#low support needs

[lightning-system]

As a medium/lower support needs autistic who works with young higher support needs autistic:

We all matter. We all have the same diagnosis. We all deserve to be treated with dignity and respect.

But we are not the same.

I can mask and might be seen as 'odd' or 'weird' in public. The students I work with are seen as 'dangerous' and 'practically little kids'.

I can go to university and work with accommodations. The students I work with likely will never live independently and a few might find jobs that support them but still pay them less than an abled worker.

I have full control of my finances. The students I work with aren't allowed to make independent financial decisions, even if capable.

If I say 'no,' I'm making a choice. The students I work with can't say 'no' without being labeled as defiant and difficult.

I can feed myself, bathe myself, and take care of myself with extreme challenges. The students I work with are unable to take care of themselves without high levels of support/one on one support.

I had an IEP in high school but was mainstreamed in classes. The students I work with take separate classes and some rarely get to interact with their abled peers.

Our experiences are fundamentally different. Higher support needs autistics will experience a specific type of ableism I never will, and can never fully understand.

Lower support needs autistics need to stop saying we understand what higher support needs autistics are going through and then present autism as only being disabling because of society/lack of acceptance because that is dangerous. We need to stop saying every autistic person is capable of everything if given the right support because that leaves out huge parts of our community who will never be able to do certain things, regardless of support.

We are worthy of existence regardless of our abilities.

Autism is a spectrum. It is not the same for every autistic person. Autism acceptance and advocacy has to come with accepting, acknowledging, and listening to our higher support needs peers.

[zebulontheplanet]

I think people have greatly watered down autism into this silly label or identity that they can collect.

I’ve seen multiple posts that defend that autism should be an identity, similar to how sexualities and gender labels are. I think they’re missing multiple things with this analogy. First, you cannot help your queerness. It’s not simply a “label” it’s your whole being. It’s who you are.

I want people to realize that autism is a serious disorder for over half of people diagnosed with autism. From more then 30% being higher support needs, to more than that having different comorbidities, it’s a serious disorder. Not only can it affect every aspect of your life, it can severely affect how your health is, how independent you are, etc.

To a lot of people autism isn’t “a silly label” it’s a disorder. A disorder that comes with comorbities, that affects how they speak or don’t speak, how they view the world, how the process or dont process things, etc.

Higher support needs people need to be recognized, and in turn you have to recognize the disorders that they have. You can’t ignore them. You can’t simply shrug it off as a silly little label or identity.

People deserve to have their life altering disorders taken seriously and not turned into something that’s shrugged off and seen as another add in the newspaper. Autism is serious. It’s a neurodevelopmental disorder. Say what it is. Don’t water it down.

That’s all.

[radiostatic166]

Please stop infantlizing autistic people

Stop being weirded out when we cuss. Stop being weirded out when we talk about nsfw topics. Stop being weirded out when we are semiverbal or nonverbal.

We can smoke too, we can drink, vape, and cuss and do anything normal people can do. We can have (concented) sexual relationships. We can kiss people. We can have kinks. We can like BDSM or have fetishes. We are not innocent little kids.

Just because we have a disability doesn't mean we aren't people.

Just because we sometimes need to live with someone else doesn't mean we aren't people.

Just because we don't pick up on social clues doesn't mean we aren't people.

STOP INFANTILIZING US. STOP CALLING US INNOCENT. STOP THINKING YOU NEED TO PROTECT US. WE ARE REGULAR PEOPLE TOO.

[meowtismz]

please please please STOP weird out when autistics specially nonverbal semiverbal autistics cuss talk about nsfw topics etc

deserve talk about topics if old enough like any other peers

autistic cuss have sexual relationship (with consent) consume alcohol date etc etc etc

STOP INFANTILIZING US we humans too

[willtheweirdrat]

Here's to the autistics who are "way too aggressive". Here's to the autistics who get angry easily. Here's to the autistics who are impulsive. Here's to the autistics who have destructive meltdowns. Here's to the autistics who's anger ruins friendships/relationships. Here's to the autistics who can't control their emotions. Here's to the autistics who are bitter and mad. I see you, I love you (platonically), and I hope you have a great day.

[aacalienz]

Adults with intellectual and developmental disabilities are ADULTS. Not eternal children

[five-thousand-loaves-of-bread]

support need deserve met even if technically can survive without

and

if able not die without support, have advantage than people who would die without support

both true same time

[snakeautistic]

So many therapists are LAUGHABLY misinformed about autism. When I was first researching autism I brought it up to my therapist and she laughed it off because I knew not to only talk about my special interests during therapy, and I didn’t stim super visibly and frequently. That was an incredibly invalidating experience for me.

Even after that, when I could tell she’d considered it further and realized my theory had merit, it was like she was afraid of the word autism. She’d say I was quirky, or a little different, or just very sensitive, and that I “moved at my own rhythm”. At the very most she’d admit that I might have some slight traits but if I was autistic I would be “very very high-functioning” and probably didn’t meet enough criteria to be diagnosed. She agreed I should get an evaluation, but mostly so I could find out other disorders I might have.

Anyway, I got the diagnosis. She of course spun it like she’d been sure it was going to happen the whole time. She made sure to assure me that no one could tell, and again how extremely high-functioning I was. She’s still afraid to say autistic, and will jump through hoops to avoid saying the word.

It’s so frustrating to me just how stigmatized autism is, even in the mental health field. Professionals fail to understand the spectrum part of autism.

[spacefaringamoeba]

I hate that I'm considered "high functioning". I barely qualify for any "level" of disability in my country and I will never get a disability income. Yes. I'm able to go to work. But I will not be able to hold it for more than a few months before getting burned out and having daily meltdowns. No, having 10 minutes extra work break won't help me. Neither will wearing headphones or carrying fidgets. I'm literally not able to work 40h a week without severe negative consequences... How do i fucking exist in this society!

[yellowyarn]

i love you autistics who don't have special interests

I love you autistics without sensory issues

i love you autistics who are hyposenstive

i love you autistics who are both hypo- and hypersensitive

I love you autistics who hate routine

i love you low empathy autistics

i love you high empathy autistics

I love you autistics with lots of freinds

I love you autistics who are hyper verbal

i love you autistics who make lots of eye contact

i love you autistics who can't mask

i love you autistics who dont know who they aren't behind their mask

i love autistics who are "childish"

i love autistics that have never had a meltdown

i love autistics with catatonia

i love autistics with intellectual disabilities

i love autistics with Anxiety and/or Depression

i love autistics with Psychotic Disorders

i love autistics with Bipolar Disorders

i love autistics with Obsessive-Compulsive Disorders

i love autistics with truma Disorders

i love autistics with Dissociative Disorders

i love autistics with Eating Disorders

i love autistics with Somatic symptoms Disorders

i love autistics with Sleep Disorders

i love autistics with addictions

i love autistics with Personality Disorders

i loved autistic systems

i love autistics with multiple disabilities

i love autistics that can't work

i love autistics that cant leave their house

I love autistics who can't live alone

i love autistics who use AAC

i love poc autistics

i love people with autism who prefer person first language

i love autistics who use function labels

i love autistics with outdated diagnoses

i love autistics who were/are misdignosied

i love self diagnosed autistics

i love all autistic people

[zebulontheplanet]

Just so people know.

Low support needs = may need help with IADLs and can live pretty independently.

Medium support needs = may need help with IADLs and bADLs. Can’t really live independently. Might need a part time caregiver, live in group homes, might live in assisted living, might live with family.

High support needs = needs help with IADLs and bADLs across the board. Has a full time caregiver. May live in group homes or with family.

Support needs are usually a community term and aren’t really used by medical professionals that much. However, I have heard professionals use high support needs and complex support needs.

Please listen to the community.

[disabledbutchblues]

able-bodied neurotypical people want quiet disability. invisible disability. they love it when we don’t complain and don’t shove our needs in their face. they love it when we stay home and die quietly instead of trying to live (but they don’t like it when we stay home and need caregivers).

[paragraph about self then next ones on more general and important things] i recently realized that i make many people uncomfortable irl because i talk about my symptoms. i wasn’t aware it was wrong, because i’m autistic and struggle a lot with notions of public vs private space, and what can be said to whom. i’m very open about my disabilities and struggles, both because i don’t realize i’m saying something i shouldn’t, and because i don’t have a choice and often can’t mask (i am not high masking. not low masking either tho). i don’t wear unnoticeable noise cancelling headphones, they’re not good enough for me at all, i wear big obvious ear defenders with a fluorescent part. i sit down on the floor of a store if my legs hurt. i don’t sit normally anywhere, including at school, because i can’t, i can’t sit correctly and not move, it’s painful. i don’t hesitate to tell people i have terrible executive dysfunction. i openly say i am in pain and need to rest, even if it’s abnormal for a teenager to not have a healthy strong body. when it seems relevant to the conversation, i share the fact that i struggled with an eating disorder and self harm and that i recovered/am recovering. when someone asks me how i am doing, i tell them i’m feeling terrible because i am in pain or because i am suicidal or because i am overwhelmed— this is partly a choice to be open about my disability, partly the fact that i don’t notice until it’s too late that they don’t want me to be honest, and party the fact that there are many things i cannot hide. i tell people that i am not independent, can’t cook, can’t go to new places alone, can’t shop, can’t maintain hygiene and that i don’t shower enough or brush my teeth regularly. when someone asks if i plan on learning how to drive i say that i don’t want to right now because my processing issues would be dangerous and i would get in an accident. i tell people i have meltdowns and shutdowns at school. i hit myself in public sometimes.

yet i am not visibly disabled. i’m very lucky and privileged within the disabled community. i am visibly weird and there is visibly something wrong with me but i am only visibly disabled to someone who spends some time with me and sees me unable to process informations or unable to do IADLs. strangers don’t know i’m disabled until i tell them— they mock a symptom or ask why i can’t do something and i say i’m autistic, i’m disabled, i’m in pain. and they already hate that i tell them. they say it’s private. they say my struggles are something personal. something to talk about with doctors but that no one else should have to know about.

some people are way more disabled than me, visibly disabled, disabled at first glance. some use mobility aids, full time or not. some have intellectual disabilities, some use an AAC device, some have a physical disability that cannot be concealed or an intellectual/developmental/mental disability that very obviously affects the way they move or communicate. some people don’t have a choice to mask or not to mask, don’t have a choice to be visibly disabled or not. strangers will immediately notice that these people are disabled, even without engaging in a conversation with them. and they hate it ! disabled people are supposed to be quiet and invisible and going outside with ear defenders or a mobility aid or anything, no matter if it is a small or a huge accommodation, is too much. but the bigger it is or the more you need help to do a ‘basic, easy’ thing, the worse it is. they stare at me in the street because of my ear defenders, but they don’t just stare when someone is in a wheelchair, they touch and break and don’t have any respect.

ableists think disabled people shouldn’t be in their way because they think we shouldn’t exist or that we are worthless. having an accommodation or an aid in public is already activism for them, already disturbing, already forcing them to see that they are privileged and that the world is not accessible.

to exist as a disabled person is beautiful. it’s brave. it’s something to be proud of. not because it’s inspiring that you are strong enough to live with your disability, not because "someone else would have killed themselves already in your situation," not because "i could never be like that ! you’re so courageous !", but because ableism is everywhere and it’s so hard to live in this world where they don’t want us to exist. it’s so hard to advocate for ourselves.

and for those who are not visibly disabled (like me), or at least not always ; for those who have low support needs ; for those who know how to mask : point out inaccessibility. force people to see their own ableism. make them uncomfortable. it’s also our job, our responsibility. if someone mocks me and calls me useless because i can’t do IADLs i say i’m disabled, stay very calm and inform them that many people are unable to perform BADLs without help and that they deserve just as much help and respect as anyone else. if someone points out how annoying my ear defenders are i ask why the place isn’t accessible for people in a wheelchair. etc etc. listen to people with higher support needs than you and amplify their voices. but also act irl.

we can all do better and force society to be better to.

and remember that accessibility for you doesn’t mean accessibility for everyone.

a place that accommodates sensory issues might not have accessible toilets. so it’s not good enough. an autism support group meeting has stim toys and ear defenders and happens in a quiet place ? that’s wonderful ! can a nonverbal person participate ? are caregivers welcome ? we can’t just think that "something is better than nothing." yes it is, but it’s not good enough. if a place or an event is accessible for one thing but not for something else, then it’s not accessible. and we need to be loud about it.

[i-never-grew-up]

I love you level 1 autistics

I love you level 2 autistics

I love you level 3 autistics

I love you autistics who can talk verbally

I love you autistics you use AAC or other aids like sign language

I love you autistics with no professional diagnosis

I love you early diagnosed autistics

I love you late diagnosed autistics

I love you queer/trans autistics

I love you autistics who don't look autistic

I love you autistics who do look autistic

I love you autistics with co-morbid conditions (intellectual disabilities, ADHD, ARFID, etc.)

I love you autistics with 'scary' mental disorders (dissociative disorders, personality disorders, schizospec, etc)

I love you autistics with high empathy

I love you autistics with low empathy

I love you physically disabled autistics

I love you autistics! <3

[aacalienz]

if you’re autistic (even if you’re white, able to mask and fully speaking) you’re much closer to people with intellectual and developmental disabilities than you ever will be to neurotypical society. Include people with I/DD in your activism. Don’t separate yourself from us. I’d go as far as to say all autistic people have a developmental disability. You don’t have to identify that way, but really think hard about why you’re choosing not to. Autism is a Developmental Disability and and by separating yourself from intellectual and developmental disabilities (I/DD) you are throwing autistics with higher support needs and autitistics with intellectual disabilities under the bus. (Signed developmentally disabled autistics without ID who are considered developmentally disabled by the state)

[stealingfromwoolworths]

Im gonna be a hater

I get that autism is a spectrum and all but Jesus Christ some of y’all need to realise that you are in a more privileged position by being low(er) support needs.

Even I, your local whiny bitch who has an army of aids everywhere I go (one is literally watching me type this), have significant privilege over autistic people who are non verbal, autistic people who are not smart, autistic people who live in poverty, autistic people who attend special schools, autistic people who have other disabilities ect.

I can recognise that my situation sucks and also recognise that I have the ability to read and write in two languages, speak (most of the time) English fluently, live decently with disability benefits as someone who is lower middle class and be able to exist within the public school system.

We cannot achieve full liberation for ourselves and other mentally disabled people if we cannot objectively realise that some of us have it worse. I’m so so so so so so so so tired of having to explain this over and over again.

And I love you guys so much but I swear to God a low functioning autistic person explaining how being autistic has worse affects on them and impairs their daily life in a more severe way then it does yours is not invalidating you.

Also a lot of you still have alot of anti autistic ableist sentiment because you are still able to present yourself to the world as neurotypical but let’s not unpack that today.

(NOT TALKING ABOUT ALL LOW SUPPORT NEEDS AUTISTICS‼️ IF THIS IS NOT ABOUT YOU ITS NOT ABOUT YOU‼️ IF TOU FEEL ATTACKED MAYBE YOU NEED TO EXPLORE THAT FEELING IDK)

[stal3bread]

I know that everyone stims, but I wanted to get a sample size from autistic people specifically. Also, I know there are non-vestibular stims involving other senses (such as hearing or sight) but I'm just talking about vestibular (movement) stims right now.