brain-buddies

[brain-buddies]

Sign this petition to help protect our public broadcasting. Keep Arthur, Ms. Frizzles, Bill Nye, Mr. Rogers and Bob Ross avaliable for future generations.

[brain-buddies]

Come join us for the Summer Stroll for Epilepsy in Detroit at the Detroit Zoo in June. Be an in person stroller, virtual stroller, or just donate to my team. If you can't do any of that, please share.

[brain-buddies]

Senator Cory Booker pleads with Americans to stand up and use their voices to fight back

[brain-buddies]

for those who live in the US, a reminder to please please vote blue in all the special elections on Tuesday April 1st. Get your friends and family to vote blue as well

Update: especially if you live in Florida and Wisconsin, please vote blue!

[brain-buddies]

Meanwhile, President Musk and his pet Orange Shitgibbon are cutting funding to the programs many of us rely on for survival.

[brain-buddies]

Trump basically declared disabled people ‘unfit to work’ as he put it by revoking the Equal Employment Opportunity Law of 1965. It means employers no longer have to legally give accommodations to disabled employees. This will render so many Americans jobless and barely anyone is talking about it because disabled people like me are treated as expendable.

[brain-buddies]

My meds are 5000 a month and I need VNS surgery every 4 years which is like 20,000. Meanwhile, our dumbass government is trying to cut medicaid, which is my saving grace right now. So let's make a difference.

USA people! Buy NOTHING Feb 28 2025. Not anything. 24 hours. No spending. Buy the day before or after but nothing. NOTHING. February 28 2025. Not gas. Not milk. Not something on a gaming app. Not a penny spent. (Only option in a crisis is local small mom and pop. Nothing. Else.) Promise me. Commit. 1 day. 1 day to scare the shit out of them that they don't get to follow the bullshit executive orders. They don't get to be cowards. If they do, it costs. It costs.

Then, if you can join me for Phase 2. March 7 2025 thtough March 14 2025? No Amazon. None. 1 week. No orders. Not a single item. Not one ebook. Nothing. 1 week. Just 1.

If you live outside the USA boycott US products on February 28 2025 and stand in solidarity with us and also join us for the week of no Amazon.

Are you with me?

Spread the word.

[brain-buddies]

[brain-buddies]

@mossyv4mp Congrats! 🎉🥳 that's super exciting. I'm lucky if I get one month seizure free.

There is a new Chrome extension that detects if a video you’re streaming has a strobe in it, will freeze the video and stick this warning up there until you approve it.

WHERE THE HELL HAS THIS BEEN ALL MY LIFE????

[brain-buddies]

Omg this. My mom has told me that my migraines will get better if I lose weight about a thousand times. Well I lost weight and it didn't help.

Anyway, able bodied people need to stop blaming people’s chronic pain on their diets.

Like no mom, my hips aren’t in excruciating pain because I ate a couple cookies last night.

[brain-buddies]

So funny story. In 9th grade, my math teacher was on this long ass lecture, b*tching us out for one thing or another and finally he says, "do you all have brain damage?"

I simply said, "yes, some of us do." Well I got in trouble for talking back and sent to the office. My mom was called in. She listened to the whole thing and all she said was ," Susan has Epilepsy."

Instantly, my teacher felt terrible and started apologizing. Obviously I didn't get in trouble

"Brain damage" only sounds like a harsh and offensive way to describe brain injuries because people constantly use it as an insult. It's a totally neutral descriptor of what it is. I have brain damage. My brain is damaged. It's not ableist to call it that, it's ableist to call people you don't like brain damaged because you think it's an inherently bad thing to be.

(Yes abled bodied neurodivergents, that includes you)

[brain-buddies]

[brain-buddies]

Do you have side effects of seizure feelings even when you aren't going to have a seizure cause I do, and it's scary because I don't know if it is going to happen or not at those times

Yeah. I get Auras and sometimes only auras. Auras are basically small seizures. I have a VNS, so usually I just swipe my VNS and it goes away.

My suggestion is to keep track of when these happen and what it feels like, and if it progresses into a full seizure. Then you can see if there's a pattern. From there, you can tell when you need to call for help during one or leave it be. But if it is scary, call a friend or family member

[brain-buddies]

Hello

I often hear that, for example, take the example of autism they have many disadvantages, but they may have advantages in terms of drawing science, they may be geniuses and so on

are there any strong ones? What are the sides of people with epilepsy in this regard?

are there any positive +?

I have epilepsy myself and I'm wondering

Positives to Epilepsy? I honestly can't think of anything. Its seizures, side effects of seizures and medications. The best thing is the community. the epilepsy community is amazing and I'm active in the Epilepsy Foundation and thats really awesome.

[brain-buddies]

Shout out to epileptics who don’t drive

Shout out to epileptics who can’t eat certain foods

Shout out to epileptics who are autistic

Shout out to epileptics who have cognitive disabilities

Shout out to epileptics who have autoimmune disorders

Shout out to epileptics who have physical disabilities

Shout out to epileptics who have cerebral palsy

Shout out to epileptics who have depression

Shout out to epileptics who have anxiety

Shout out to epileptics who have brain damage

Shout out to epileptics who have memory loss

Shout out to epileptics who can’t work

Shout out to epileptics who experience involuntary movements

Shout out to epileptics who suffer from sleep deprivation

Shout out to epileptics who developed epilepsy later in life

Shout out to epileptics who have had seizures their whole life

Shout out to epileptics who have had to drop out of school or be home schooled

Shout out to epileptics whose seizures are triggered by “weird” things

Shout out to epileptics who suffer from the side effects of their medications

Shout out to epileptics who have focal seizures

Shout out to epileptics who have grand mal seizures

Shout out to epileptics who have petit mal seizures

Shout out to epileptics whose seizures are triggered by flashing lights

Shout out to epileptics who are seizure free but fully rely on medication

Shout out to epileptics who have frequent seizures

Shout out to those who had childhood epilepsy and outgrew it

[brain-buddies]

Epilepsy culture is accidentally making an epilepsy joke in front of people who don't know you have seizures, and then make the whole conversation awkward because joking is the only way to cope

.

[brain-buddies]

A “flash warning” in font to small to read is not a proper flash warning

A “flash warning” in the corner of the post where you cannot see it right away is not a proper flash warning

A “flash warning” that appears the same time as the flash is not a proper flash warning

A “flash warning” in a hard to read font is not a proper flash warning

A “flash warning” in the caption is not a proper flash warning

A “flash warning” in the comments is not a proper flash warning

—

A proper flash warning is

- in a big, easy to read font

- is up for enough time before the flash for someone to read

- is in the middle of the screen

Put proper flash warnings