funwithfibro
funwithfibro
Never Surrender
6K posts
Hi I'm Harmony, they/them. 24. Spoonie blog, currently diagnosed with fibromyalgia, diagnosed in October 2011. Along with CFS, IBS, Scoliosis, Bipolar NOS, GAD, & PTSD. Self dx w BPD. And I'm still on the journey of figuring out the rest! Feel free to ask any questions!
Don't wanna be here? Send us removal request.
funwithfibro · 1 year ago
Text
Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
46K notes · View notes
funwithfibro · 1 year ago
Text
Please feel free to reblog to explain your answer! Results will be posted once the poll has ended.
*for specifics, this poll is for what medication you are currently taking
19 notes · View notes
funwithfibro · 1 year ago
Text
i really don't get why people act like "hating your disability" and "being proud to be disabled" are opposites. i hate the inconvenience and pain and discomfort and isolation and not being able to do the things i want to do. i'm proud that i'm still truckin along anyway, and that i'm part of such a resilient and vibrant community.
9K notes · View notes
funwithfibro · 1 year ago
Text
Opioid epidemic this, public health crisis that. What if everybody had access to quality healthcare and pain management so no one would have to resort to desperate and even illegal means for pain relief, imagine that.
927 notes · View notes
funwithfibro · 1 year ago
Text
Tumblr media
236 notes · View notes
funwithfibro · 1 year ago
Text
Tumblr media
5K notes · View notes
funwithfibro · 1 year ago
Text
as a disabled person the idea of resting when i feel relatively ok/still have spoons just like. doesnt even occur to me most of the time.
like it’s so crazy that abled people rest even when they’re not about-to-pass-out-or-vomit levels of exhausted. i forget that im allowed to do that too
1K notes · View notes
funwithfibro · 1 year ago
Text
happy disability pride month to every disability! remember there is no such thing as disabled enough use the aids you need
192 notes · View notes
funwithfibro · 1 year ago
Text
I see you disabled people who don't know your family medical history because your family members couldn't/wouldn't/weren't allowed to go to the doctor and never got diagnosed, or don't know your family.
I see you disabled people who didn't know you were disabled growing up, physically or mentally, maybe because your parents didn't have insurance and couldn't afford it/wouldn't take you seriously/didn't think it was a problem because they had it/doctors couldn't figure it out.
I see you disabled people who have bouts of an issue that you grew up with, that are/were infrequent enough that you never really thought about it and dealt with it on your own, and when you have one in front of people who weren't medically neglected, you wonder why they look so horrified as you describe it.
I see you disabled people who didn't/haven't had any amount of care or accommodation for their disability since it started, because you couldn't get diagnosed.
I see you disabled people who grew up thinking everyone had the same problem as you and that it was normal and so you accepted it, because you didn't understand how the human body worked and had no real frame of reference nor the language to ask for help, or the people around you saw it and just ignored it.
I see you disabled people only now understanding that what you experience is abnormal, and that there are things that can be done to help it, make it easier, or at least help you understand yourself better.
I see you disabled people that will never be able to get diagnosed or get the help you need, whether from being poor, lacking insurance, or any number of reasons.
This shit is hard, and there are people who will never quite understand your struggles. It doesn't seem to get talked about as much, but I wish it was. Please know I love you, and you aren't alone.
3K notes · View notes
funwithfibro · 1 year ago
Text
Since the r-slur is making a comeback (you know, the word that starts with R, has six letters, and ends in D), I'm gonna make a little PSA:
Yes, it's an ableist slur.
Terms like "asshat," "head-up-ass," "up their own ass," and "high on their own farts" exist. There's also words like crap, dogshit, half-assed, assclown, and chucklefuck. And on the less vulgar side, there are terms like ridiculous, nonsense, train wreck, pointless, insipid, self-absorbed, pretentious, annoying, boring, contemptible, vile, and disgusting.
Substituting words like restarted, poptarted, brain damaged, smoothbrain, etc. is still ableist, because either 1. you obviously still mean the r-word, or 2. you're still using disability as an insult.
35K notes · View notes
funwithfibro · 1 year ago
Text
Tumblr media
Story of my life 🙄😅
3K notes · View notes
funwithfibro · 1 year ago
Text
What’s going to make you happy right now? Is it some cake? Is it a nap? Is it calling your mom? Is it going on a drive and blasting music? Is it taking a bath? Is it reading a book?
Check in with yourself because you deserve that happiness, whatever it is.
165K notes · View notes
funwithfibro · 1 year ago
Text
July is Disability Pride Month 💙🥄
“Disability Pride is the concept that people with disabilities embrace their full identity, including their disabilities. Disability Pride means something different to everyone. The spectrum of disability is intersectional and diverse, so this is an enriching opportunity to reflect and learn from people with disabilities and their lived experiences.
Why is it important for people with disabilities to feel proud of their identities? Several or almost all people with disabilities experience ableism, behaviors, practices, norms, laws, and institutions that exist under the assumption people with disabilities are inherently less capable and valuable in society. Ableism leads to inaccessible and exclusive environments. Beyond their experiences with ableism and discrimination, many people are empowered by their disability and view it as an integral aspect of who they are, rather than the outdated view of disability as a flaw that should be separated from their identity.” (- Zane Landin)
It’s also important to note that the Disability Pride flag was redesigned to equally consider both photosensitive and colorblind members of the disability community. Please do not use the old flag design.
Tumblr media
165 notes · View notes
funwithfibro · 1 year ago
Text
Tumblr media
39K notes · View notes
funwithfibro · 1 year ago
Text
Btw shout-out to disabled people who feel sexual attraction but can't have sex or masturbate. Shout-out to disabled people who can't have sex or masturbate because it hurts. Shout-out to disabled people who can't have sex or masturbate because they're dependant on a caregiver. Shout-out to disabled people who can't have sex or masturbate because they're deemed "too mentally immature". Shout-out to disabled people who can't have sex or masturbate because they would be bedridden for days if not weeks on end. Shout-out to disabled people who can't have sex because they can't get into the right positions. Shout-out to disabled people who can't have sex because once their partner finds out they're disabled they refuse. Shout-out to disabled people who can't have sex because they can't go out to meet people.
Disabled people are not your uwu sexless perfect babies or broken people incapable of sexual pleasure. We deserve to be talked about in all aspects of life and the fact we aren't taught sex ed besides from an able bodied and able mental standpoint is genuinely god awful. No one talks Abt this and we deserve to be seen
6K notes · View notes
funwithfibro · 1 year ago
Text
if you feel like you’re ‘getting in the way’ as a mobility aid user, particularly with larger aids like wheelchairs, rollators/walkers, gait trainers and service dogs, That Is A Fault Of The Space (and potentially the people), not of you. You deserve all the space you take up and more.
4K notes · View notes
funwithfibro · 1 year ago
Text
Marriage equality has not been achieved until disabled people can get married without losing their benefits and supports.
8K notes · View notes