/nice-me-cfs-guideline-outlines-steps-for-better-diagnosis-and-management

Twitter link to various ME studies

https://twitter.com/CPrudhommeAQEM/status/1500854349442002951?t=U-DZG-DLNUqYVkz-Ygoewg&s=19

Pdf of studies

https://www.me-international.org/published-me-icc-studies.html

CDC

https://www.cdc.gov/me-cfs/healthcare-providers/presentation-clinical-course/etiology-pathophysiology.html

Disprove cbt

https://journals.sagepub.com/doi/full/10.1177/2055102919838907

Blog reply to above

https://blogs.bmj.com/medical-humanities/2021/03/23/the-concept-of-illness-without-disease-impedes-understanding-of-chronic-fatigue-syndrome-a-response-to-sharpe-and-greco/

Physio

https://www.physio-pedia.com/Myalgic_Encephalomyelitis_or_Chronic_Fatigue_Syndrome

Me from covid

https://meassociation.org.uk/2020/05/me-awareness-columbia-university-will-there-be-a-post-covid-19-form-of-me-cfs-26-may-2020/

Australia me study small town

https://www.bmj.com/content/333/7568/575

Percentage of doctors you understand me

https://doctorswith.me/poor-knowledge-of-me-cfs-among-doctors-puts-patients-at-risk-of-harm/

https://doctorswith.me/poor-knowledge-of-me-cfs-among-doctors-puts-patients-at-risk-of-harm/

https://www.hsph.harvard.edu/news/press-releases/epstein-barr-virus-may-be-leading-cause-of-multiple-sclerosis/

https://pubmed.ncbi.nlm.nih.gov/33232627/ gender disparity in research money and allocation by NIH

https://onlinelibrary.wiley.com/doi/full/10.1111/1753-6405.13139

Wiley Online Library

Australian and New Zealand Journal of Public Health

Volume 45, Issue 5 p. 424-426

Commentary

Open Access

Sex and gender gaps in medicine and the androcentric history of medical research

Lea Merone, Komla Tsey, Darren Russell, Cate Nagle

First published: 28 June 2021

Interrelationship between myalgic encephalomyelitis and long covid

https://www.science.org/doi/10.1126/science.abo1261?utm_campaign=SciMag&utm_source=Social&utm_medium=Twitter

Brain fog https://www.theatlantic.com/health/archive/2022/09/long-covid-brain-fog-symptom-executive-function/671393/

https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/

Forbes

https://www.forbes.com/sites/roberthart/2021/07/15/long-covid-has-over-200-symptoms-and-leaves-1-in-5-unable-to-work-study-finds/?sh=1f11766e5eb2

herpes simplex including Epstein-Barr latency and damage to genome tissue study sample including autopsies

https://www.frontiersin.org/articles/10.3389/fmolb.2022.1044964/abstract

https://twitter.com/loscharlos/status/1612196453258256384?t=C1UGoqR72JjmBeVRreJ41A&s=09

What #LongCovid continues to experience is a social medical phenomena know as the **Semmelweis Reflex** —

“the metaphor for the reflex-like tendency to reject new evidence or new knowledge because it contradicts established norms, beliefs, or paradigms.” 🧵

I was introduced to this term while reading @meghanor excellent, essential book “Invisible Kingdom”

As she shared, it was named after the doctor who said physicians assisting with childbirth should wash their hands to reduce maternal mortality & was exiled from the profession

https://www.scientificamerican.com/article/a-tsunami-of-disability-is-coming-as-a-result-of-lsquo-long-covid-rsquo/

https://fortune.com/well/2023/05/23/covid-deaths-one-person-every-four-minutes-vaccination-rates/

Protect BC

https://protectbc.ca/public-healt-scandal-failure-to-warn/

[madeupofillness]

are you ever so extremely fatigued that you wanna cry

6-28-23

[mindblowingscience]

Epstein-Barr virus, a common virus that infects most people at some point in their lives, has long been suspected as a trigger of multiple sclerosis, an autoimmune disease affecting around 36 people in every 100,000 worldwide. But exactly how this virus trips the immune system into attacking the body's own cells, often years later, has mostly eluded scientists.

Continue Reading.

[pennyplainknits]

CAV! Oh MY GOD i'm CRYING.

Sometimes a 39 year old Manxman winning a stage can be so personal

[myalgicencephalomyelitiscfstom]

ME Research UK:

Many individuals report that glandular fever (infectious mononucleosis) preceded their ME/CFS onset.

Read more about Epstein-Barr virus (EBV), the virus behind glandular fever, and theories about how it is linked with ME/CFS:

[trump666traitor]

[corporationsarepeople]

This is unhinged.

No, not the speculation that Epstein didn’t kill himself. Most people don’t think he did. The unhinged part is that the very guy who hired the people responsible for keeping Epstein safe, the same guy who was accused by multiple people of raping girls with Epstein, the one guy that had the reason and the ability to see to it that Epstein didn’t survive the night, that guy is now saying “yeah, maybe he was murdered.”

Does Trump even know what the executive branch does? Does he remember he was in charge of it when Epstein was jailed?

[Another angle here could be that trump knows damn well what happened & he’s setting Barr up for a fall. Barr was connected to Epstein as well—Barr’s dad gave him Epstein first job teaching high school, which he wasn’t qualified for, and it’s speculated that his blackmail business started there. Either way, this should be a major story right now, but it’s buried under the mugshots.]

[maaarine]

Long Covid may be the body trying to fight off other viruses (Sarah Knapton, The Telegraph, April 08 2024)

"Dr Felicity Liew, from Imperial’s National Heart & Lung Institute, said:

“Even though the acute phase of illness resolves, there may be virus persisting in the body that could continually trigger the immune system and cause the ongoing inflammation that we found.

“It can also cause reactivation of herpes viruses or people that previously had glandular fever caused by Epstein-Barr virus, and it can cause that to reactivate and cause ongoing symptoms.

“Or it can result in autoimmunity, and all of those scenarios result in the types of inflammation that we see, and could result in chronic and ongoing abnormal inflammation represented by these proteins highlighted here.”

There are eight herpes viruses that routinely infect humans, and which lie dormant in the body.

Around 70 per cent of people in Britain carry the Herpes Simplex type 1 (HS1) virus, which causes cold sores, while 10 per cent have HS2, which can cause genital warts and is linked to cervical cancer.

Similarly, around nine in 10 people carry Epstein-Barr – also a type of herpes – which mostly causes no problems, but can sometimes lead to glandular fever, encephalitis, meningitis and trigger auto-immunity.

Usually dormant viruses are kept at bay by the immune system, but experts think Covid-19 requires so much attention that it may allow other viruses through the defensive cracks. (…)

Researchers believe long Covid may be similar, or the same, as post-viral syndrome which leads to people experiencing fatigue and brain fog after influenza and other viruses, and may be to blame for conditions such as ME/CFS.

The team say the sheer number of people suffering ongoing symptoms after Covid gives the opportunity to get to the bottom of what is causing these after-viral effects, and could lead to help for other long-term conditions."

[raepritewrites]

I don't know who needs to hear this, but if you've got chronic fatigue and unexplained exhaustion, you might want to ask your doctor to run a blood test for epstein barr. Turns out it's not normal to feel like a truck hit you from the moment you wake up until you collapse into bed. Who knew?

[posttexasstressdisorder]

Back in the '80s-'90s, one of the "Big Diseases" everybody convinced themselves they had was "Chronic Fatigue Syndrome", called "The Yuppie Disease" by some. It was basically something that caused an extreme burnout of your whole system, as the name implies.

Here, all these years later, I find it a smidge ironic to recall that the "scientific name" for "Chronic Fatigue Syndrome" was "Epstein-Barr Virus".

[ophilosoraptoro]

I Was in the Same Jail as Jeffrey Epstein, I Know What Happened - John Alite Talks Epstein Jail

[restless-soulz]

why isn’t EBV a chronic condition?

genuinely asking here because I had a massive flare up for a few months and even though it’s abating, it still has bad days that really impact me on a day to day basis and there not much I can do about it. It’s already impacted my life in s lot of ways and I’ve had skip out on s lot of opportunities because I (correctly) assumed that I wouldn’t have enough energy to stay awake never mind pull on a mask and being social. It’s been months and I can feel like it’s gonna linger for the rest of my life. And it will stay with me the rest of my life.

[liberty1776]

Tucker: This is scary

[x2oxenfree]