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#hypermobile ehlers danlos
crippledpunks · 11 hours
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this is your daily reminder to stop being abusive and mean toward people with bladder and bowel issues.
im tired of hearing people mock those who struggle with bladder/bowl control, for people who can't tell when they need to go until it's too late or at all, for people who have uncontrollable voidings and leaking, for people who need to wear incontinence products around the clock, for people who need them influctuating amounts and need different kinds of products, for those who bedwet, for those who can't afford incontinence products so their clothes get dirty- to everyone with bowel and bladder issues.
we are human. we are still people. we are not gross, we are disabled. we are struggling with a disability. if you make cutesy posts about canes and wheelchairs, you need to include people who wear diapers, people who need plastic pants, plastic bedsheets and absorbent bed pads. you need to include people who can't tell when they need to go. people who need/use catheters. people who have colostomy bags. people with stained and dirty clothing. people who have to change their incontinence products in public.
you need to include autistic and ADHD and ND and disabled people who feel unsafe without diapers. you need to include people with spinal injuries and ehlers danlos syndrome and muscular control disorders with need incontinence products and feel safe with them. you need to include people who like their diapers and not just tragic stories where it's never discussed or doesn't negatively impact their life and livelihood.
please include all disabilities in your disability positivity posts, and please be kind and treat all disabled people with respect and humility, including those of us with symptoms you may find "gross".
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naturegirl555 · 2 days
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I try so hard to be positive about this stuff but gif sometimes I just wanna scream and cry. Because sometimes I get so tired of pretending it’s not that bad for everyone else.
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longdistancepyromania · 10 months
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My chronic pain doctor suggested I exercise more
I asked him “how?”
He looked confused. Said I should try a bit every day
I said “not when, how?” I asked what exercises I should do
He suggested half a dozen options that had all been explicitly banned by other doctors. I’m not allowed to run. I’m not allowed to bike. I’m not allowed to use my rowing machine or my punching bag.
I walk my dog whenever I have the energy and when it doesn’t hurt too much
What else can I do?
He told me I should exercise more
And then he changed the subject.
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lessonstobelearned · 3 months
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There needs to be more allowance for disabled people to be angry. People want us to be somber and quiet. Sad at our condition and how hard life is. And yeah that’s allowed. But we’re also allowed to be fucking pissed off. People don’t help, people infantilise, governments don’t supply enough support, places aren’t accessible. This isn’t momentary. This is forever. There are so many things we can’t do and so many things we can’t be. Life isn’t fair. It likely won’t get fair enough for most to be comfortable. Yeah, I’m grieving, I’m sad, but I’m also FUCKING ANGRY.
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clownrecess · 9 months
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Happy disabled pride month to disabled people with undiagnosed physical disabilities
Happy disabled pride month to disabled people with undiagnosed mental disabilities
Happy disabled pride month to mobility aid users
Happy disabled pride month to disabled people who are in constant pain
Happy disabled pride month to AAC users
Happy disabled pride month to disabled people with ableist family
Happy disabled pride month to fat disabled people
Happy disabled pride month to disabled people with scars
Happy disabled pride month to disabled addicts
Happy disabled pride month to disabled people who's disability is progressing
Happy disabled pride month to disabled people who love their disability
Happy disabled pride month to disabled people who hate their disability
Happy disabled pride month to disabled people with underrepresented and/or uncommonly known disabilities
Happy disabled pride month to all disabled people. I love you. /p
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1980s-slasher-film · 1 year
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Accommodations are not special, they’re not a leg up, they’re not a benefit. They’re not putting anyone ahead in the race, nor are they taking anything away from others.
They exist to put us on a level playing ground to everyone else, and nothing more.
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alrightiiaphrodite · 5 months
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Did you grow up as a disabled person and think "man, I am shit at being a human being. How does everyone do it?" and then think you were just lazy or less motivated and start believeing everyones comments about how you have no motivation and are genuinely just lazy and then you still wonder why you're not good enough no matter how hard you try and then you get old enough to realize that not everyone experiences the same thing you do and you were just given a short straw or are you normal?
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chronically-evie · 6 months
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my mom keeps trying to get me to go to the ER when im having a flare up and i have no idea what to tell her.
because ive BEEN to the ER before. you wanna know what they did? while i was sweating, shaking, and sobbing, curled in a ball of pain?
they asked me if i was on my period. when i told them no, they asked me if i was pregnant.
when i told them no, because i wasn't sexually active, they forcibly tested me anyways, and then when it came back negative said, "well maybe you should just take a few deep breaths", gave me liquid ibuprofen, and sent me home.
disabled people, in this particular situation disabled afabs, are never fucking listened to.
the ER staff literally LAUGHED at me multiple times. they pointed at me when i was having one of the worst episodes of my life and snickered.
so no, i do not want to go to the fucking ER. my heating pad, ice packs, and nausea meds are going to help me more than anything a hospital could do.
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stellaltumi · 10 days
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stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.
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aestheticofalifetime · 2 months
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Me when my disability disables me
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whoopsie-doodle · 4 months
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This is your reminder to clean your emotional support water bottle.
Check the o rings for mold.
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crippledpunks · 6 months
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shoutout to every person who deals with incontinence. i dealt with bedwetting up until my early teens, and now deal with stress and urge incontinence and for years never wanted to talk about it because of the shame and stigma other people place on not being able to control your bladder or bowel movements.
incontinence is a disability. it's not gross or wrong to talk about incontinence. incontinent people are not dirty or disgusting. if we could control these parts of our body, we would. we're not an inconvenience for being this way, and we don't have to be treated like a burden or like we need to be "fixed".
whether or not you use incontinent products like briefs, pads, diapers, plastic bed sheets, or whatever else, you are loved, important, and deserved to be seen when there are conversations about disability awareness and acceptance. we don't deserve to hide in shame when all we need is to be accommodated and accepted.
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maxpawb · 6 months
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defiantcripple · 27 days
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Nothing happened, I'm just disabled.
And if something did happen, it's not your business.
You are not owed an explanation for my disability.
My cane is not an open door for interrogation.
Let me exist.
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spookysalem13 · 7 months
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I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.
This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.
I don't get to live my life, I'm surviving not thriving.
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transformedyt · 1 year
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I wish more abled people understood the concept of A Good Day.
Like, sometimes, some disabled people aren’t in as much pain as they usually are.
Sometimes, i CAN walk without a limp. But i have to limp outside anyway or I’ll be accused of “faking it” if someone notices.
Like… it can fluctuate! Assuming it can’t is like being mad that it’s sunny one day and rainy the next and accusing the weather of being “attention seeking” or some shit! Fuck! Stop harassing disabled people for having a good day and wanting to make the most of it!
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