#rarediagnosis

[jnsupermom]

Do you or a loved one have a rare diagnosis? Rare Doesn't Mean Alone! Visit our blog to read about a wonderful app Rare Guru available to connect people around the world who have a rare diagnosis! https://www.parentsurvival.ca/post/rare-not-alone #raredisease #rarediagnosis #RareNotAlone #supportfordisabilities #disabilityawareness #disabilityadvocate #advocatelikeamother #rareconnections https://www.instagram.com/p/CeENXIgL0LI/?igshid=NGJjMDIxMWI=

[aromanticaries]

Love you, Jeff.💙💚💛💜

[tdennis3333]

Mariah wasn’t going to let her condition get in the way of anything she wanted to do. As a result her company was created through determination and encouragement of those around her.  Her story should remind us all that our challenges do not define or confine us rather give us new avenues to explore in a complex and beautifully rare brain Read more http://wearerare.org/2020/02/11/mariahs-a-rare-gem/ #raredisease #RareDevelopmentalDisease #rarediagnosis #braininjury #braininjuryawareness #brainhealth #medicalnews #neuroscience #neurology #Schizencephaly #schizencephalyawareness #wearerare #rarebrains #neuro #cephalic #cephaly #jewelry @runningwithrare #rarejewelry #raregiveback https://www.instagram.com/p/B8bWF0rBiKy/?igshid=a2ka7kb5o3pw

[thebikerbookforcharity]

#gettysburg #pennsylvania - Aug. 20

@battlefieldharleydavidson

#motorcycles #charity #charityevent #fundraiser #rarediagnosis #terminalillness

#thebikerbookforcharity

[tdennis3333]

If someone random woke up with the same RARE condition you or your loved one has, What would be the first thoughts/fears/questions someone may have that you remember having yourself? *Be honest* Even though it's tough to talk about. #rarediagnosis #wearerare #runningwithrare #raredisease #cerebralpalsy #braininjuryawareness #youarebeautiful #honestquestions https://www.instagram.com/p/B00sJv_BQWb/?igshid=1nqiwagavqvw6

[tdennis3333]

#friends truly are awesome. Especially when they understand the journey. #specialneedsparenting #specialneeds #wearerare #runningwithrare #rarediagnosis https://www.instagram.com/p/B0ybz9kBFkS/?igshid=1mhvfwm732vlh