This is a blog where we post what disability can look and feel like. It's not always what you might expect. If you see anything of yours that you would like taken down, please ask.This is a side blog. I am also @batcoins.Tip jar: paypal.me/batcoins
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Mobility Aid Encyclopedia
It's done!!
I have made a resource to help other disabled people determine which mobility aid may be right for them. This guide is long and includes different aids, what they're used for, how to use them safely, and where to purchase them.
If you've been considering using a mobility aid, I urge you to do the proper research, my guide is not all-extensive, but it is a good place to start.
Disclaimer: I am not a doctor. I can not diagnose you with anything or prescribe you anything. I fully encourage that you speak with a doctor before beginning use of any mobility aid. I am, however, aware that this is not always an option. If you choose to use a mobility aid without consulting a professional, I am not responsible for any injury that may occur.
And now, here's the guide!
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So cool! Congratulations!
Kiku got a brailler!

ID: A green perkins brailler with grey keys sitting on a wooden table End ID
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Hi folks! Remember that it takes more medicine to counteract pain that you already have than it does to prevent it! Take your meds!
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jetpens just started stocking a product that will be an ergonomic game-changer for a lot of folks!

this is the kutsuwa punyu spiral pencil grip. unlike most pencil grips that are solid tubes and have a fixed maximum diameter they can wrap around,

the punyu is a spiral! it wraps like spaghetti.

this means that, unlike almost every other grip on the market, this grip can be added to almost every pen or pencil! and that includes fountain pens and gel pens. you can see it here being used on a pilot metropolitan fountain pen and a sakura gelly roll gel pen.
(not an affiliate link, not sponsored, you can buy from wherever you want if interested, jetpens has a lot of specs of their products that I appreciate)
a jetpens review even mentions someone using these on the lamy safari line of fountain pens. the ones with a really sharp triangle grip. these grips seem really really versatile, especially if you are about to sit down and take notes for hours on end!
if you do use this with a fountain pen, I recommend making sure the fountain pen is not prone to hard starts or drying out, has a good flow (whether that flow is from a wet nib or a wet deed or both), and/or that you use a relatively wet ink. because the goal is to have the fountain pen continue to write even if you put it down for a few minutes, so you do not have to keep removing the grip, capping the pen, uncapping the pen, or reapplying the spiral grip!
over the years some folks have asked me if I know of anything like this, and well, now we both do! if you get this let me know what kinds of pens and pencils you use it with and how well it works! this is a really exciting pencil grip!
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top-tier tips: comunication w nonverbal folks
personal think these most important takeaways from video post earlier, so!
no condescend or patronise that’s stuff like “good girl,” complimenting carers on our work & skills, using babyvoice, & simplifying language when not asked for - even nonverbal child shouldnot be treat this way for just living life, let alone adult. we’re people, not trained animals!
no speech doesnot mean no comunicate if trusted person understand what we mean, is not “mind-reading” - just means we got some way comunicate w that person! body language, signs, even written notes - you might not see, but is there
no response doesnot mean being rude if we’re out alone (or trusted person has step away) we may not have way comunicate. if you ask question & get frustrate or confuse noise in response, that likely means we lack way answer - if encounter at nother time, might be able chat! without our proper aids, at best can only answer simple yes/no questions, maybe pick from short numbered list
don’t take our voice away whether means physical take device, remove access to PECS cards/book, turn away while signing, get huffy while we type answer, whatever - don’t. doesn’t matter how curious, or how bored - you wouldnot like much if someone squeeze your throat while talk, right? don’t do same to us!
nonverbal doesnot mean intelectual disability… yes, there can be overlap, & there no problem in acknowledge this. but is not always the case, & it just make awkward when assume this way. if you ask nonverbal person abt fandom, introduce by name - if they know, yay, have fun! if not, don’t make assumption on ability - just give brief rundown, warnings if need, & they’ll decide if intrest.
…but speaking of, also check how you treat & think of ID people. OK, yes, this post is abt nonverbality. but forreal, if you look at nonverbal person, come to (potential wrong) conclusion they ID, & decide must treat like young child? this also wrong & offensive. see point #1 again - try learn our level & needs as individuals.
don’t assume you know our thoughts if you see incomplete sentence typed on device, don’t try complete it. if you know we trying make choice, don’t overload w suggestions & try make it for us. at best, is slight annoy & slows down - at worst, could make complete overload.
remember: even we’re not always up for talk!
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supervisor*: “do you need anything before I head out on break?”
(* friendly, fellow autistic, also chronically ill & disabled - a lot in common, & understands spoon theory)
me: “brain cells?” (/lighthearted)
supervisor: “sorry, i don’t have any to spare.”
*loading symbol as they attempt to articulate just how Zero Brain Cells they have*
supervisor: “i feel like i’m trying to rub two Fruit Roll-Ups together and hoping for a spark.”
((this is the best way i’ve ever heard someone say they need a break 🤣))
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Photo



Showstopper
[he/him]
[image desc: 3 photos of me, a nonbinary indian wheelchair user, in a red dress and black shoes and wearing a beaded record fascinator with red lipstick.]
www.instagram.com/pansystbattie/
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hey, if you're a usamerican getting the news, not knowing what to do, this is really really really good time to get acquainted with the national council on independent living, the independent living movement, and your local centers for independent living.
independent living centers provide services and support by disabled people for disabled people and can help with: navigating systems, self-advocacy, and accessing services, among many other things. in their truest form, CILs function not in the model of state agencies, but as a form of structured in-community mutual aid. my local CIL provides services like counseling, advocacy, grants to cover some home needs, and meals on wheels for disabled adults under sixty-five. CILs can't fill all the gaps in services we have in this country, but they do important work to keep people alive. if you need help, your local center for independent living may be able to help. if you can give help, your local center for independent living can definitely use your help!!!!!
please do reblog <3
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The #1 thing I cant stand as a nonambulatory wheelchair user:
UP!
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Schizophrenia and other psychotic disorders appear most often in your 20s and are believed to be a primary reason why so many people in their early and mid 20s suddenly disappear with no signs of foul play.
If you are in that age range and you're suddenly feeling scared, paranoid, like people are out to get you, please get help. If you have friends or loved ones in that age range and you notice them suddenly behaving strangely or erratically, reach out to them. Make sure they know that they're not alone and that they have options.
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Made a comic abt my experience with my severe chronic illness (myalgic encephalomyelitis) which i drew horizontal with my fingers because I'm bedbound and spent a MONTH on it and posted it on every social media and it got no motion lol so just posting it here as well😭😭😭😭😭 I just wish hard work mattered I'm just trying to raise awareness
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Being sensitive to changes in barometric pressure is crazy what do you mean my problem is that the wind changed direction. What do you mean it's the fuckin clouds
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Hi everyone! How are you today? Have you done something to take care of yourself/your space?
I love you!
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Rare photo of the blogger! This came from the Renaissance Faire, and the sign pointed to a sealed door with no handle!
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I find it very offensive that the more unwell you are, the more things you have to do to maintain your health. Things like following special diets, going to medical appointments, making big and important decisions about what treatments to use. At the same time, the more unwell you are the less energy you have to do all of these extra things. It seems grossly unfair.
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cleaning with ADHD is a nightmare. it’s an endless cycle of finding a half-finished chore and stopping the one you were already working on, then remembering that something else needs to be done and getting started on that, then finding half-finished chore and
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