#...misunderstood condition and furthering misconceptions that actively kill people. please delete your addition or edit it.
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snapcracklepop-myjoints · 11 months ago
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(I really dont have the energy to address the other incorrect comments made throughout this post; only a very specific part of this last comment -- specifically the misinformation about CAH -- so please nobody try to take me to task for ignoring the other stuff. I know. I am aware. I cannot deal with it right now.)
(I also know this is badly written and confusing and leaves out a lot of important info, the language is not perfect and it may come across as rude and I am sorry but this is the best I can do. There are other people with the same variation and condition as me (and other intersex variations that were misrepresented here) that are more equipped to talk about this in depth within a critical intersex context than I am, however the main point of what I wrote is a very basic correcting of medical misinformation, not providing intersex education. This is a very stressful post for me personally so bear with me.)
I understand that you are trying to speak up for us, and I want you to know that I recognise that and also that I really respect you as a person when i say this: I would really recommend against trying to speak for us in the future.
You said you did extensive research, however even preliminary web search on "congenital adrenal hyperplasia" makes very clear that it is associated with medical conditions that can be life threatening both due to salt wasting and adrenal insufficiency. I don't know what research you did that led you to draw the conclusions you did, but i would highly recommend doing your research with guidance from intersex people with the intersex variations in question in the future.
Dismissing salt wasting as just "needing to eat more salt" is harmful. It kills people. Entirely ignoring adrenal insufficiency is harmful. It kills people.
Furthermore, it is exceedingly common for people with adrenal insufficiency to not receive life saving medical care, or to receive very delayed care, because of lack of awareness and understanding of it. Going into adrenal crisis increases your risk of having a repeat incident in the future, and increases your likelihood of death in the event of a repeat incident. Even within circles of other people who have adrenal insufficiency (and doctors who treat it) awareness of AI linked to CAH (and other causes for that matter) is dogshit, even on the most basic of topics (such as the tendency towards using "Addison's" as a catchall term for AI despite the fact that Addison's refers only to the primary autoimmune version of AI).
Yes the medicalisation of intersex conditions is a problem but the solution is not to deny the existence of serious medical conditions linked to intersex variations --- accidentally or otherwise. My CAH is an intersex variation, not a deadly condition. My adrenal insufficiency is a deadly condition, not an intersex variation. And, at the same time, the fact that my CAH and AI are linked has in fact impacted how I am treated with regards to both, by medical professionals, societally, and otherwise. When you have adrenal insufficiency due to CAH you are at a crossroads of marginalisation because you being impacted simultaneously by intersexism and ableism.
I originally was going to respond to the reblog you responded to, and explain why they were wrong as someone with one of the intersex variations linked to life threatening conditions that they are weaponising. Instead I am now having to spend my time correcting serious misinformation.
I am not trying to be a bitch or rip you a new one I am just trying to help you and everyone else understand why this is really dangerous information and that this is why you really really need to let us speak for ourselves, even if you think you are defending us, even if you think you have done lots of research.
since people are talking about Imane Khelif, some reminders for discussing intersex issues: "Disorders of sex development" or "DSD" is an intersexist term that contributes to medical violence and social alienation. The correct word is "intersex," a neutral term for the characteristics that the term "DSD" others and pathologizes.
You can be intersex and cis. You can be intersex and trans. A lot of intersex people have more complicated relationships to those concepts/terms. Being cis or trans doesn't make someone more or less intersex.
Gender testing in women's sports is both transmisogynistic and intersexist. In practice it usually impacts intersex cis women because trans women are already disqualified by their social histories. Intersex cis athletes subjected to abuse and discrimination due to gender testing results are victims of intersexism, not "misdirected" or "mistaken" transmisogyny. Intersexism, transmisogyny, and misogynoir all overlap in many ways due to the intertwined histories of sex, gender, and race categories.
"Proof" that an intersex cis woman is not a trans woman (i.e. that she was AFAB'd) will not stop TERFs from attacking her, because TERFs also do not view intersex cis women as real women (case in point).
No one's private medical info should be reported on the news, but when an athlete is outed as intersex in this way, trying to defend their honor by claiming they're not really intersex only reinforces intersexism. Arguing over what kind of intersex variation someone has (e.g. hormonal vs. chromosomal) and whether it "counts" is intersexist and also weird. Leave us alone!
anyway, congrats to Imane on her win, it's not her fault Angela Carini is a bigoted crybaby coward
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