#it's that time of year to start slathering myself in vaseline

[totally-not-deacon]

As if the desert air didn't already dry my skin out, gotta love COLD desert air.

My face hurts lol

[byjayr-blog]

Divine Femininity, Power of Her Aura - Ella.

I’ve been in the arts and music industry for about 4 years or so now, and inevitably saw how the rise of women in the creative industry hasn’t been getting as much attention, so I’ve decided to start a series based on women all around the world who are in the creative industry. I ask them to share their story with me (and you :) ) as to how they got to where they are today. The series will introduce a new divine woman once a month, as my first post to this series I’d like to introduce July’s divine woman my friend Ella.  

Ella is a Fashion Model currently based in Montreal, I’ve asked her to share her story with me, enjoy.

byjayr - Walk me through your story, and can you recount any specific pivotal moments (as much description as you can remember on where you were and how you were feeling)?

Ella - My story is a long one. I guess it’s not just one story at all, there’s a lot of events and challenges that have led me to where I am today. For this interview I’m going to specifically talk about the part of my story that concerns the journey I’ve been on regarding my physical appearance & health.

I’m not really sure how to start this, so I guess I’ll start at the baseline. I was a happy person. Grew up without financial burdens in a suburban white family. I kept honours in all of my classes at school, loved theatre, had very high muscle strength for my size from ballet & gymnastics, was super fit and healthy, conventionally attractive person. Everything changed in November of 2011 when I had to become a tough bag of knuckle and grit, being flown by air ambulance to Halifax for an extremely rare auto-immune disease (Rapidly Progressive Glomerulonephritis) that had given me stage 5 (end stage) kidney failure. I was a young body filled with dreams but my body disagreed with me. You lose a lot of trust in yourself when your own body turns on you.

For the first three months or so of my sickness I was undergoing chemotherapy as a method of trying to suppress and reboot my immune system in order to get my kidneys to work again. During this time, I had huge diet restrictions (basically all I could eat was white bread, gummy bears and water) and became extremely malnourished. On top of that, I was on high dose steroids with horrible side effects, making me extremely weak. All I know is that I spent the last hours of 2011 sitting on the floor, staring at my legs, being astonished by skinny they were. I was strangely proud of how undernourished and skeletal they were, I had always wished I had the will power to intentionally be that skinny- but that’s another story. Both physically and mentally my functions were imbecilic. That night I blacked out and received the a blood transfusion that saved my life, but gave me a rash from hell. Physically, you honestly couldn’t recognize me.

The transfusion helped me in gaining my strength back from the months of crawling on the ground like a helpless baby. Despite my new found dividend of health, everything I was going through at this point made me ugly. Chemotherapy had taken away my thick, luscious locks of strawberry blonde, it took away all of my fingernails and toenails. The rash that covered me head to toe was gruesome. My entire body kept shedding it’s skin like a snake, leaving behind fragile pink tender skin that wasn’t even ready to be exposed to air. I felt like an unflattering cardboard cutout of an ugly caricature of myself.

I stopped leaving the house for a solid chunk of my precious time.  Alone and sad, waiting for the day I could finally close my eyes for the last time. I don’t think I saw anyone but my family and my friend Mia for at least three months. No photos exist of this time. Evidently this made it hard for me to keep up with my then “boyfriend”. In fact, I remember him asking if I’d take him back when I recovered, but all I said was “I’m not getting better”, and proceeded to ignore him. I couldn’t accept that he had the nerve to still adore me, I was so painstakingly un-sexual. How dare he want to kiss me. I knew I was no longer the girl who was all the perfect fashion, and eventually I really started to mourn for myself. I would never be glamorous, I thought, but at this point I desperately sought being able to be something completely ordinary and unremarkable. Staring at my familiar, tragic limbs- I believed my cold pink hands would never again feel pretty.

One very vivid memory I always think about is when I left to go to the mall for the first time since being sick. I slathered on a coat of the makeup watching actual centimetre parcels of skin peel like a million meaty sunburns that oozed out makeup. I started peeling and picking off the scabs but the more I peeled the more I bled. I came to the conclusion that I would have to peel off my entire face if I wanted to even out the texture of it, so I gave up. I slathered it in vaseline to glue the drooping flakes back onto my face in attempts to mimmic a smoothness and then used half the bottle of foundation to even out the colour. I gazed at my reflection in the mirror for what felt like hours. My face was the texture of a golfball; but more uneven and porous. It wasn’t me. It wasn’t even close to me. Even my eyes had grown so passive, my lids that were once a flirting device batted still- but with their sparsely fallen out lashes they were so dim, so dead.

By late February of 2012, they realized my kidneys just weren’t going to start working from the chemotherapy. They stopped the chemo and I was put on peritoneal dialysis. In a nut shell, that means they put a tube in my belly, the tube connected to a machine every night at home and ran for 8-12 hours, depending on what the circumstances were. Essentially, dialysis does the work for your kidneys, but its more of a temporary thing, and as I found out the hard way, it has lots of complications. Years went by and I had plenty of brushes with death. Plenty more stories to be told about that. But this story is about the growing pains of my confidence & beauty, not my psychical pain.

It’s 2019 and it’s been five and a half years since I received my life saving kidney transplant. My mind has a weird complex built up around how I see myself in the mirror. I often find myself comparing myself to who I was before I ever got sick. I have this way of idealizing who I was before the sickness came, and I’m always seeing the world through rose coloured lenses when I think about my childhood. Sometimes I take a look at myself in the mirror and it’s really hard. I’m so quick to notice how frayed I am at the edges like I’m some kind of hand-me-down lace. Sometimes I just feel like all of my bones are too old for me, that they creak like a dusty house full of empty photo albums because I lost so much opportunity to fill them up with all the teenage  memories I had to miss out on. People tell my all of these experiences make me strong but for the most part I just find myself thinking they make me heavy. I had to grow up too fast and it hurts. It hurts but it’s going to be okay. The ocean is fucking heavy, mountains are fucking heavy, but they’re so perfect and beautiful and that’s all I should be seeing about myself too.

Today I feel secure, complex, and empowered. Maybe I won’t tomorrow, but taking things day by day is the best way I’ve learned to navigate through this world. There will always be people who take me for face value & my looks alone. It takes serious courage to love yourself in a world, in an infrastructure strategically set up to make people who have suffered trauma feel isolated, unworthy, and heavy. The caliber of experience I have endured has done nothing but expand my emotional intelligence, even if it isolates me. Our dominant culture is filled with violent myths. Break them.

J - What inspired you to do what you love?

E - The internet, contemporary situations, and people I surround myself with can be a source of inspiration/influence, but they can also be a huge form of intimidation/comparison. I used to try so hard to impress people but ultimately it just created huge insecurity blocks. Seeing other people competing for acceptance is toxic. I think it’s important to keep some things to yourself. Deconstruct the social construct of what “talent” is. You don’t have to cater to other people. The world doesn’t have to be this finite, limited space you think it is. Don’t let people devalue your creative ability and worth just because they don’t understand it. It’s their loss. My mom is the biggest loner I know and she inspires me every day. I think I work best alone and I get that from her. Maybe this sounds selfish to you but I think that more than anything, I inspire myself. My life has been one dark struggle after another and somehow I crawl my way out of it every time. I’m strong enough now to realize that being alone isn’t a bad thing at all. Isolation breeds individuality. Once I realized that, the world became a safer place for me.

J - What do you find yourself daydreaming about, and can you recount a specific daydream you’ve been having lately?

E - I want to be somewhere new. I’m so tired of Montreal. I dream of being somewhere  where absolutely nobody knows my name or where I’m from or how I got there. I don’t want to talk about myself. I want to learn about other people. To get inspired by them. Lately I’ve been working on music lots. It’s something I’m really passionate about and I can’t wait to share it with people who are open to listening. All I daydream about is being somewhere warm and somewhere exciting. The last few years have been really hard on me. I struggle with a lot of issues that I’m not going to delve into right now, but my biggest dream is just to be happy. To be able to look at myself and be proud, and to make my friends & family proud too. Life moves really fast and I’m making lots of changes. Things are changing for the better, I have to believe they will. <3

Thank you Ella for sharing your inspirational and moving story! <3

Come back next month to see August’s Divine Femininity. :) 

[goodskinday]

my longest relationship

below are a few short memories of what it was like growing up with eczema. 

i remember scouring through every aisle of an Asian grocery store, somewhere in Los Angeles with my mom and dad. i was five years old. we were searching for a green tin box with red lettering who’s contents were supposed to stop my itching and heal my irritated skin. it was a recommendation from mom’s friend of a friend, who said it worked for them.

we’re looking for bag balm, my mom asked the clerk. it was my first “miracle” medicine, a glimpse of hope in a long line of what would become dozens of balms, lotions, and creams. some successful and some not. as a child i learned to know the cycle of itching, scratching, bleeding, and scabbing long before i started my menstrual cycle as a teen.

—

like many young children, eczema often starts in the sweaty knee and elbow pits. emerging in the summertime when the sun is blazing, and when my skin would turn three shades browner from playing outside. a tiny patch would spread into large masses while scratching in my sleep, sitting in class, or eating my dinner. always scratching without realizing, like on autopilot. the itches would eventually invade behind my ears, on my eyelids, my fingers, and around my mouth.

at six years old, i remember gnawing on the remnants of my favorite fruit, a slimy mango seed that i could barely hold in my small hands without slipping. the fibers of the seed left the corners of my lips enflamed and tingly. over time, this would spread into a ring around my mouth, “a pink mustache and goatee” as some puti parent called it while i waited to be picked up from school. i was embarrassed, but how can you hide eczema on your face? i guess i’ll always look like this.

—

it wont spread if you don’t lick your lips! my dad would insist. but the constant need to subdue the dryness was like an addiction. by age seven, i had moved on from bag balm, to tiger balm, then finally to plain petroleum jelly, keeping it with me at all times, attached to my hip like my iphone is today. when my peers were collecting different flavors of lip smackers, my mouth was always slathered in simple vaseline.

this was start of my relationship to my body - always being aware of what it needed, like when to apply ointment, or how to run an aveeno bath by myself once a week. a constant rollercoaster of wondering if it will feel better or worse the next day. a dance of trial and error with homemade remedies and prescribed creams. knowing how my badly skin would react if i tasted the tempting flavors of sour green mango, crispy chicken skin, flakes of dried fish, oily bagoong, and generous teaspoons of patis. but after all these years, i now know that sometimes, the itch can be well worth it.