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me when the chronic pain is chronic and painful:

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there's something so raw and soul crushing about spending your late childhood+teen years suicidal then growing up and actually wanting to live, after an ungodly effort, only to see your health deteriorate because of chronic illness.
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Can we please not shame chronically ill and disabled people for canceling plans at the last minute?
Trust me, we would love to “just do the thing”. Sometimes, we think we can do the thing until it’s time to do the thing, and then we realize that we can’t actually do the thing. And that’s OK.
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The undiagnosed chronic illness cycle
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i’ve spent the last ten minutes scrolling the iih tag in awe because i’m not fucking alone
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Living with IIH (Idiopathic Intracranial Hypertension) presents unique challenges that significantly impact my daily life. Reflecting on my journey with this condition, I've reached a point where it's becoming increasingly difficult to ignore the emotional toll it takes.
During my recent eye examination, the doctor offered encouraging words, yet underscored the undeniable reality of how this disease pervades every aspect of my life. Despite these challenges, I remain steadfast in my determination to embrace life to its fullest extent.
Today's excursion to the shops with my boyfriend, despite my overwhelming desire to rest at home, serves as a testament to my commitment to cherish every moment. While uncertainty looms regarding the prospect of a cure, I hold onto hope for a future where I can regain a semblance of normalcy.
I refuse to allow IIH to dictate my happiness or rob me of life's joys any longer. Moving forward, I am resolved to seize each day with gratitude and resilience, regardless of the obstacles that may lie ahead.
A side not is that I let AI make me sound like a robot instead of my own words LMAOOOOOOOO
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