#fibro flare

[stars-and-branches]

Fibromyalgia is so stupid like what do you mean that all the nerves in my leg are wailing because the wind from my fan is touching it. Pussy ass bitch

[4nemo1egend]

One of the things I don't see a lot around online is the talk about the frustration that comes with being disabled. It seems to easy to make your peace with the fact that you're disabled, that your body just has new limitations. I'm only talking from personal perspective here, naturally.

But then you get slapped in the face with new limits, new struggles, and problems. You realise you can't be like your peers. You can't be like everyone else. And you never will. And as someone with great ambition who is hard working and creative and who thrives from creating and showing people their art and work - it sucks. It sucks so much. It sucks to be given the time off of work you earned so hard only to be faced by the limitations your body and existence now have. To struggle with brain fog, fatigue, lethargy, aches and pains.

If anyone else is struggling with this and feeling frustrated with conditions out of their control, I see you and hear you. I may not be able to help but you're not alone. There's at least this one person out there who struggles too and who curses their existence every day alongside you. And ya know what? We'll figure it out somehow. And until then, we can be frustrated and angry and use that anger as fuel for our fight against the unjust universe.

[tastygoldentaters]

In case you're wondering what chronic pain feels like, it's being awake and in pain for over two hours but not realizing it because you're so used to The Pain that you tune out and replace the concept of pain with "something feels bad but idk what" until you're mentally awake enough to be aware of bodily sensations and come to the conclusion you should have taken painkillers two hours ago!

[chronicallyuniconic]

Exercise & Chronic Illness

I was given some basic exercises to "fix" a problem that exercise won't fix.

They are basic, simple stretching exercises. And I mean b a s i c. The type of things you can do from your bed.

I was doing yoga years before I was diagnosed, I am hypermobile & flexible. But, I agreed, to appease the medical gatekeepers.

By doing them, my physical symptoms are simply worse.

"it's just the exercises, it's normal to feel pain"

My pain is more in line with sporting injuries, it's definitely not 'normal.'

The old, active, healthy version of me, can remember.

My skeleton aches like tooth pain, gnawing, grinding, heavy weights attached to my bones. Lifting my bottled water feels like lifting 20kg.

Leaning forward to grab my medication feels like an elephant on my back, weighing me down, like the gravity in the room just went up.

Every joint is clicking at random, as well as "pops" in other places that feel like a hot knife being shoved in.

My skin is sensitive, brushing my hand over any part of it, feels like the roughest grain of sandpaper, scratching off the top layer. It feels raw, it burns. To look at though, it's just my arm.

The clothes on my back are too much & I resort to the softest blanket I have, to protect me.

It's taken me days to write because the pain has distracted my process. Writing lines at a time is all I can manage for the moment.

Once again, I am reminded that now I am worse than my baseline, I might not come out of this.

Once again I am reminded, that no, exercise is not the answer to my healing.

Once again, I am stuck here, agonising, just waiting for this to fizzle down, so I can return to the baseline I'm used to.

A shell of the person I was before.

[m0thmancore]

chronic pain is fucking ridiculous. i was fine 8 hours ago and now i can’t stand up because my ankle hurts so bad i can’t put weight on it

[chronically-izzzzle]

I feel like when new symptoms pop up it’s like winning the most unlucky and saddest game of bingo ever……

[raindropssys]

chronic pain vent sketch.

[gayvampyr]

idk if this will be helpful to any of you guys, but i’ve come across a method for reducing pain and fatigue by doing short increments of walking around my house. every 30 minutes to an hour or so, i set a timer on my watch for 10 minutes and i walk around and stretch a little until it’s up. i set a timer for my resting as well, so i don’t lose track of how long i’ve been sitting. it’s just a good way to get blood flowing and get some light exercise in without wearing myself out or risking heat stroke on these hot summer days. it also helps me manage my adhd so i don’t end up sitting and fixating on one thing for hours on end (which is bad for my mental health and my posture). obviously adjust your walking time to something that suits your needs, but i hope this gives some of you who struggle with managing your time or who are daunted by exercise with chronic pain an idea of what you can do to manage these symptoms a little better

[mustacheskulls]

Having fibromyalgia means having the worst flares in the worst timing possible, it's so frustrating...

I was in an event (artist alley) that was supposed to be fun it turned out to be a torture session, I appreciate all the people who support my work and my art though, each and everyone who took their time to buy my merch and follow my socials, truly that's one of the things that help me keep going <3

[stars-and-branches]

god save me from the dumb shit i say when hit with brain fog

[thatfibrolife]

The transition from abled to disabled, from skinny to fat, from mobile to immobile, from pretty to pity from health to pain from youth to fatigue from normal to...

Being a healthy-ish, beautiful teenager and then having your entire body change due to chronic illness is really difficult. And we don't talk about it enough.

[chronicallyuniconic]

Did a thing yesterday, today I'm suffering.

Noone wants this. Absolutely nobody.

I feel alone in my body, only other chronic pain people know what it's like (ime)

Nobody can do anything to help it. I just have to sit with it, somehow.

These pains are eating me away. Joint pain, muscle pain, skin pain, just existing pain.

I can't speak today, only lay down & breathe slowly. I don't have the energy to push the words out, they come out in whispers.

The fatigue just takes me, I'm falling asleep allover the place. I cannot control it.

Nobody fucking wants this.

Why does this always happen when I'm just trying to live my life?????

Will I ever be unchained from my bed?

[mikehawk111]

Controversial post for people without Fibro:

Fibromyalgia is a neurodivergence because of Fibro fog. Our brains do not work the same as our neurotypical peers at all, and that’s not even mentioning how most of us have at least anxiety and depression along side it.

[calmmyfears]

Try treating yourself with kindness while hating the feeling your body gives you every day, it's like failing a math exam. You can't win and you just end up defeated.

[poppy5991]

Me: I need to clean and pack before I go on my trip.

My fibromyalgia: