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Fighting against trigeminal neuralgia
Fighting for every smile
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My journey to healing Trigeminal Neuralgia
I am going to go back to 2016. I'm sitting at my kitchen table when ZAP I feel an intense electric jolt go through the left side of my face. I had no idea what it was so I just continued on with my day forgetting it even happened, until the next day when it happened again and continued to happen. The pain getting consistently worse as time went by. I was scared! I had no idea what was happening to me.
The next thing I knew the Days had turned into months that I dealt with the excruciating, stabbing, electrocuting pain. It really feels like a big blur to me now when I look back. Maybe because I was drugged up and practically living in the bath tub or Maybe I'm subconsciously blocking it out. I don't know but I do remember the pain and the multiple times that I went to the ER begging for some pain relief and to know what was going on with me. They did blood tests and eventually an MRI which came back negative for MS which they thought could possibly be causing it and told me that everything looked good.
During this time I'm sitting on the hospital bed in agony barely able to talk. Finally a doctor came in and told me that they're pretty sure I have Trigeminal Neuralgia. Ummm what??? And that's exactly how I left feeling too. He hardly told me anything about it except for it's caused by nerves, to go see a neurologist and not to look it up online. Oh and they gave me something for the pain which I'm pretty sure was gabapentin. I got switched from medication to medication so it's hard to remember. Gabapentin,tegretol, and carbamazepine which all had horrible side effects!
When I got home the first thing I did was look it up because hello and wow did I have a mental breakdown. I called my love and bawled my eyes out due to the fact that all over the internet it says it's incurable. That I would have this pain for the rest of my life!! That it's called "the suicide disease" that it's the worst pain known to man and the only way to treat it is drugs and surgery that could possibly go wrong or not even work!!!! Talk about panic attack! He tried to calm me down and tell me that he's sure it's not as bad as I thought but oh it was.
What could I do though? Nothing so I took the medication hoping and praying it would help and On top of having horrendous pain in my face and head I was also completely out of it from the drugs. I was anxious, moody, disconnected, depressed, foggy, exhausted and not myself at all! Oh and not to mention putting on weight another lovely side effect.
At that point I started doing my own research and found topiramate (topomax) which I read made you lose weight and that people took it to help depression and some took it for trigeminal neuralgia. I figured I hit the jackpot. It did start working and eventually the attacks went away. My neurologist did fail to mention what happens when you get off of one drug and replace it with another. It made me really sick and out of it. I wish I had been forewarned so I at least knew what was happening to me.
Anyways even after the TN went away I kept taking the topomax because I thought that if I stopped I would get it back. In fact I took it for a whole year and was still taking it when the trigeminal neuralgia came back again!
At the time it came back I was going through the most traumatic experience of my entire life and was extremely heart broken and depressed so I started wondering if all the emotional pain and stress caused it to come back. I remembered not being in the best place emotionally when I first got TN even though having the love of my life pass away far transcended any pain I've ever experienced. I wondered if it was linked to stress and heartache.
As I moved back into the tub to keep warm, avoiding the cold and everything else that would trigger attacks I researched and researched. It got to the point that I couldn't talk, eat, sleep, or barely even move around. My mom had to take care of my 4 year old. I couldn't hold her or answer her when she called for her mommy. It broke my heart and was hard on her too.
I came up pretty much empty handed with the research. I found one woman that said she thought it was weight related. She would get it back only when she wasn't being as healthy and gained weight but besides that all I could find was people dealing with TN laying around in agony and taking multiple drugs. It looked hopeless. That's actually the reason I'm writing this because I hope that it reaches as many people with TN as possible so that I can give you all some hope and another route besides scary drugs and surgery
Anyways as I lay in the bath tub I was doing some internet surfing being the only thing I really could do. When I lost connection... for the entire day. I was frustrated and bored so I figured I would read a book. When my nerves calmed down for a minute I went to pick a book. I grabbed one that I had been wanting to read for a while but then I felt like I heard my loves voice in my head saying "no baby put that down and grab the healing code You can read that later but you need this one now" so of course I listened to him.
My aunt gave me the healing code for my birthday the year before and said that when she was getting another gift for someone else she had a strong feeling to get it for me and save it for my birthday but I had never even opened it up until then.
The healing code is about a doctor with a strong faith that tried for years to heal his wife until one day when he was given a vision of these certain hand movements held over different parts of your head and neck and a certain prayer that is supposed to heal your emotional wounds which in turn heal your physical illnesses. It's the idea that anything painful emotionally that has ever happened to you even as a child will come out in some sort of physical pain if not dealt with. Which I do believe in.
I was desperate at that point so I started doing the healing codes multiple times a day every day. I had some really enlightening moments and felt like it was helping to sort out my emotions about everything going on. When I first started doing the codes my attacks got worst for the first couple days which he says in his book will happen at first as part of the healing process and then the attacks started getting less and less frequent and didn't last as long until they went away all together. I was so thankful for the healing codes. I was so appreciate of all the little things I could do again that we all take for granted like brushing my teeth and drinking water etc.
I kept taking the topomax again due to the fear that if I stopped it would come back and before the healing codes I actually upped my dose to help with the pain. It didn't help but now I was on an even higher dosage which was not good at all. Topomax was not the miracle drug that I thought it was. It caused lots of unwanted side effects. For one I felt completely stupid. Over time I realized that I couldn't even communicate. My brain was completely fogged and I would lose my train of thought mid sentence. My family noticed that I was really different too. I was depressed and not myself at all. Apparently people call topomax dopomax because of those negative effects.
I was really disappointed to read about people all over the place taking it for weight loss and depression when it has such negative side effects. It's like everyone is on some sort of ridiculous medication that's been prescribed to them when there are so many healthy alternatives without all the nasty side effects. Just because a doctor or a therapist prescribed it doesn't mean it's safe!
Eventually after about two and a half years of dopomax I was doing an angel card reading and heard his voice again telling me it's time to get off of my medication. So again I listened. I was scared that I would get the TN back but I took my chances and weaned myself off of it. The only thing that happened was that I became me again. My family mentioned that I sounded, looked, and laughed like myself again. Isn't that strange that it can even change your laugh? Imagine what it does inside your body? Medications are not our friends.
After that I was drinking a lot and eating whatever I wanted I will be honest. It wasn't good but I was trying to drown out the pain of losing my other half. That continued for a while until my family and I heard about the medical medium and we're told to get his books. I bought the medical medium by Anthony William and gave it to my mom as a gift as she herself was going through a lot due to her breast implants. She read it and long story short got me and my dad on board.
Anthony talks about how our bodies can heal themselves if we give them lots of fruits, vegetables, and greens. He also says everyone should drink celery juice upon waking up and take his detox smoothie with wild blueberries, spirulina, bananas, cilantro, dulce and orange juice to remove the metals from our bodies. He has been guided by spirit ever since he was little and has saved so many lives. He has a 28 day fruits and vegetable cleanse to heal your body and give it a break from everything else we consume so I started the cleanse.
He says to eat raw fruits and vegetables but I did some cooked some raw. About a week into it I got my first small attack from the TN and then of course they progressed into something worse. I panicked. I thought I'd have to get on some horrible medication again or get the surgery even though I'd read that a lot of people's surgeries didn't work.
Then as I was surfing the net once again back in the bath tub I decided to type the medical medium trigeminal neuralgia into google and lo and behold I found a podcast completely dedicated to the cause and cure of trigeminal neuralgia... I cried listening to it. It filled me with light and hope just to hear what is actually causing This pain. That it's a version of the shingles virus. A virus that CAN be healed!! If we don't feed the virus what it wants like eggs, dairy, gluten, MSG and fats it will go away!
Also if we take supplements to cure it like B12, zinc, loposomal vitamin C, lysine, and many more we can fight it. So I kept on doing the cleanse and taking the vitamins and without any medication at all my attacks were better than they were the last two times I had TN. It's only continued to get better and better.
As of right now I'm 28 days into the cleanse and I get anywhere from 2-6 attacks throughout the whole day and I'm able to sleep through the night again. Also the attacks are short jolts. They're still painful and I can't wait until they're gone but my attacks before would last anywhere from 5-30 minutes straight all day long and they were agonizingly painful!
I'm so extremely thankful for Anthony William and spirit for what they have done for me and so many others!! I urge everyone who has this horrendous illness to get Anthony's book the medical medium or just look it up to find the cleanse and listen to his podcast about TN. In fact I urge anyone that's dealing with any illness or that just wants to become more healthy to get his books. He has another one about cleansing the liver and healing the thyroid which I have not yet read. All I know is that it truly works.
As of Now I'm going to do a week of raw fruits and vegetables with no fats meaning no avocado, nuts, or oils. I'm hoping it will get rid of this once and for all. If it works then I'm going to continue to eat a lot of fruits, veggies, and greens but also slowly start incorporating things into my diet like beans and gluten free grains and eventually I'll allow myself to splurge and have a piece of pizza every now and then because who wants to miss out on that for the rest of their lives!?
I do now know that everything we put in our bodies is extremely important so I won't allow myself to abuse my body and get to the unhealthy point that I got to in the past. Our bodies fight for us everyday and we need to fight for them!
If you guys would like to hear what happens with my healing journey let me know and I will update you! Thank you for reading my story I hope it can help all of you out there struggling with this life altering virus!
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