chronically-j
chronically-j
chronic illness blog
225 posts
22, newly diagnosed with EDS, POTS, and MCADany pronouns (if you really want to know. she/it feel best right now but that changes frequently)bisexual, singleno gender, not agender (yes ik agender means no gender)
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chronically-j · 2 days ago
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my dr put delayed gastric emptying in my chart and has started me on reglan (i think thats it) im asking about official testing but thats where im at rn. im hoping the medicine helps, he prescribed it in liquid form so i can tolerate it better since liquids are helping some. online says delayed gastric emptying is gastroparesis so j definitely wanna get an official test sooner rather than later but ive heard a lot of people say that the GES thing isnt super accurate, im hoping it is though idk, but i still obviously want to do it to figure things out
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chronically-j · 11 days ago
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curly hair routines are not for the weak but thank gosh for a small bathroom bc i could lean on everything and sit down and it was so much better
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chronically-j · 11 days ago
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i updated it
Introduction
Hi, I’m Jordan! I’m 22, nonbinary and I use any pronouns (i literally do not care what you use!), and I love baking, cooking, reading, writing, and many other things! I’m a huge taylor swift fan (like, huge, ask me about my collection if youre interested!). I love smosh and dropout and other channels too.
onto the medical stuff, since thats mainly what this blog is about.
last year i was diagnosed with POTS, EDS (subtype unknown but assuming hEDS due to symptoms until i can get genetic testing), suspected MCAS (my eds specialist suspects it and im on meds that are helping but im waiting on testing), and my dr is currently sending me for testing for MALS.
my biggest issues currently are my joint pain/instability and my GI issues. as of rn i am on a liquid only diet consisting of soup and nutritional shakes and some homemade smoothies. im vegetarian due to allergies and its chill but i do miss meat sometimes lol. im unfortunately losing weight a lot, which is both good and bad but im dealing with it and working with my dr to find a way to fix things.
i experience daily migraines and j have for quite awhile at this point, but im not medicated for them beyond tylenol yet bc medication scares me lol.
i use various mobility aides depending on what j need each day and i have a custom wheelchair arriving in just a few days!
i think thats it but who knows if ill remember something else later
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chronically-j · 11 days ago
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i should probably update my pinned lol
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chronically-j · 11 days ago
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just wanna eat my soup without nausea plssss like dont get me wrong! its better than when i was eating solids! but it still sucks that im getting nauseous and cramping !!
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chronically-j · 15 days ago
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im realising that dude trying to call me a man (im afab lmao) has given me a surprising amount of gender euphoria so now ill be deciding for the next year if i wanna go back on T lmao rip
so funny when people try to be transphobic to me on tiktok bc like. baby im agender nonbinary you trying to”transvestigate” me is ONLY increasing my auphoria. you cant tell what i am? fuck yeah brother thanks for the compliment!
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chronically-j · 16 days ago
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so funny when people try to be transphobic to me on tiktok bc like. baby im agender nonbinary you trying to”transvestigate” me is ONLY increasing my auphoria. you cant tell what i am? fuck yeah brother thanks for the compliment!
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chronically-j · 17 days ago
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ate a ding ding and now my stomach hurts but it was so good, worth it
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chronically-j · 17 days ago
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to be loved is to have soup
(dad made soup for me and blended it up and made it super thin so it would be easy for me to eat :) )
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chronically-j · 23 days ago
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time to get soup 🫶
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chronically-j · 24 days ago
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Just got told by my dr to go full liquid only diet and blend soups with extra broth to get food in. i actually hate this
hes also concerned i could have MALS so thats another test i have to get done
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chronically-j · 1 month ago
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how it feels when my whole body starts randomly itching and getting red again (im genuinely sick of this shit guys yesterday i almost rubbed my skin raw after my shower bc it was so bad and so itchy)
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chronically-j · 1 month ago
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i take it backe yogurts a bitch who just waits until i let my guard down
i love yogurt bc its just Food enough for my brain to accept it as food and not another drink, but its not so thick that i get sick from it. love that shit
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chronically-j · 1 month ago
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i love yogurt bc its just Food enough for my brain to accept it as food and not another drink, but its not so thick that i get sick from it. love that shit
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chronically-j · 1 month ago
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me: *gives my body any form of sustenance atp besides water and energy drinks*
my stomach: brother what the FUCK IS THAT
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chronically-j · 2 months ago
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bought frozen fruit so i can make smoothies and hopefully eat more 🙏🙏🙏
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chronically-j · 2 months ago
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shout out to baby food companys fr
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