#I do not think it's cerebral salt wasting syndrome | Explore Tumblr Posts and Blogs

tj-crochets · 10 months

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I gotta say on the one hand it's kind of frustrating that I can't get diagnosis or treatment for my symptoms disease*, and on the other hand it's more than a little funny that the medication that just so happens to treat my symptoms disease** is also the medication given to me by doctors for asthma or allergy flareups. Also, the medication that's been like "doesn't fix it completely but sure as hell helps a LOT" was not actually prescribed for my endocrine issue! It was prescribed for salt wasting syndrome, a thing that is not actually a diagnosis (because two opposite things are called that)*** I am not a medical professional do not take any of this as medical advice, I'm just venting

*aka whatever is wrong with my endocrine system. I don't have an official diagnosis, just many different specialists going "yeah that's...not supposed to happen. Sounds like something is wrong with your endocrine system and it might be autoimmune" **corticosteroids ***there are two things that can be called salt wasting syndrome: cerebral salt wasting syndrome, and SIADH. From what I've heard from various doctors, the treatment for the two things are pretty much the complete opposite, even though the symptoms present the same.

#the person behind the yarn #medical mention #medication mention #as it was explained to me: SIADH is when your body keeps too much water and because of that it lowers your salt #cerebral salt wasting syndrome is when your body gets rid of too much salt and because of that it lowers your water #SIADH you restrict fluid intake #cerebral salt wasting syndrome you add a LOT more salt and drink a LOT of water #and sometimes take fludrocortisone (the salt levels go up medication)#but! cerebral salt wasting syndrome usually lasts a few weeks and can sometimes last a few months #and does not require long term treatment #I have had symptoms for more than ten years and have been on fludrocortisone for nearly five years #I do not think it's cerebral salt wasting syndrome #all this is brought to you by: I had a bad asthma flare up and was put on short term corticosteroids #and I have no symptoms. None. My breathing is fine my blood pressure is fine my heart rate is in the 70s!!!#I don't have hypoglycemia! I'm not dizzy when I stand up! even my darn muscle spasms have stopped!!#I didn't get enough sleep last night and I'm not sick because of it!

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