#chronically able
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iâm gonna hold your hand with a glove on when i say this
when disabled/chronically ill people tell you they canât do something, then that is not your cue to tell them that they can actually or that theyâll always find an excuse if theyâre looking for one.
when a disabled/chronically ill person says they canât do something, sometimes that doesnât mean itâs outside the realm of possibility, sometimes it means if they (attempted to) do that, they will seriously hurt themselves.
when a disabled/chronically ill person says they canât do something, sometimes itâs preventative care, and they refuse to do that thing to prevent a flare up from happening/their symptoms getting worse in the first place.
disabled/chronically ill people are not âlooking for excusesâ, they are giving you reasons why. something they donât even have to do! so maybe just accept the reasons they give you.
#istg anyone whining in the comments might just get blocked#(whining about disabled/chronically ill people explaining why they canât do certain things)#iâm tired of able bodied people being assholes about this stuff#and before you come into the comments or my asks maybe ask yourself why this bothers you That much#okay? okay.#chronic disability#chronic illness#chronically ill#chronicpain#chronic disease#disabled#chronic fatigue#chronic pain#disability#disabilties
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'being disabled is a full-time job' actually with most full-time jobs you get evenings and weekends off, plus holiday time and potentially other benefits like healthcare and dental. we don't get to clock off from being disabled nor do we reap any benefits, material, social, or otherwise. hope this helps
#appreciate the sentiment but the analogy just does not work for me. if anything we do ten times more labour than the average able-bodied#employed person managing our bodyminds appointments etc. who said that#.txt#spoonie#chronic pain#chronic illness#disability
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#poll#unemployed forever includes like not being able to work from chronic conditions#because I didnt want it to be like 'cant get a job' unemployed and confuse people
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You are well within your right to be angry about the help you didn't get and should have gotten.
You are well within your right to be angry about having your needs neglected.
You are well within your right to be angry.
#this post is mainly about physical disabilities and needs not being met#things like medical neglect or refusal of services for whatever reason#able bodied ppl with non-physical disabilities are allowed to like and reblog and relate and stuff too ofc!#But I made this post in part for myself#to reassure myself that it's ok that I never received help for my chronic pain as a child despite it being bad#cripple punk#cpunk#cripplepunk#physical disability#actually disabled#physically disabled#angry cripple
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Black History Month Isn't Over Just Yet, Help Me Get a Wheelchair!!!
I am a Black Chronically ill/Disabled Lesbian. I have been a mobility aid user for over a decade, and with my most recent illness flare and health set back, I desperately need a wheelchair. I have put off getting a wheelchair for years but my health is to a point where I need a wheelchair to function outside the house or I cant leave my house at all. Being stuck inside my house has done a toll on my mentally, and has prevented me from having consistent meaningful employment.
I have been saving for a wheelchair but I am nowhere close enough to buy the wheelchair I need, new adaptive tech, and the 2 ramps I need for my home. I am hoping to cr*wdfund for just the price of the chair not the ramps or adaptive tech. I need 1,120 to cover the cost of the chair.
CA: $sleepyhen
VN: wildwotko
DM: for PayPl
If you can help I would deeply appreciate it! Getting this chair would mean that I can leave my home safely, regain meaningful employment and see some of my aging elders again!
#black history#black history month#womens history month#chronic illness#chronic pain#heds#pots#black lesbian#idk how to tag stuff anymore#please dont give me unsolicited advice on my health please#i just wanna be able to leave my house as I cant right now and that is making life 100x harder than it needs to be
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everybody supports disabled people until weâre inconveniencing them.
everybody supports people with chronic pain conditions until we have to cancel plans because weâre in immobilising pain.
everybody supports people with brain damage until we need extra support, until we have memory issues and forget basic information, until we have immobilising migraines.
everybody supports disabled people until we are disabled.
#cripple punk#cpunk#cripplepunk#actually disabled#brain damage#chronic pain#physically disabled#abled ok to rb
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Chronic Sonic pt 12
POV ur bestie comes back from like three to five years abroad
1. After that delightful experience in pt 10, Sonic is a lot less quick to drop his inhibitors or actively seek out the emeralds. Since the only thing he really used to do in his free time was run around adventuring and doing battle and he canât do that like he used to with his inhibitors preventing him from reaching his full speed (Tails is working on it) so thereâs not much else for him to do. Sure he could do the routine Tails drew up for him, but doing little exercises feels pretty pointless in the face of everything. (Even if they really do help when done consistently.)
2. Amyâs back! What was she doing? I dunno, spreading joy and love and enhappifying the world, your guess is as good as mine. Tails actually called her to come visit. Sonic hasnât seen her for a while and sheâs the one person that wasnât around while this whole spiral happened (so he doesnât subconsciously associate her with any of it.) Theyâve kept her mostly up to speed via texting and some occasional short video calls. (Oh and Sonic and Amy are platonic here. Cotton-Candy Duo. Besties!)
3. Shadow helps Tails out in his workshop sometimes.
#KNOX ART (me)#Chronic Sonic#Sonic the Hedgehog#Miles Tails Prower#Shadow the Hedgehog#Amy Rose#Cotton-candy duo#i didnât get emotional looking at the snuggle pile this morning wdymâ#man i dunno how some people do fully coloured comics#just doing the impression of colours on the characters and speech bubbles takes me OUT#shadow is so fine heâs so fine#lil bit of silly goofy hours! amongst all the yeouch! but worry not weâll be back to your regularly scheduled ouch in no time#i always spend so much time writing out these blurbs like way too much time Hglkjdsf#when i said aroace sonic is my general overall hc for him that will be in everything i am indeed serious about that HGLSDJKF#Iâve drawn so much the last week but everything is out of orderHGKLJSDF#literally drawing panels from comics that come after this a week ago on the same layer as some of these#you would not be able to decipher my canvas i can barely do thatâHGJKLSFD#aNYWAY ENOUGH CHIT-CHAT TIME TO POST N RUN MAKE SURE TO STRETCH AND HYDRATE YâALL RAAAAAAAAAAA
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You'll see a post about how being disabled is hard and you don't get any aesthetic disability aids, and you'll think "Oh yeah, it sucks, people stare more and get uncomfy because your problems haven't been bedazzled to their liking"
But then the very first tag will be some shit like "fucking hate people with hEDS over this"
And suddenly, you aren't relating or sympathizing anymore, because this is the third time this week that someone in the cripple punk tag has blamed your diagnosis for ableism, without seeming to care that saying people with EDS are less inconvenienced because they have "the pretty disorders" is really fucking ableist.
And then you start to wonder if cripple punks actually think physically disabled people are a community, or if they think they should be able to handpick who qualifies as being disabled enough.
#I have EDS#I do not get âprettyâ aids#Mine are plain braces that I have to struggle to put on as my joint issues get worse and I lose my lung capacity#My quality of life has utterly disintegrated and no meds or pt helps and I can't afford the wheelchair I need#Why is it that one tiktoker will make a video about cute stickers on their rollator#And suddenly all people with hEDS are just annoying ableds who have a little bit of pain??#cripple punk#disabled#disabilities#chronic pain#chronic illness#ehlers danlos#ehlers danlos syndrome#cripple posting#actually disabled
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NEW/NORMAL : a comic about becoming disabled in your twenties
My name is Fraizer, and I'm the artist behind forystr. I have Functional Neurological Disorder.
#i havent been able to sleep all night because of pain. its almost four am. so please have this.#disability#disabled artist#disabled comic#functional neurological disorder#fnd#chronic illness#disability awareness
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this disability pride month you can help disabled people by continuing to mask up, using appropriate masks (KN95 or N95) and appropriate masking technique (wash your hands before and after putting it on, don't touch the front, make sure there's no gaping) đ«§
#rambles#this is aimed at those who can both afford to mask / have resources available#& are physically able to#I personally am at risk while masking but still aim to as much as possible#because i am. equally at risk to another group of things when not masking !#yay me#anyway#disability posting#disabled#disability#chronically ill#chronic illness#invisible disability#invisible illness#dynamic disability#neurodivergent#masking#mask up#covid#long covid
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me as a disabled person constantly trying to maintain my sense of self love while also battling a constant sense of frustration and anger over how my body works
#the amount of times i switch between the two daily is INSANE#wow iâm so lucky i am able to work a job#wow how fucking pathetic is it that working makes me so tired#im so beautiful and iâve come so far#but everything is pain and nothing works#just constantly going iâm weak no im strong no im weak no im strong#back and forth#over and over and over again#itâs a worthy cause#chronic fatigue#chronic illness#chronic pain#chronically ill#hypermobile ehlers danlos#spoonie#ehlers danlos syndrome#heds#hypermobile eds#probably heds#disabled#invisible disability
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if upon being told about someones illness/condition, your first thought is to say âhave you tried X?â i want you to step back for a moment and think to yourself âif i thought of X after hearing about this condition for the very first time, the person who has this condition very likely has thought of this and possibly tried it alreadyâ
we are tired of constantly being told to try the same things by people who didnt know our condition existed five minutes ago.
you dont need to offer any solutions or try to fix us. i know it might seem like a polite thing to do or that it shows you care, there are other ways to show us you care.
#thought of saying something about being told âget well soonâ too but idk if im ready for that possible backlash lol#my mom (able bodied) gets really mad at me when i say this kind of stuff is annoying#so i just assume all able bodied people would react that way#actually disabled#disabled#disability pride month#disabled pride month#disability pride#disabled pride#physically disabled#chronically ill#chronic illness#actually chronically ill#cripple punk#cripplepunk#cpunk
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i don't think that people really understand how mentally fucking draining it is to live with chronic illness. like, people talk about it a lot, sure. but i feel like it is constantly kind of a shrugged off thing that people don't understand the weight off.
how exhausting it is to have your body not be able to do things, while your brain carries on as if it can.
how exhausting and painful it is to try to do things and not fully be accommodated for your needs.
how exhausting goddamn brain fog is. it gets me every day it feels like and i'm still surprised.
how exhausting and frustrating it is to be ill and to think you're having a good day, but SURPRISE, here's a flare, or a bunch of symptoms, or whatever, and now you're in pain and can't do anything. you can't make the pain stop. you just have to feel it.
how exhausting it is to know that nothing will take the pain away. that you literally just have to live with it. and that people won't get it. they won't understand that you are constantly in pain, all the time, and just have to act like you aren't.
how exhausting it is to be exhausted. the fatigue is awful. it just catches me and i can't do anything. i can't move or speak or anything. i just have to exist in it.
it's so annoying and exhausting to see my body give up and to know that i can't really do anything to stop it or cure it. it's so exhausting. it makes me want to cry constantly. i feel so tired and worn down and angry and depressed.
and yet, i have to continue on, like a normal functioning member of society. i have people look at me like an imposition. i see people talk down on chronically ill or disabled people online all the time and complain about us ruining society or taking away resources or whatever the fuck bullshit.
and it makes me feel so shitty that society perceives my only worth as my physical ability to contribute to a fucked up system.
and yet, we carry on, day after day, in hopes it will get better.
#chronic pain#chronic illness posts#chronic illness#chronic fatigue#chronically ill#fibromyalgia#pots#chronic migraines#gastro issues#etc#the list goes on#i'm so tired of being in pain#and having illnesses that we can't find the cause of#and being so fatigued by it all#i have a colleague who noticed me turn my big lights off to turn on my lamp and they went âoh how are you? migraine day?â and i wanted cry#they remembered. that i do that. they also asked how i felt yesterday. if it was a good day or not.#so i know people are out there who care and genuinely want to help us#but it is very isolating to be chronically ill and not be able to make people understand#and now i park in handicap spots permanently and worry people will come yell at me that i'm not disabled enough since you can't see it#and i hate that#god#it's so exhausting yall.#ill be okay. just needed a vent.#sun rants#sun thoughts#sun notes
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Living with a disability, especially a progressive or dynamic one is so fucking stressful. I don't know whether I'll be able to do things I can do now in a couple of years or even a couple of months. Maybe today I'm up and dancing but tomorrow I can barely leave my bed. I'm already grieving the things I know I won't be able to do in the future and it's so, so so so hard. The worst part is that there's nothing you can do but try to enjoy life right now and hope you can keep doing what you love
#not to vent on main but this week has been hard for me#at least i have anime#and yall my friends and irl moots have been very supportive#ig my fam is supportive in their own way#seeing another specialist in a couple weeks hopefully we can make some progress#still worried i won't be able to perform if I don't have more accommodations#vent#vent post#disability#disabled#heds#potsie#pots#mcas#ehlers danlos syndrome#hypermobile ehlers danlos#the holy trinity of chronic illnesses#chronically ill#chronic illness#chronic pain#chronic fatigue
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"Hi, I bought your book and read it in two hours!" remains one of the most flattering and terrifying messages you can send me.
Who are you people? What old god did you sell your soul to that you can read that fast? That's 500 pages! I mean, good job, but holy shit.
#I haven't been able to read like that since I was a teenager#maybe it's the ADHD burnout#maybe it's the chronic depression#idk#I am envious#i want what they have
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#izuku midoriya#bakugo katuski#shoto todoroki#tdbkdk#post canon#they are husbands and they have a cat#ive been thinking about. chronic pain izuku#and then shoto learning to massage properly to be able to help him ohhhhh#convient quirk for husband duties or something#this is kinda a sequel to the last tdbkdk draw#because now katsuki is screaming at the mail that oizuku and shoto opened#chainsaw cameow#the black cat is their last and final child (until shoto shows up with another one)#or maybe izuku this time with a whole ass dog wowwwww#katsuki says fuck no but we all know how that turned out
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