a-totally-reasonable-username

[a-totally-reasonable-username]

Being a horror fan with intrusive thoughts and a tendency towards hallucinations and paranoia is one hell of a combo

[a-totally-reasonable-username]

Me: yeah most often it's my feet and legs but sometimes it can be my whole body and it'll be so cold i can't really move or feel anything properly but i also don't realize i'm cold until i'm warmed up again

My doctor: alright that's... weird and definitely not good and we need to look into those temperature regulation issues. But, i mean, that isn't happening with these hot summer temperatures, right? (Clearly asked as a rhetorical question)

Me: oh no it happened again like four days ago!

My doctor: 😐

[a-totally-reasonable-username]

[a-totally-reasonable-username]

Just cracked my back and something fucking crinkled. What the fuck. My back cracking is kind of extreme but it's fine. But what the everloving fuck just made a crinkling noise in my back?? My entire spine cracking and popping? Fine, normal, the goal even. However little crinkly sounds towards the side?? Inside of my back??? Not normal?????

[a-totally-reasonable-username]

Discussed my body's (lack of) temperature regulation with my GP and the baffled, despairing look of wtf she gave me after i told her about that time i randomly got frostbite in july was truly epic.

[a-totally-reasonable-username]

Really hate how my father could barely be a part of my life, then not at all and somehow he's still a fucking problem. Like, I have zero contact or interaction, not even indirect, absolutely nothing. And still he's making things difficult without even doing anything. Annoying as hell

[a-totally-reasonable-username]

“You shouldn’t self-ID as ADHD/autistic, you’re turning a very real mental condition into a trend” Ok then stop saying delulu. Stop speculating on which cluster C personality disorder the criminals you hear about on the news have. Stop saying “schizoposting” and “acoustic” and “is it restarted?” Stop using “psycopath” and “sociopath” as catch-all ways of calling someone a bad person. Stop saying “the intrusive thoughts won” when you bleach your hair and then turn your nose up at people who suffer from very real, very scary urges of physical/sexual violence. Stop saying “I’m so OCD” as a way of calling yourself neat. Stop treating BPD/ASPD/Bipolar as inherently abusive. Stop saying “OP I am living in your walls” without tagging for unreality. Stop diagnosing complete strangers you’ve never met on r/AITA with NPD.

You first. If you don’t want our disabilities to be treated like trends then stop belittling and minimising them. I’ll NEVER judge a person for trying find labels for their symptoms when an apathetic, racist, sexist, ableist healthcare system refuses to. But I will absolutely judge a hypocrite. Which a lot of you are

[a-totally-reasonable-username]

Also if you listen to your body and don't eat stuff you hate, it can be a lot healthier than forcing yourself to eat it anyways. Sincerely, a picky eater who found out all the fruits and vegetables they've always hated are high histamine and are actually making them sick. There's no need to force yourself and your body.

I am judging everyone who judges even their friends for being a picky eater. It's rude as hell

people are absolutely EVIL about the boundaries of "picky eaters". no, they do not have to try it. yes, they can know they don't like it without having eaten it before. no, they probably have not suddenly grown a taste for the food they've said they hate. no, they probably are not going to like it in the Special Way This One Place Cooks It. yes, you are being a bad friend if you try to "trick" them into eating it anyway

[a-totally-reasonable-username]

Fatigue is kicking my ass so bad at the moment 😭 i just wanna be able to hold onto a thought until i finish the thought. They all just keep slipping away. And then i forget and then with a lot of effort and focus i remember again only for it to slip away again. Rinse and repeat about five times for every thought i'm trying to finish.

[a-totally-reasonable-username]

Why do i always feel like i wasted the whole day and did nothing at all on the days i did unusually much? That feeling is somehow always strongest on the days i had a lot of appointments, went on shopping trips, cleaned, organised paperwork and was generally productive. It really seems like it should be the other way around

[a-totally-reasonable-username]

you ever realize how able bodied people just are not expected to do things that cause them excruciating physical pain? like they’re just. not

if i shouldn’t use my cane because i can sometimes technically walk without it, it would just hurt like a motherfucker then abled people should no longer be allowed to use potholders to take things out of the oven because i mean

well they could technically pick up a hot pan with their bare hands. it would just hurt like a motherfucker

[a-totally-reasonable-username]

you ever realize how able bodied people just are not expected to do things that cause them excruciating physical pain? like they’re just. not

if i shouldn’t use my cane because i can sometimes technically walk without it, it would just hurt like a motherfucker then abled people should no longer be allowed to use potholders to take things out of the oven because i mean

well they could technically pick up a hot pan with their bare hands. it would just hurt like a motherfucker

[a-totally-reasonable-username]

there should be a such thing as a medical detective. you should be able to hire a doctor to figure out what the fuck is going on with you come hell or high water by consulting whatever specialists they can get their hands on, connecting your constellation of symptoms, etc, instead of 10000 different doctors for every distinct bone in ur body that all just kinda go "dang that sucks idk" when you present with more than one fucking symptom

[a-totally-reasonable-username]

Also helpful tips if you use KT tape for other reasons!

I literally do not know what the hell was going on in that subreddit, but don't do it.

You should be able to breathe like you normally do!

[a-totally-reasonable-username]

Turns out growing up in hospitals, psych wards and group homes means that now i'm really good at making connections and socialising in a setting of kids and teens that are not in that place willingly and really bad at socialising in any other setting.

[a-totally-reasonable-username]

All the paperwork and questionnaires and prescription are all done and have been sent off weeks ago and now i'm just waiting to hear if insurance agrees to pay for the wheelchair from the start or if i have to fight them. In the end that won't even really make a difference, just take a bit longer. But the waiting to hear any kind of update regarding getting the wheelchair i desperately need is driving me up the walls.

[a-totally-reasonable-username]

reminder that seizures can cause traumatic brain injuries

i got a tbi when i was 10 years old because of a grand mal seizure. like full on severe brain damage. and then i had to live through 2020 — yeah, the global pandemic year — while dealing with untreated brain damage. and guess what? people like me exist. and we’re constantly erased from both seizure discourse and tbi discourse.

not all brain injuries come from car crashes or football. some of us got brain damage from our own nervous systems betraying us. from our own bodies short circuiting. and no one talks about it.

we deserve acceptance. we deserve awareness. we deserve to be included in conversations about neurodivergence and disability without being told we’re making it up or “it’s not the same thing.”

people treat tbi like it’s only valid if it’s visible. like unless you’re in a wheelchair or wearing a helmet you’re just faking it. newsflash: you can’t see what’s going on inside my skull. but it’s real. and it’s hard.

so yeah. shoutout to the seizure survivors with brain injuries. shoutout to the kids who had seizures and never fully recovered. shoutout to the people who went through brain trauma and were expected to just keep functioning normally like nothing happened.

we’re here. we exist. and we’re done being quiet about it.