#anyway . this was a rendering exercise that got out of hand mostly

[bethrnoora]

little miss hater

alt without glitch under the cut

[shinybluething]

Anecdata: I have a big NO FERAHEME flag on my medical records, but not because of anaphylaxis. So anaphylaxis is not the only possible complication.

I had feraheme trigger the Big Flare of Psoriatic Arthritis that rendered me completely but thankfully temporarily disabled and thus finally got my random aches and pains properly associated with my psoriasis and thus got both properly diagnosed and treated. And I mean finally referred to a rheum, so I got more than "here's an ineffective cream, use tar soap" (for my 80% coverage guttate-turned-plaque psoriasis that had been ongoing and worsening for four years) and "exercise more, take some ibuprofen sometimes." The first infusion left me feeling like I'd had the Worst Flu Ever and the second one basically made all my joints swell up and not move. I told the nurses I'd had the Bad Flu feeling before they started the second infusion and they started it anyway, BTW, because it went away the first time. Within 24 hours of infusion 2, I couldn't move my hands or open my mouth, or stand up on my own, so Spouse had to dress and wash me, lift me out of chairs, cut up my food, etc. And this time it didn't go away. Also there was a lot of involuntary screaming for about six months until the meds started to really work. There's still enough residual connective tissue damage in my left shoulder (the IV was in the left arm) that my BP measures differently from one arm to the other due to external pressure on the vessels, four years on. Also it did fuck all for my iron levels, because I hadn't hit menopause yet, and my anemia was caused primarily by the kind of menstrual flow that you're supposed to "go to the ER' for (which will get you laughed at, if you've ever tried to). I hit menopause (probably partially due to oral methotrexate for the arthritis accelerating the already happening hormonal changes) and ... the anemia went away.

Mostly I have had shrugging from medical professionals about this. "Autoimmune conditions are weird."

Have your doctors mentioned iv iron supplements? I have anemia, and since i couldn’t tolerate any of the oral supplements either they eventually did it IV. If you already know its an option and it wont work for whatever reason please disregard

That’s what they’re sending me to hematology for. In the meantime I’ve to do my best with oral supplements if I can.