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#multiple disabilities
wronggalaxy · 6 months
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Do...do y'all realize not everyone in the community was either born disabled or became it. Like you can have disabilities you were born with and ones you developed later on at the same time. And some disabilities you do have from birth but don't start presenting until later on. And some disabilities are quite literally from birth, as in the act of being born caused them. Some disabilities aren't from birth, but happened so young they mine as well have been. Some disabilities from birth or a young age could and should have been avoided(FADs, shaken baby syndrome, etc). We don't all fit into your boxes of either being majorly disabled from something at birth or becoming disabled at like 25 like some of you, and I don't want to erase your existence, but I'm tired of you erasing mine.
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big-boah · 1 year
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I feel like a lot of us neurodivergent + multiply disabled people have something we're good at that doesn't quite match up with "expectations".
Mine is: I have med/high support needs and I'm not coordinated enough to walk straight without guidance. BUT I'm an amazing driver and have been since I was 15. Very safe at high speeds and I LOVE driving. Most people don't expect that!
Does anyone else have a "secret skill" that they're proud of?
(I know abled people can exploit our skills in the form of 'inspiration porn', but it's okay to be proud of your skills too!)
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'Unbroken: 13 Stories Starring Disabled Teens'- Nijkamp, Marieke
Disability Rep: Unidentified Mental Health Condition (Possible Bipolar), Blind, Retinitis Pigmentosa, Wheelchair User, Anxiety, Agoraphobia, Idiopathic Pain, Cane User, Schizophrenia, Depression, Hallucinations, IBS, Chronic Pain, Bipolar II, Cerebral Palsy, Autism
Genre: Short Stories, Multi-Genre, Fantasy, Historical, Contemporary, Romance, Realistic, Science-Fiction, Horror
Age: Young Adult
Setting: Persia, USA, Multiple Settings
Additional Rep: Chinese Female MC, POC, F/M, Sapphic Characters, F/F, Latin MC, Muslim Female MC, Transgender Man LI, Black Female MC, Non-Binary MC, Biracial Native-American MC, Cuban wlw Female LI, Queer wlw Female MC
For more information on summaries, content warnings and additional tropes, see here:
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imautistsick · 8 months
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Happy disability pride month to pregnant disabled people who now have worse or more debilitating symptoms because of it (progesterone is the worst hormone)
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cripplecharacters · 2 years
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heyy so im writing a character that's blind and she uses a white cane, and during one of her missions (she's part of a spy ring) she's gonna get hurted and is gonna need to use a cane (a walking stick) permanently. so how would she act in this situation where she basically needs to different types of cane to keep her mobility? or do you have any other sugestion about what to do in this situation?
Hi! Thanks for asking.
In this situation, she would likely need to have two canes; both a white cane and a walking stick, used in different hands. The two canes are so different that one came can’t really serve both functions, so she’d need to have one of each. This would of course leave her without a free hand most of the time, so she may want to prioritize using backpacks more than other kinds of bags that would require a free hand. It may be useful to research the experiences of double crutch users to get more ideas for how she would manage things with no free hands.
Depending on exactly what her physical support needs are, she might instead use a guide dog that has also been trained for mobility assistance or counterbalancing. Most guide dog schools can provide some cross training on tasks for additional disabilities, though you will want to research mobility assistance dogs to see if the kinds of tasks a dog can do would be useful for her particular disability. If her particular needs will be met by mobility tasks, then it’s entirely possible to have a guide dog that is also trained in those additional tasks.
Using a guide dog that is cross trained for mobility support would solve the no free hands problem since it only requires one hand, but a guide dog is definitely a very different travel style from a white cane, so you will want to really think about if she as a person would want to switch to a guide dog travel style. It’s a very personal and individual choice, and one is not inherently better than the other, so the switch shouldn’t be made casually. It’s entirely possible that she would be interested in switching to a guide dog lifestyle, but it’s also entirely possible that she would much prefer to use her white cane along with another mobility aid, instead.
One other option could be to use a white cane with a wheelchair depending on the nature of her injury. It sounds like something like a walking stick or mobility assistance dog would be better based on your ask, but if there is more information that might make a wheelchair relevant, that can also be an option. It can be somewhat harder to use a white cane with a manual wheelchair, so many people prefer to use a power chair with a white cane, but a manual chair can absolutely be done if a manual chair would suit her lifestyle better.
If there are any blind and multiply disabled people or physically disabled people (especially those who use mobility assistance service dogs) who would like to chime in in the notes, please do!
Hope this helps!
— mod Lane
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maidofmetal · 5 months
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everyday i wake up and wonder which medical professionals i have to contact today
and then i don’t contact them 🫡
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rec-flies-away · 1 month
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I'm going to be all alone and probably homeless in 3 months and I'm terrified
My partner has been forced to care for me all alone with no external help for years. His care of me is the equivalent of 3 full time jobs. He and his body cannot take it anymore. He told me he will move out and back to his parents in May. That's in 3 months.
We are both heartbroken. We just want a life together. We love each other so much. We don't feel complete without each other. We both just want a life together, that is okay. We could have had such a good life with each other if we weren't forced in this situation by the system. We are so upset and terrified about what will happen in 3 months that we can't find any words for it. We cry and cry and hug each other and cry more and I feel his hugs and I cry even harder because in 3 months I might never get to hug him again.
I have no idea what to do. I can't live alone. I can't eat, drink, toilet, or sleep on my own. Left alone it will only be a few days before I die. I would lie stuck alone in bed in my own pee and poo without any drinks or foods and slowly die of thirst. I'm so scared. I'm so terrified.
I don't want to die. And if I somehow find a way to survive, but never get to have my partner in my life again, that would be worse than dying. A life without him in it is not for me. I can't.
I am in so much pain and so much fear I have no idea what to do or how to describe it. Every good thing makes me sad because I will lose all of it in 3 months. I don't have anyone else to take me in. There is nowhere for me to go. I'm so scared.
My partner is my only communication partner who even gets close to fully understanding me. Without him, I don't even have a voice. No one else has loved me like he does, either. No one else has been so kind and gentle with me. Without him I have no communication partner and no person I'm actually attached to.
I'm terrified. My life has an expiration date. It's 3 months away.
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owlbloop · 2 months
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I have traded my hope for pride
Whether the world burns
I will care that at the end I am standing
Pride might be more fragile
Than the spider threads of hope
But it will build me a dome
Seven hundred layers thick
Hope cannot protect me
From icy words and burning blood
In a lifetime it will catch me too little
To live through the decade
But pride?
Pride is earned by my hands
By my living and laughing
In a world that would see me dead before safe
And I have earned it a countless times
By fighting the venom in my ribs
And in my memories
Walking a fraying rope
I deserve to be proud of how far I've come
From the kid who hid under the bed
Who fell for every lie
Who no one believed when they cried
I deserve to be proud of the hundreds of pages
Written by blistered fingers and dotted
By water and bloodstains
That fought nightmares and the urge to tear
I deserve to be proud of having friends
Despite the relentless fear
That I will be left, turned on, forgotten
That they have gone from zero to a handful
I deserve to be proud of trying
Even if I failed or went too far
That I stared at this messy world
And one day found unstable land
And I deserve to be proud of waking up
Of eating, talking, wanting
Through aching ribs and spinning eyes
To do it all again
So no, I will not have hope
For something I cannot hold or see
For what is impossible
And what is far beyond complete
I will take pride
And let it tell me
That I am succeeding in living at all
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clownrecess · 1 year
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No, I am not overreacting when my AAC glitches. Its extremely upsetting. How would you feel if your voice suddenly started glitching? Its distressing, its scary.
TalkTabletPRO, which is the program I paid a lot of money for, and have been using for the past few years, is not allowing me to use the new voice I just bought, so I'm having to try out a new app. Its very anxiety inducing.
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burnt-scone · 1 year
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I'm Chronically Unemployed. You get that way if you have multiple disabilities and live in whatever year it is presently. Because even though there are laws protecting disabled people, they do not actually give a sing solitary fuck. Once they realize you're disabled, you're stuck.
Edit: Also, it's even harder now, especially if you didn't work during high school ( because of past mentioned disabilities and timing. Example of timing, jobs hiring that could work w/ disabilities and you can get to are ONLY hiring morning shifts and afternoon shifts that start while you're still at school.), for me school ended and pandemic began and there's newer rules about hiring. Even entry-level jobs need experience. They want people with three years of experience in whatever the job is, even tho its entry. They have to have limited staff, which makes sense with a disease that vaccines don't even work 50 percent tbh, so they look for people who know what the job is so they don't have to worry about too much training and/or looking for someone new when someone fails to catch up. What peeves me is the three years experience in an entry-level job. Unless you had the ability to have a job in school, you basically won't get one now without knowing somebody, or the job won't be safe with disabilities.
I've been applying since lockdown ended and only got one call back, just for someone in my household to get covid, so I had to cancel the interview.
I'm tired.
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uncanny-tranny · 7 months
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Fat people deserve mobility aids, too. No matter if it's connected to their fatness or not, because having a mobility issue that is connected to one's fatness won't change that they're still fat and still have the issue at hand. Fat people don't deserve to "tough it out" because fatness should be this divine punishment doled out to those who "deserve" it. Fat disabled people deserve to have the peace of mind that they can exist in whatever way is most comfortable and accessible to them
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cane-you-dig-it · 9 months
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happy disability pride month to those with conditions no one talks about, online or in general:
multiple sclerosis (me lol)
marfans
cerebral palsy
bells palsy
hidradenitis suppurativa
cauda equina syndrome
mixed connective tissue disorder
hyperadrenergic pots
non hypermobile eds types
stickler syndrome
mitochondrial disease
cystic fibrosis
sickle cell disease
myasthenia gravis
post-cholecystectomy syndrome
SWAN (syndromes without a name)
...just to name a few. i see you and you deserve awareness and understanding.
this list is non exhaustive, rb with other conditions you want to see represented!!
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[ID: a post banner with dark red background and medium grey bolded text in the center. it reads “This post is about physical disabilities, do not derail.” On each side there is the dynamic disability icon, a gray symbol of person in manual wheelchair leaning forward with arms bent behind them mid-push. /end ID]
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specialsaathi · 1 year
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Understanding the Multiple disabilities
Understanding the Multiple disabilities
  When a child is reported with few different types of disabilities then the term multiple disabilities is used. For example, a child may have difficulties in understanding, learning, along with controlling their movements, with a loss in hearing and vision along with speech and language impairment. The effect of multiple disabilities can be more than the combination of two individual…
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imautistsick · 7 months
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Shout out to the nurse who told me to stop smoking weed cause I'm pregnant (I already know what it does to fetus) but wouldn't ask me why I smoke or offer me alternatives
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gayaest · 7 months
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Lishai 🌈🌸♿️🩷🪴 [ID in alt-text]
He has PPMS and uses an intermittent catheter! There is way too much stigma (from both disabled and non-disabled people) about incontinence, catheters, and bladder issues. It’s not “gross”. The only “gross” thing is being judgmental of disabled people for something they cannot control and keeps them alive.
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spookysalem13 · 7 months
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I'm chronically ill. I'm disabled physically and mentally. I live a rough life from day to day. People always tell me how strong I am.
This may be with the best of intentions but in all honesty I'm not strong, I'm very weak from being broken down every single second of my life from my chronic illnesses.
I don't get to live my life, I'm surviving not thriving.
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