The issues of a guy living in a supported living environment and having epilepsy. 🐉
Don't wanna be here? Send us removal request.
Text
Descended Into Anarchy
When it comes to the time, and it is that time, to achieve anarchy people must be untrustable, unreliable, unstructured, un-everything creating break all over the place in the system. Thats how it is in my care compony right now. Or definitly my care service. Every other day were having impections done by CQC and where paper work is concerned, anything a client is given to sign you should you take a picture of just for evidence as to information that will be going on record. Two of my friends, Archie and Hayley are moving out and other client looking into the option. The service Maneger tells me he doesn't lie but then when ever hes not happy concerning my behaviour he threatens me with arranging a reveiw and calling the police which he has never once done. Support workers/Supivisors Staff here are ok at a support worker level. Then when the support worker become the team supiviser or higher the grow to run bad blood through there veins. That is if they have a heart, maybe they run on battery charge. Once in authority staff change like that. CLICK! There has been a huge battle recently concerning a supivisor and it was concerning her giving the authority for someone to come into my flat without contacting me while I was out. This situation was made so SO much bigger than it needed if the lady just said sorry. In an e-mail to the maneger I said how when ever these mistakes are made he tends to appologise and not the person who makes the mistake and how that does nothing for me. Anyway a sitituation that could have been solved within a day end up taking... Well to be honest its realy still going on Lol. Being I never got this appology I deserved then I posted letters within the block of supported living flats saying a paragragh about the Proffessor Zimbardo, psycologyst and the Stanford Prison experiment investigating wethor when a person is given authority they will asosciate it with right. I did this seeing that the supivisor took it to be her right to give entry to my flat and not ask. This is one of those situations though how, if a member of staff doesn't appoligise for theyre problems they will always expect they can just behave that way.
0 notes
Text
The Point in the Board! 🤯🤪😤
When you hear board meeting what would a person expect. The goods? The bads? And then with here... THE PAST VIOCING AT A BOARD!!
(b4 we go on to update you ive decided to change the labels to an oh so easier to remember one because of how much trouble its causing. The compony title shall now be In Humane Living!)
Being invited to a clients board meeting and increasingly encouraged because apparently im one of the better ones to “voice the opinions” of course i took them up on this being the fool to think that this would make maybe the smallest difference in hell. Hoping that the list of issues i had prepared would come to be of any use i took it all ready to say the huge problem which is at the moment these new F***** ALARMS!
Of course the board starts on a lovely chord. Hows the whos and whats new and this and that... All the nothings that are to be important in a real life. We spoke of (airy fairy voice) “dream boards, a bit else of (voice again) app to help the blind, maybe a bit of (voice for the last time) In Humane club activities. Anyway to follows is now the past voicing Issue.
I mentioned, after these bits the problems that alot of staff/clients are sharing at our block of flats. Such a stupidly obviose thing when it comes to this part of life it just amazes me how the compony even missed it.
SEXUAL PRIVACIES! An alarm so titly set up, as so made that the client cant unplug or stop it working ourself because of the fault awareness warning going down to the buzzer, would obviously be an alarm to set that a person cant have a wank without making a member of staff aware. And apparently that is the exactly what were meant to go and face. "Hey dude tonight just gonna eat dins, have my meds and then push out some sperm"
The joke they rely on us this, communicate something at that level of personalness to the staff with who are trained to in contrast to this should open themselves to that level of personalness.
The contradictions. Oh the contradictions! There’s that just mention, then there’s the fact that they say that they’re interested to hear our issues within Such a compony as In Humane Living but when you come to a board the negates can’t possibly be voiced. Now theres the stupid complaints member of staff, head office. Anytime that you e-mail him he won’t answer and so this at that point now has to go through the parent or guardian. Another would be that, In in contrast to us and what we should do, I never hear the staff being easyily enough able to talk about having a fine good masturbate every night. This also contracts the point of, if it’s such a easy subject that In Humane Living feeling we should voice so easily then why such the problem with me voicing these shared opinion of Prospect in front of the whole board and not being seen as right.
This evening I’ve arrived at such the end of my patience. I’ve said to mum it’s like being trapped within a dead end! They ask a person to come being he can “voice opinions well” but a compony won’t listen to these opinions. I spent around a hour traveling up to C....... just to be pushed down. Said David your not right when these staff wouldn’t have a hope in hell of knowing being that they don’t live, SLEEP in their own service.
It’s gives the show to us of that these board meetings are only done so make them in the compony look good. Oh we’re taking everyone availables opinion but ps the small print says quotes the fault of these things
1) you can’t share your voice unless it’s positive to a tee.
2) If ANY NEGATIVES AT ALL, these are to be voiced behind close doors or if not will humour and speak down to the voicer.
When it comes to it it is like this: the In Humane Living client board meeting is only for people who sit and breath in shit and are willing to live with it. I can’t do that though! I can’t hoover up the good angle of some and then not be aloud to voice shared bad angles of the other. This from what I hear is what they call the Freedom Of Speach and of it take the whole single body of David to make them aware of the fault that is the Alarm than that is what I’ll do!
(After chatting with the night staff it comes to me now that as “perfect” as these alarms are, apparently I’m not the only one to of hit high where these are!)
This is my bit for a long while, enjoy!!!
0 notes
Photo

Picture to represent new girl. Showing her turning into Fairy Liquid bottle, holding knife so as for cutting herself, bleeding Fairy Liquid and, of course, devil horns and devil wings. Reasoning: 1) Turning into FL because of her getting her own way via threatening to drink some. Same reason as to why she is bleeding it. 2) Holding the knife to represent the time when she TRIED to get her own way through telling that she would cut herself with a knife she brought downstairs. 3) The horns and devil wings, well because, to represent the girl shes now revealed herself to being.👿👿👿 Flames aswell, well they just make a great background?
0 notes
Text
...Just to interrupt a such great current article...🙄📺
What’s made me want to to put a halt for the moment on the present article, Carer or the Cared For, and push it maybe a five mins worth of reading back is, that something’s happened today here at the SOTF block of flats that I just needed to report. Being as that it’s happening, is just such a rarity. An AMAZING RARITY! 😃🤧 <— (HAPPY CRYING EMOJI) So as for you to know, at our block, the support service has a lounge which is open, to be shared between the staff and service users. This Lounge has one MEGA SIZE TV, for whoever, service user wise to put what they please on. I suppose also night staff and as-well if the daily working ones aren’t busy but, usually just the service users. Anyway living at this service it’s come to the choice of almost just giving up on it, not ever being able to catch the awesomely huge screen for ourselves and watch any boring thing such as football This is being the fact that because the house boys (houses included within the service) are always able to wake up so early and to obviously, like seen everyday, run in and grab control of it. 😤📺 Anyway my reasoning for this article is, the IMPORTANCE I see in this, how happy such a lame thing made me feel because of that, never usually do things here go this way. Its is that this one time after visiting town have I come back just to find, the tv... AVAILABLE! Now it’s my turn!! My turn to watch a program with no consideration of others. No consideration of wether they DO or DO NOT like the program! How fun this will be! 😜 The choice I made for this time, is to watch the One Piece (Anime series) film. 🤣 I suppose in a way you could think I did have consideration of the other service users. I chose this to watch only because of knowing that within the service there are very few who watch anime, let alone the excellent ones such as One Piece. While I sat downstairs today, which like I mentioned earlier, is quite the rarity, I decided to write up some of the rough of my next blog article, (LOOK FWD 2 IT 😉 got news!) while I was watching the TV. To my surprise first of all, James, a quite older age service user joined me on the sofas. One who I don’t get on with particularly well and I would be very surprised if he’d knows anything concerning One Piece’s devil fruits, they’re powers they hold and all that jazz. Also then following him was again more of the house boys taking up they’re usual place and, again to my surprise, still although there was the obvious negative within they’re eyes. The disappointment that they couldn’t have the choice to watch what they want, still, they felt a positive enough to hang out in the communal lounge anyway which is all fine with me. The guys were mature enough to accept that this afternoon I had grabbed the remote first. As for this I had control and they said nothing to complain about that. What I enjoy most about if ever the rarity that this little event may happen, is basically the being able to watch your own program within the main place where as the service user (me 🤪🧠) has much more ease what with socialising with the staff. This mayseem to be the most lame article Ive written for my blog ever but my reason is so people can know what troubles it can be to living here. ...also so as for some of you to know, on the movie Luffy won... HE DONE IT WITH STYLE!
0 notes
Text
The Carer or the Cared For?! 🤪🧠 Pt (3)
The night, or eve, starts out that me and Haywing were getting quite concerned being as, Bradice, Innocent little boy as he is, was showing signals of that he’d been drinking. He had recently befriended, almost started idolising and hanging out with fairly “New Guy” Adam. From all the times we'de passed New Guy, within the building, we assumed he was a drinker. Or we knew he did at least rely fairly highly on his intake of alchohol. This worried us, for Bradice, persuasive as he is, could in our experiance, be pushed to do the most silly, stupid things (as you’ll find later, so I can only advise to keep reading.👍🏻).
Because of this, hearing sounds of Adam acting tipsy, from outside flat 5 (Bradice and Vincenteta’s) and also the worries resulting from Vinn’s telling me and Haywing that an extremely vulnerable service user was in there hanging out with them both then we decided to report this to the current night staff.
Getting to the main office we were only to find out there were few and far between, even with the current should be number being few and… well you get the pic.😟 Working that night, only to make all the more complicated, was ONE actual SNIPL support worker. One who would know and be trained concerning everything to do at the flats and then ONE AGENCY. So, would know general support work but nothing more than that.
So we told of the current situation to compony’s member of staff, Eddy, and just asked would he visit the group, more for the sake of Martin (recently mentioned vulnerable service user).
Apparently from Eddy’s visit to the flat it turned out that everything was well and good, Martin was fine, just Adam WAS drinking rather a lot
If only it could of stayed that way… 🍺
At around 11:00 to 11:30 Adam had, we found out, suggested the pair of them to go to visiting a pub. This is already following him having a fair few himself and by Bradice’s, now rather funky personality it seemed he’d had quite the amount gone down him himself
Now, when Adam and Bradice were exiting the Block it resulted In me becoming furious at Bradice for being foolish enough to invite another highly vulnerable service user, far out on the autistic spectrum, although I wouldn’t want him to be any other way, to coming with them. A service user with such needs as to being led down to town, or having things paid for/helped to be paid for. I won’t lie, it would of terrified me to know of him having gone down into town at the dead of night. Two intoxicated with and no staff to care for him. Anything could happen.😤
Haywing went running down the street after Nicholas (SU mentioned), calling him back to see that he would be safely back inside the building and then once we knew him all to be safe and secure I yelled at Bradice being so SO ANGRY with the stupidity of his actions while Adam not apparently really caring, he started off down the road. I suppose to the nearest pub. Obviously he wasn’t now willing as to wait for his only current friend at SOTF flats and rather encouragable drinking buddy to receive a verbal beating.
In between this and the time that Adam and Bradice came back home Vincenteta, Currently in our flat with us, got off to bed and we were almost just left now looking after Martin, who now had now compony, even ditched some people may say and Nicholas who upset following viewing the anger given towards Bradice. From Nicholas’s understanding he thought he’d done something wrong and that we were angry with him for leaving the SOTF site. 2B Cont…
0 notes
Text
Carer or the Cared For?! 🤪🤔 PT (2)
First of all I want to tell you some facts to do with the SOTF Courts nights, the time our story will be covering. Things that you’ll need to know. 🧐
Generally… - At the moment within the whole of the SOTF building the current number of tenant is twentyfive. Twentyfive service user to, usually, a night support of three. At day there’s much more.
Fact (1) - There is always meant to be in place, On Call for in case of any problems, emergencies. A higher member of staff there to advise and who SHOULD know a higher level of training, always to keep they’re phone by them to answer and therefore help stable up the situation if and when needs be.
Fact (2) - Most service users with neurological problems and therefore have seizures or who may suffer from some type of problems that maybe nocturnal should be checked on every hour. This is the job of the three night staff.
Fact (3) - If a member of staff is referred to as an agency member, this means they are almost definitely support workers not trained and educated concerning neurological needs. They are Staff only to be called in when having lack of the compony’s own.
2B Cont...
0 notes
Text
Carer or the Cared For?! 😤😑 PT (1)
Today the issue is, like said in the title, are we, me and Haylisha, the “carer or the cared for?” Support worker or service user?
There’s been certain things going on in the Survival Of The Fittest Court service that’s been making me review my living situation. I think about it and feel, David, you should be paid to live in this joint. Not just the SOTF service as an individual but the compony as a whole. Let’s call it, I don’t think I’ve yet named it, Shitty Neurological Problems Impacter Limited! So in short SNPIL!
Problems walk by, day by day, person by person (not just service user wize but that’s a whole different issue all together. I’ll tell about that later however) and somehow it seems that each one we are, always one of us at least, usually both fitted into them like the missing pieces of the puzzle. Maybe the problem is that the SOTF flats will have an extreme lack of staff members and we, I, Haylisha, one or both just happen to fit into the mentality group they need so as to distribute work upon us and make their own lives easier. Of course, aswell, they know we’ll be the fools too, voluntarily, take them up on it because there’s that certainty in that we see the other service users as being family and that we like them to be happy. Maybe go so far as to say we’ve been raised to learn morals. Maybe have a soul? I dunno, whatever…?
A good example I’m going to share with you in the following article (writing this in rough seems to be taking a while so will divide issue in two 🤔) will, I’m hoping, say so much. Not just about the living situation but the care, or maybe I’ll call it, LACK OF CARE. Also this will tell you of the strong incidents you can end up landing in being on the level mentality SOTF Court advertised living for but then took far different.
2B Cont…
0 notes
Text
Creative Writing, 1st take 😜
Green, green, green, green? BROWN, green? Chemical? No. Nuclear? Certainly not! Drug? Oh the bro would find that very droll. Here stands Andrew. Andrew Rex Iya choosing from colours to decorate, in the middle of his new hole. Horrified by what he has done purchasing it. Is it he? He certainly started off a he at the beginning of life but you realy just couldn't tell any more at this point in time. Anyway Andrew Rex has just moved into his newly bought hole where him and his girlfriend Jan Nien were soon to be nesting. This was the term for current day. Any person could call it living but for a mud-hill with the singular door and whatever junk came scattered over the top did it really seem appropriate? No. No, only the rich skeletons, Zombies and whatever current day races would see this as the word to fit the part. And even then it took a lot to pass auditions. Turning his decaying skinned head, the one eye hanging out on what looked like a blood red wire, the other gone, only through recently popping, he veiwed the place. Crap to the left of him, shit to the right and more or less the same to the front and back. Of course some of this literly was shit. If anything was a flaw of living in the now, that was now it would be there just wasnt anywhere to go. Although to find the positive this did give a lovely individual smell to the hole. And it seemed to change each day. Or if at all lucky enough, from morning to eve. What was that scent in the air? Ah the take away rat guts we had last night. One of the more fitting smells to him. Apart from everything made up from all the sorts of brown known to zombie kind wrapped in with the bottom of the hole Andrew Rex and Jan Nien had quite the lack of things to own. For presently realy what was their to own apart for Theyreself the hole and what people would nowadays call a dub-flower. And it realy was a lovely dub-flower. Sitting to the edge of the room wilting over in an arch, yellow petals falling off day by day. Andrew Rex of course could water it for something to help distract himself from the work but then what would this really do. It was dead, as was all life now. The living dead.
0 notes
Text
Friend or Foe (Thats The Question)
One thing that i cant get out of my mind at the moment, it bothers me so SO MUCH is that is this girl my friend. Does she want to be my friend and then if so why does she do this, bring up such delicate issues and what makes her think like this. Ill explain. The girl came at a near time after a best frieind had died. In the place we live, run by a compony for people with nuerological problems, as you could probley imagine, theres a ton of people with learning disabilities and so making it hard to have anyone to make serious convosation with. After Louise, the besty, this one turned out, at the time, to be a great person for to be able to share a problem, the shoulder to lean on, the staying sane in the neighborhood while louise was gone and the next one was in line. The only thing was... SHE WAS FLAWED. Where as she is a church runner, learning counciler and as she will say big heart and lover, she also, almost everyday will come out with the words twisted in such a way as for a deep dig, emotionaly scarring, guilt trip. The use of these would be put in any such way from, making a cuppa to the whole dirt of black mail. But because of the contuing relationship, strained (is a small word for it) as it was because of this, we started, I will admit to look at this, as THE BEST FRIEND. Louise was my best friend. We argued, we made up, we argued we made up (SIGH 😒) we ARGUED, WE MADE UP. Always though, when she was with me, did we have a strong reliable relationship. But as I would see for this one, in the near future, it did not work this way. It would be (as be the apparent motto on her part says) The one friendeth that decideth to split on concern foreth keeping his sanity... eth?! Shall always be the oneth to fix the friendship. Him only, nothing more, nothing less." (Never can it be the one to cause the issue on every sort of mental level but whatever? 😵) The the new one came along though! It was like it was meant to be. The situation, how it was played, EVERYTHING. A girl called Hayley, who hadn't had epilepsy all her life and also I was told had visual impairment, (to me just meant blind) was moved in for a time to experience the living here and wethor she'd like to base here permanently. Well I met her. First thing, it shocked me that she could see, or to put it more accurately had some of her sight. Anyway did we get on like a house on fire! Of course Best Friend (first name: Best, last name: Friend) did not like this At all and it was just the part that Hayley was moved into Best Friends flat. So this is when things started to turn around in my life and from the view turn around in Bestie's. Having the girl come with the sight as poor as Destiny (whale, Finding Dory. Must watch if you haven't) it was miraculous how much she could see. When compared to me. I'd blocked my sight, didn't want to see. Only wanted to SEE THE GOOD. LIE TO MYSELF in other words. This flaw as I told you about earlier, when it came to Bestie, I just kept lying to myself, tell myself, it's only said through innocence. She's nothing but good. The picture of pure and loving. One day it came to me and Hayley out, walking to town, Bestie of course does not like, and she, Hayley asked something to the effect of: "So does she do all these guilt trips with you?" It broke, DID LIFE CHANGE?!! It was like something had broke! The shell around that part of my mind saying, it's not on purpose, she doesn't mean it, she doesn't realise what she's saying there. Of course she did. She knew it, I knew It, SHE KNEW IT, er Hayley... aswell. I can't believe I'd blocked myself from this, wouldn't admit this to myself way before now. She was a princess, her rule goes! Through love, through hate! Through hurt, what she gets she needs, SHE GETS and she'll play it till the very end, win or lose. Only in her sight it could never of been lose for her. She would never lose her never lose her new right hand night of blacks to the queen of white. This wanted what would be her future her future was to be her new right knight was hers and they were bound to be wed, under the stars in the snow (No? Was that just me 😶⁉️... Ok well, anyway...). So the queen of white was on her territory, or what she saw as! In both ways! Intrusion on her friendship, The Knight should be hers, Ive done my thing, Ive taken my place, he came to me 🤔💭💭💭. But outside the kingdom... in social security... me and Hayley: 😤🗯 I can't stand her, she said this to me, she said that to me! In the end, when it came to, the whole acts. Black queen as it is, she seemed to rely on guilt and an obvious thought that seemed to fall back on, he'd never leave me, he's my knight, I was there for him through his upset. MAN WAS SHE WRONG! I may of not, I know that if my now best friend, Hayley, Haywing Haylisha and now Kay nine had never come, I'd of still been there, her kingdom. The army of blacks. But it turns out she did 😄. With the new queen of white, diagnosed with a not so good sight, but eyes good enough to see that this may not be a future that we cope with, her on my left, Best Friend on my right which would I go for⁉️ Of course it'd be the left. I'm a natural lefty. 😊😁😜 Isn't that the good guys meant to win. Isn't how the story goes. Black got the kingdom but white, well white got Sir Lancelot and Excalibur and all❗️ Ive started writing this post to tell people the past and its because of, I thought it would finish here but obviosly not. Black seems to of dwindled her way back into my life and man is it hard. But i think this is for the next time. Ive spent a long time on this, the librey (where i am) is now closing and so i think ill continue this tommorow. Hope youve enjoyed the read, bye bye now 👋🏻👋🏻👋🏻
0 notes
Text
Riddle Me This...
(To understand some parts of this piece you may need to read past stories.) ENJOY 👌🤗 Today, Sun, 20/08/17 after having an exasperating repeat of the bed alarm situation then again Ive decided to turn it around to my advantage in the service. Not only have I, like before, pressed Emg (emergency) to set the alarm making the continuing noise in the main office but also after hiding it and then taking a stroll and a Neros coffee in the park I came to the realisation, I could wind the staff up so much more than this... Through coincidence last night I was creating riddles while in bed so as that, being when new comer staff, seeing which ones they would be able to understand and answer, this would give me a bit of a picture as to whether their character is at all like mine. After having the start of the day becoming stressed and angry and shouting at people I have been totally able to turn the tables and make it a right laugh by sending an e-mail to the shift leader, giving the deal that if she, other staff can answer these riddles than I would tell where the hidden alarm box is. My Room is the colour of Magic, my grandpa carries the scythe, I worship a steam train. Q) Where am I? Ive always wanted to understand the science of deconstructing and reconstructing matter however it turned out that when learning it it was not to my character. I'm someone who is only willing to take. Q) What Subject is this? I walk on the bridge that has no water flowing beneath it. Q) Where am I? I live on an island that has no gravitational pull on its bottom holding it to the planet but so obviously does on its top being as I am able to walk and climb there. Q) Who am I? Before I give you the answers I can tell you all that this totally made my day. Within the e-mail I gave the message... "I have an idea. I will tell u where my alarm box is if you can answer these riddles. Ooh won't this be fun. Come on the third one is quite easy I feel. If you know me, you should know some answers." The Team Leader working the shift today is the manager for my floor in the flats. You would hope she could figure these questions being as she manages my care and therefore should know me quite well. Also I'm pretty, she would be into the programme Star Trek, HINT HINT! Anyway I'll give a chance for a while in case maybe anyone wants a go at the riddles. In a few days I'll put the answers in follow up piece. Have fun! 😜
0 notes
Text
👑🤗 Your Gay highness 🤗👑
When first moving into the care compony and realising that I maybe gay, at the time it made me feel no end of worry but now I couldn't imagine being any different. I enjoy the life of the gay man and I'm happier now to see that around me in the world, it's becoming more accepted. Not accepted by everyone but accepted a lot more compared to a few years past and is by more different groups of people now (e.g. Races, Religion). Quite recently a scene that surprised me immensely but also made me feel so happy was when passing a group of youngsters I heard one of them above all of the rest say something to the effect of "It doesn't matter if a person is gay or not." To me this shows that there must of been quite a big change in the views towards homosexuality and that parents or schools in places are helping cover it as what should be an accepted subject. Recently I've watched a documentary that follows the singer Olly Alexander from the band Years and Years. It was a very sad documentary put on tv mostly to explain that growing up being a gay youngster, even though it seems things are a bit better now, there is still quite many a people who receive the bad experiences of being bullied. The documentary explained how this then results in them growing up to experience mental health conditions surrounding the very harsh results of it. Since watching the documentary covering gay people and the related mental health conditions, it's made me realise that I owe a lot of appreciation to a good few people in my life. Different people have helped me in various ways totally manage to avoid getting hit with these mental health conditions and from seeing these upsets on the TV it makes me thankful that I've had them in my life when I needed them. Too give them a clues as to themselves... - Firstly that I appreciate are Two Sister Witches 😉. One of them plays with fire 🔥, the other ones power comes from her dads faux 🖤 - The Next one is the Ginger Bread Man. He was a great guy and his help and persuasion managed to get me feeling safe and easy and not an out cast even being gay as I am. - There's an angel who works via song. When I told her the sexuality she didn't care as long as I was still the soul who loved her. 🎶 - One of them is a bitch, a very white bitch 🐩. Senses she uses I can guarantee she appreciates more than you as your obviously reading this. - This last one's his real person when he has challenge. If you only just met him you first off would be worried by the fact his shapes like zombies. He needs this 🍧 then this 🍫 then this 🍦and finally this 🍰🍿🍬🍪🎂🍭 The way I was accidentally pushed out of the closet in the compony of a party, at the time I was so upset. I expected everyone would treat me differently and I would lose a lot of friendships but it was the opposite. Nobody cared in the slightest of wether I had an attraction to men, woman whatever. Not only did this make me feel happy but it made life easier in that whenever the subject came up I didn't have to lie making things not such a struggle sometimes. It was a worrying, embarrassing experience at the time but I appreciated that the service user gave me, more than once, a very meaningful apology and anyone could tell that she didn't mention me being gay within the compony as a form of spite or to upset me she just done it when she did only because of being surprised and having quite a lack of understanding and no realisation that the certain subject should been mine and mine alone to share with others. This Saturday just passed I had a great time and enjoyed one huge reason on its own to be the gay man I am. It was Brighton Pride and two groups playing there that I just couldn't be patent to see/hear were YEARS & YEARS and PET SHOP BOYS!! Going to the festival with my mum we'd decided that if Years & Years were playing at the same time as the Pet Shop Boys then we would go and watch the Pet Shops. We hadn't ever seen them before and from mums telling me, apparently everyone would be totally impressed to hear that we'd had seen them perform. The festival worked in the right way for us though thankfully. First of all Years & Years Played and around an hour after the preparations on stage were done, and seeing Judge Rinder and getting an awesome selfie with Years & Years's Mikey Goldsworthy 😆, then the Pet Shop Boys came out! They performed and the performance was amazing. When the playing first started it was being ruined for me and others for around ten to fifteens minuets by a group of four to five tipsy girls who although everyone was lacking in having very much space in the crowd they had to still force people outward in time with their dancing to make a space where all of them could just move with ease but for the opposite people around them became more fixed together. After that time though it was much easier to enjoy through the fact of that the girls left because of there being one trying to force me away from my space and I ended giving her a nonchalant elbowing resulting with a few comment but they then left to go somewhere to annoy other people. Following this though was when I found I would be really able to enjoy the Boys. Preparing to see them at Pride festival I tried listening to a few songs they'd done on Apple Music and I found they were good but if a person hasn't seen them live then they couldn't imagine how much better they are when actually there watching them! A few minutes before having to leave to get home they played my easily favourite song of they're's, West End Girls. It was an excellent performance! So glad I got to see it in time before having to go. So in conclusion for the blog part, I think it's pretty ace being the person I'm am today. Before any person chooses to come out the closet, I know life can be looked at as quite a worry in loads of different ways but that person needs to remember once you are out the door the claustrophobia is gone and it is easier to breath freely. 🏳️🌈😉🏳️🌈
0 notes
Photo
The invite to a BBQ only for the service users who have lived in the compony for a full ten years. This coming from a care compony that in training mentioned to avoid any favouritism being shown towards service users. GOD I FEEL SPECIAL!!!😆
0 notes
Text
The Alarming Alarm (Pt 2)
…Ok so where was I? Oh yes…
The next day as my act of rebelling I hid the alarm (as mentioned in TAA Pt 1). This is so that it would go off continually downstairs on the monitor that reads who needs tending to and so that the bleeping would disturb life in the main office until they could find it. Off course I got all the…
“David, M (Manager) is not in the mood for these games today!” and
“David I know this must be frustrating but we need authority to change the settings” and they had back a bit of,
“Well actually you don’t know how it is because you don’t have to live here do you!!!”
Anyway so I went out for a coffee to leave them to stew in they’re mess (Neros, it’s the best!) and to do a bit of window shopping. Of course while I was out I got first a phone call from M. To his opinion what Ive done is childish, the answer I gave him is…
“M, this is only as a result of that I’m never listened to. Now call me back once you’ve called AL (Alarm Lady) to authorise changing the settings on the alarm.”
So after a call from mum sometime later as to tell that M says he’s very worried about me and would like to discuss the problem with the alarm I headed back. There was nothing in CEX, but then maybe it’s for the better, I’ve kind of over spent this month 💰😣. When I got back I went to see M. When I was in the office we discussed a lot. My thoughts on the TL (Team Leaders), the issues about how, no matter how many times a service user alerts staff to an issue it will all be brushed under the rug, how when a service user tells management a problem they’re having with a member of staff or have had that it will totally break the relationship all together and then last but not least the bed alarm and how it’s interfering with my personal life. So following the discussion of all this M came to the decision that we’ll get in touch with AL to finally authorise changing the settings of the box and as well as that agreed to some other things that were talked about. For example an idea I brought up to him to find out what his service users really thought of staff would be by creating a survey for them to answer and tell they’re opinions on them. While M was on the challenging job of trying to get in touch with AL who was at the new set of flats that were opening on that day for the compony, she was obviously arranging the alarms over there (god forbid) I told M that I would go upstairs to put my phone on charge. So I done this only to come down and find that the main office door was closed and as it does automatically, locked. Knock, knock…
“M’s on the phone” a member of staff informs me.
“I know he’s on the phone about me” continue to wait at the door. A few seconds later,
“M’s on the phone! A TL now enforces on me.
“I KNOW HES ON THE PHONE ABOUT ME!” God, like I’m this stupid person who doesn’t understand a word I’m told.
See this is how it works in the compony, when you get a good staff, they’re a great staff but when you get the bad ones they can be S*** meant in every sense of the word. From the bad ones you can get spoken to like, of course your this lower form of life that is living underneath the soul of they’re shoe… but anyway more of that later 😜. So anyway after going upstairs to wait for M up there and to have a five minute sob over the phone to mum about how EVERY LITTLE THING IS DIFFICULT AROUND HERE I decided to come back downstairs and see if M would open the door to the office now. So finally M opened the door for me so as for us to get back to the discussion and trying to making contact with AL about the faults of my alarm. (Turns out it wasn’t AL he was on the phone to but still…). Anyway so straight away, being that I was in a furious mood already I got right into telling M about the fact that a TL would not let me into the office even though I was meant to be, WHERE? IN THE OFFICE! 🤦🏻♂️ M brought in the certain TL that had not let me in because I told him I would like him to speak to her. Sarcasm came spitting from my mouth. Time to make the person feel the level of stupid she so clearly is. After all of this (sad to say this in no way relieved my stress 😑) she was sent away and this is about all where the chat finished. There was around five minutes of a talk about new settings AL had sent over via e-mail and the,
“Would you be ok if tomorrow I have S (staff) go into your room to change the settings on your alarm?” And of course there was the,
“That’s fine.”
And then I left, to go get ready to leave for home… …sadly not forever. 😩
0 notes
Text
The Alarming Alarm
It gets to the point, living in the supported living situation, that after so long of bringing an issue, you’re unhappy with, to the staffs attention before you start going to any ways to gain the attention that is needed to have it fixed.
So this was me when it came to problems with my alarm box for my bed. For those of you who don't know what i'm talking about here, a brief explanation. The alarm box for the bed is a system that is hooked up around the bed to sensor and alert staff when people in SOTF Court are having seizures While on the bed. The alarm then sends a signal to a pager kept by the staff on each floor so that the one to be working with your floor can come running and also is connected to a monitor downstairs in the main office that makes a bleeping sound and shows the appropriate name to tell that somebody's in trouble. anyway after so many months of being that any slightest movement it would go off and sends a member of staff to disturb the peace, this started really bothering my personal, or not so personal life at the time no end and even though I reported it again and again nothing would ever happen to change it. It was only just before the beginning of the weekend that one of my more fave member of staff took notice of that she was coming in, like say every ten or so minutes and had one of our staff trained to be able to change the setting change them for me… … only for them to be changed back to these amazingly bad setting maybe two days later, because these are the settings it says that it should be on In a SOTF Court file. So this was when I cracked. I ended up resorting to doing some things almost infant like to show that my alarm box is interfering with my personal living. The first night went, I was watching Star Trek (“Space, the final frontier, these are the voyagers bla bla bla and all that jazz”) when my alarm went off, I left it and waited until somebody would come up but I locked my bedroom door.
TL*: “David would you reset your alarm” D* “No” TL: “Can you unlock you door so I can reset your alarm?” D: “No” TL: “If you don’t come and unlock you’re door I can just unlock it myself” D: “Ok”
Team leader goes to find her copy of the key. Comes back…
TL: “David are you going to unlock the door?” D: “No” TL: “Ok I’m going to have to come in then” D: “Ok”
Hold the lock from the back…
TL: “DAVID THIS MAY ALL BE JUST A GAME TO YOU BUT I HAD TO COME FROM DOING TWO PEOPLES MEDS TO DO THIS, NNNGH!” 😤
Oh believe me this is no game, if this is the only way to get attention from wherever than this is what I’ll do. *TL- Team Leader *D- David (of course 😉)
More of this story to come…
0 notes
Text
- Brief overview of my Life 😊
Very early in my life, when I was two I was diagnosed with epilepsy. For you guys who haven’t heard of this condition or don’t know what it is, it is a condition that effects the brain in that at different times in the brain there can be build up of electricity effecting it that I could have seizures or what some people call phits. So every so often in my life I may have these seizures and because of this I have to live in a supported living block of flats. In these flats there are very few people on my level of understanding, maybe four or five now and then quite a lot who have a vast range of learning disabilities. These guys are quite like a very, VERY individual family to me as in I love them and they also annoy the heck out of me. These flats can sometimes be a nice place to live but then also, depending on the staff that are working each day, it can be the toughest place to live. Living in this sort of environment, you’re bound to be talked down at, not listened to, disrespected all that jazz and you just have to find your best way of coping with it all. My way I’ve decided will to write it down for you guys to read and then if you take notice good for you, if you don’t that also doesn’t matter. 😉
My best friend is my flat mate Hayley, Hayleykins, Haywing (Hayley and Nightwing, DC). She has epilepsy aswell and she’s my friend who is always there if I need a someone to lean on for the stress we get put through here. I also have two great friends who live down the corridor from me. Brad, Bradley, Bradice (bradley and Gladice) and Vince, Vinnie, Vincenteta (???). The three of these are my group of friends. They help me cope with the struggle of, what shall we call the flats? Survival Of The Fittest, Court? (SOTF Court). Ooh I think that’s rather catchy 😂
Anyway I’m going to leave this here for now but the more you read the more ill reveal about what it’s like to live at SOTF Court. Hope to see you soon Peace out.
0 notes