#aaand this one's also just bieng like... moved over from wordpress

[tiny-talks-big-tales]

Cyborg upgrades on the way (Original post date: 17.05.24)

In the last update post I described a lot of stuff that’s missing or going wrong. Some of those about stuff I need, but don’t yet have. Stuff for augmenting my disabled body to function better. Like a cyborg! I’m leaning into the silly cyborg analogy because it’s funny and makes me feel good.

So here are 4 currently pending cyborg upgrades that I should be getting in the near-ish future. If nothing more goes wrong to halt these processes, that is.

Highly custom power wheelchair: We’re awaiting parts needed for one more day of fitting, which will probably happen the first week of June. After that, the final chair delivery ETA is end of June. Only 1.5 months from now! I’ve been without a wheelchair since November last year and absolutely cannot describe how much I look forward to finally having one again. The techs working with me on it are also really good, and it seems like I might get a wheelchair that’s comfortable to sit in!!!

Dedicated AAC device with eyegaze option: A very cool Grid Pad Eye 15″ along with an adjustable floor stand should be sent out to me next week, for an extended home trial. After summer we’ll have a meeting about how it worked for me, and if it worked well i can apply to keep it indefinitely. It will be mountable on my new wheelchair, too.

Hearing tests and hearing aid evaluation: Got 2 appointments coming up, one in the end of May and one in early June. So far looks like i might actually be able to make it to these! I will ask for hearing aids and what I’ve been told so far in the process sounds like it shouldn’t be too hard to get? The audiologist I saw last year said I need them, and lots of sources has said the threshold for getting hearing aids covered is pretty low. So I’m hopeful.

Breathing better machine: All the doctors so far agree it sounds like I need one, probably a BiPAP? And I’m finally being referred to a pulmonology clinic for testing and evaluating for that. I really hope it works out, my breathing is so poor it knocks me out multiple times a day. Breathing alone is responsible for a significant chunk of my bad quality of life. It’s because my chest is too weak to inhale/exhale properly, and thankfully this is a well known issue with my levels of bad body strength. It being well known has made it pretty easy to be believed about it, so far. And the usual cyborg upgrade solution to this problem is “make a machine shove the air in harder”, which is hilariously crude compared to most of modern medicine.

Cross all your fingers and toes with me that all of this works out well because I am McHeckin Strugglin' :c