marsholirs

[marsholirs]

Tombstone.

[marsholirs]

New 24-minute video from MEAction & Patient-Led Research Collaborative "Understanding Post-Exertional Malaise - Dr Brayden Yellman"

I thought this was very good. Great to have a doctor who gets it

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i drew her so she’s literally my wife now thats how it works

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falling in love with this oil paint brush currently

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When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”

I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.

Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”

[marsholirs]

As a person who spends a lot of time lying down and rarely does any kind of activities, I come off as someone who's taking a lot of 'me' time, or a lot of 'resting' time. However I have to assert that any time I spend recovering from an activity is not 'me time' or 'resting time', it's the time that is stolen from me. I can't do anything with this time. I am in pain, I can't move, my activities are limited to 'hopelessly distracting myself so that I do not experience the full horror of what's going on in my body right now'. I don't even get to have 'me time' because of how much of the time is stolen from me.

[marsholirs]

i remember being ten years old and wishing to die rather than experience the pain i was in yet still my parents and my doctors didn’t believe me. sometimes it just hits me. that wasn’t a normal experience for a ten year old, was it?

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This machine kills AI

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in paris you gotta sleep with one eye open

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hey. guess who's up for preorders

[marsholirs]

Free Palestine 🍉 And #StrikeForGaza today, April 15th!

[marsholirs]

did a sketch in a cafe and then went crazy with gradient maps cos i love colours

[marsholirs]

chess inspired fashion

[marsholirs]

yknow i never noticed the sheer rareness of images having ids or alt text on this website until i started adding alt text to my art (and trying to remember to add it to any images i post in general, especially text screenshots) and that makes me kinda sad