#trigeminal neuralgia

[basilwalsils]

You're just jealous of my ability to remain whimsical in the face of personally devastating and debilitating bodily experiences

[chroniclesofchronicillness]

This makes so much sense

[timewasjustadream]

Trigeminal neuralgia is strong tonight. Shooting pain through the left side of my face every couple of minutes. Feels like I have a nail digging into the same spot on the top of my head. Hoping it dissipates overnight.

[awbrainno]

i want a refund on this fucked up, pathetic, torture chamber of a flesh prison

[doomedfromthewombfr]

Lately, it feels like my body is waging a war I never enlisted in, every nerve and muscle fighting to out-scream the other. The fatigue is a weight I can’t put down, dragging me through days that feel like endless uphill climbs. Pain has settled into my bones like an unwelcome tenant, refusing to leave no matter how much I beg. Even the smallest tasks- brushing my hair, standing too long, existing- feel like monumental battles. I’m exhausted in ways I can’t explain, and some days, the fight to keep going feels like it might be too much.

[artistformerlyknownascarly]

Here's a self-portrait of how it feels living with trigeminal neuralgia and chronic migraines that I made early on in my diagnosis (2021)

[thebibliosphere]

Christ this fucking headache.

It's flared up all my nerve disorders and I want to remove my head.

[themadornithologist]

Disabled people deserve better, and they do NOT need to justify to you why.

[hell-is-a-teenage-girll]

Hi this month is Facial pain awareness month. Which includes trigeminal neuralgia and anesthesia dolorosa.

Trigeminal neuralgia specifically has it's international awareness day on the 7th of October.

My goal is to make these conditions more known.

It's about the most painful pain to humans yet barely spoken about and almost no one knows it.

I would love it if people would talk about it, share about it..

The color for Trigeminal Neuralgia is Teal btw.

[chroniclesofchronicillness]

Sometimes best isn’t always possible

[eldritch-queern-magicat]

I'm just going to straight out ask for help. I'm broke as hell and can't work. I don't know how long disability will take to be approved, and the tdap isn't at all enough. Dad and I can barely make ends meet or save for anything we need (like dentures for him). And pain management doesn't come cheap for me.

So here's my p*yp*al account link. And this is my c*sh*pp account link. I'll also add them to my pinned post later.

If you've got the money to spare, I'd appreciate it so much. I've got art and writing on my Instagram (recent, mostly) and deviantART (older works) accounts, and I want to make more. But money has me too stressed to focus, so I can't easily create anything.

Here's one of my favorite pieces of art, which is hilariously relevant to most of this blog. It's based on my shattered sense of self, titled Identity Fractionation.

View this post on Instagram

A post shared by Cari Neal-Harden (@lunarmagesilverrose)

This was entirely hand drawn, and colored with colored pencils. I have very, very little digital art, my medium has always been traditional by hand. I don't paint much, but I want to get into it more. The only writing on Instagram is poetry, but I have stories on deviantart. Keep in mind, that's mostly much older stuff, and I've said things in years long past that I feel deeply uncomfortable with now.

Hope everyone is having at least a decent day. And if not, I hope it gets better soon.

-Viole 🌀😺

[fehck]

I think I should start smoking oui regularly again. The pain meds are nice but I don’t want to get too fond of them. Fehck can’t always be trusted with western medicine.

If you’re in the TN tag and happen to see this…thoughts?

[thechronicpaingame]

My facial pain is still at a solid 8, 24/7 and I'm panicking that maybe it's not a tmj issue and the Botox won't help and that it's something more chronic. I cannot think, I can't focus. Anyone have experience with trigeminal neuralgia? I thought it was just burning and stabbing but apparently it can also show as dull deep aching (which is what mine is with intermittent small stabs).

[chroniclesofchronicillness]

Truth

[chronicallycouchbound]

If you have chronic nerve pain (trigeminal neuralgia) due to your broken wisdom tooth like I do, here’s my list of things to try for pain management. These things might help for other chronic or acute facial nerve pain issues, jaw pain, broken teeth, wisdom tooth pain, toothache, etc.

• Ibuprofen, Tylenol and most medications severely interact with my other conditions, especially my stomach conditions, so I avoid them as much as possible. Liquid versions aren’t as bad if I can find dye free, citric acid free, versions in flavors I’m not allergic to. These can help for a lot of people though, just ask your dr if you’re unsure.

• Brushing the broken area, gently, to clean out any food particles that might be stuck in it is hit or miss but can make a difference. It’s always sore for a while after brushing so that’s a con

• I make homemade clove tinctures with vodka and whole and ground cloves. I let it sit in a glass container in a cool,dark place for as long as possible and shake it when I see it (keep it with your spices you’ll remember it more). Then I take a gauze pad and get a dropper full and put it on it. Both cloves and vodka have anesthetic properties and can numb it for a bit. It’s a very temporary solution, also can cause soreness from pressure on the tooth.

• Hot pad on the cheek can cause soreness too (a running theme) BUT it helps a lot especially with cold sensitivity. After you remove the hot pad you can be extra sensitive to the cold or drafts in the air so that sucks too but it passes after a couple mins usually.

• Waterpik flossers are great for sensitive mouth issues, and clean out the tooth area with minimal soreness. Great but takes more spoons to do than toothbrushing and is less portable.

• CBD oil is hit or miss. I have other serious chronic pain disorders and just like many generalized pain management options, it can sometimes get rid of the headache I didn’t notice anymore or the joint pain I dissociate out of existence. Like yeah, glad thats gone but it just makes me focus on the other pain more. Some CBD options aren’t strong enough to do shit for me.

• Warm salt water gargle/rinse is helpful for me most of the time, and it is really important to keep any broken teeth very, very clean due to infection risk. The warmth and salt can help with the pain overall though and so far doesn’t have negative effects for me. It’s very mild in terms of managing the pain though, it’s like a soft gentle kiss on a boo-boo. Feels nice in the moment but when you’re done it usually just goes back to the pain your had.

• TENS units might work for you. I have several electrical abnormalities in my heart so I’m not allowed to use TENS but I’ve heard they can help. Definitely ask a dr first for this one though because I don’t know all the safety risks especially with facial pain

• Warm environments with no drafts or wind, ideal for this pain, for me is not ideal bc of my cardiac issues.

• Medical ultrasound machine, I’ve used these for other conditions in PT and they help a lot!! I don’t know if you can get these outside of a medical setting, especially for a reasonable price, but a provider might be able to help with this. There is the ultrasound goop they put on wherever they do it though so like, might not be fun and also might be a bit sore after?

• Last resort: adult beverages so I’m not paying attention to the pain. Works best for sleeping for me, but obviously has it’s drawbacks.

I avoid:

- Cold environments

- Drafts and wind on my face

- Cold foods

- Hard foods

- Sleeping on the side that hurts

- Chewing on that side

- Talking too much, chewing gum, etc.

- Going anywhere without at least one pain management option available

- Trying to sleep without a pain management option or plan ready to go

- Not brushing my teeth, at minimum I use mouthwash after meals

And some important reminders:

• Watch out for signs of infection and get treatment ASAP. Dental infections are no joke and can be life threatening quickly, especially if you have certain medical conditions such as heart valve disorders (like me).

• These recommendations are from personal experience, talk to your medical providers to see if they’re right for you. I am not a doctor just a humble chronically ill person.

• These are not a replacement for actual medical treatments for your condition, you should still see a professional if you can.

• Many insurances don’t cover dental, dental issues are more common amongst poor people, rooted in the idea that you can still work with fucked up teeth or without teeth . Hence why they’re called “luxury bones”

[femfagboydyke]

i need money so i need a job but disabled and denied benefits pain pain raauuggghh. you know