justepilepsy

[justepilepsy]

Dudes healthcare is so fake. My ADHD meds are $940 without insurance. But they gave me a website of "coupons" which straight up looks like a scam website, and I got it today for $60! Just a coupon from a random website and it was $900 cheaper. America, I am confusion!! America explain!!

[justepilepsy]

hi in honour of disability pride month i would like to give a shoutout to people with epilepsy who don't have seizures often. the ones who have other symptoms. migraines, mood swings, pain, confusion, brain fog, adhd, autism, depression, psychosis, insomnia, hypersomnia, anxiety, pots, heart problems. i see you and i love you and you are just as valid as people who have seizures often. we struggle too and i love you so much.

[justepilepsy]

I'm so pissed off about my symptoms im making a PowerPoint about it

[justepilepsy]

Danke automatische Übersetzung. Ich bin mir sicher, genau das war gemeint.

[justepilepsy]

Okay I’m currently furious that migraines are often so blindly easy to treat and I had to find this out myself at the age of 26 when I’ve been to a neurologist since I was 11 lol so I’m about to teach you two neat and fast little tricks to deal with pain!

The first is the sternocleidomastoid muscle, or the SCM muscle.

This big red section is responsible for pain around the eye, cheekbone, and jaw, as well as some temple pain. Literally all you have to do is angle your head down a little, angle it away from the side that hurts, and then you can gently pinch and rub that muscle. I find it best to start at the bottom and travel upwards. The relief is so immediate! You can increase pressure as you feel comfortable doing so.

Here is a short and easy video showing this in action

The second is a fast and easy stretch that soothes your vagus nerve, which is the nerve responsible for calming you down. The vagus nerve, for those unfamiliar, is stimulated by deep breathing such as yawning, sighing, singing, or taking a deep breath to calm your anger in a tense situation.

You can stretch this out by sitting up as straight as possible (this does not have to be perfect to work) and interlacing your fingers. Put your hands on the back of your head with your thumbs going down the sides of your neck and, while keeping your face forward, look all the way to one side with just your eyes. Hold that until you feel the urge to breathe deeply or yawn, or until you can tell there’s a change. Then do the same thing on the other side. When you put your arms down, you should clearly be able to turn your head farther in both directions. If the first session doesn’t get rid of your migraine, rest and repeat as many times as necessary. I even get a little fancy with it and roll my eyes up and down along the outer edge sometimes to stretch as much as I can.

If you need a visual here’s a good video on it. I know some of the language they use seems questionable but this is real and simple science and should not be discarded because it’s been adopted by the trendy wellness crowd!

I seriously cannot believe I didn’t hear a word of this from any doctor in my life. Additionally, if you get frequent recurring migraines, you may want to see a dietician. Migraines can be caused by foods containing histamines, lectin, etc. and can also be caused by high blood pressure in specific situations such as exercise, stress, and even sex.

If any of this information helps you I’d love to hear it btw! It’s so so fast and easy to do. Good luck!

[justepilepsy]

Been on a long hiatus for quite a bit. I am doing good (in case anyone is curious). I have a lot of stuff going on, but positive in most cases. I am working on my next animated original film. I have a dog now! I am meeting people and going outside. Basically I am trying to reduce my general online activity/consumption.

Not so much in a chase for productivity (ew capitalism bad) but in a wish to get things done and to make new connections and experiences.

I'm sending lots of love and best wishes to all fellow epileptic folks and seizure-disorder people this epilepsy awareness month.

[justepilepsy]

All I can contribute is, that auras are optional and nor everyone with seizures experiences them.

If folks with myoclonic seizures have any advice or things to share, chip in!

I need some advice on whether I’m having myoclonic seizures. (I am waiting for a doctor’s appointment but I just really want to know what’s going on.)

I have these full body jolts/glitches sometimes, have done for as long as I can remember. I can go days and even weeks without one and most of the time they’re isolated, although I did have a cluster of them last year which resulted in me throwing my phone and dropping a fork. I get confused and disoriented for a few seconds after each one and when I had the cluster I found it difficult to walk for a few minutes afterwards.

I don’t have any other types of “seizures” (in quotations because I don’t know if they’re seizures yet). I don’t really have auras either? When I had my cluster I could kind of tell if I was going to jerk again but when they’re isolated I can’t.

Please, I could really use some advice on this. From what I’ve seen of myoclonic seizures it looks like what I’m experiencing and I’m concerned.

The tags below are NOT me self diagnosing, it’s so people who experience seizures can see my post and offer any insight if they would like to.

[justepilepsy]

Happy disability pride!!!

I've been a bit inactive. Mostly because I have a new dog and my day is now a lot more structured and also busy at the same time. But in a good way!

[justepilepsy]

I was curious and googled if there was an epilepsy creature and since I couldn’t find any I drew one 💜🦋💜

[justepilepsy]

hey fellow Europeans (EU), just a friendly and mildly concerned reminder that in less than a month, the European elections are taking place. it's an election with a historically low turnout, but one that is just as important as any other, if not more. the composition of the EU parliament determines the political direction of the EU, and has an impact on all 27 countries through directives and regulations that get voted.

we cannot let far right extremist parties get an even bigger stronghold there than they already do. sadly, there are very significant threats of exactly that happening from many countries.

so please, if you are an EU citizen living in the EU and are of voting age, check the modalities to vote in your country of residence, and make sure to make your voice heard.

[justepilepsy]

Admin Brandon here with wonderful news: John Krasinski's IF is SAFE for photosensitive audiences!

I'll have my video review and evaluation of this film available on Patreon today, and on Facebook and Tumblr on Tuesday.

[justepilepsy]

Mobility assistance

[justepilepsy]

Got sidetracked and made myself a really silly shirt.

Added it to Redbubble like I do every design I make myself!

I'll take a picture when it arrives.

[justepilepsy]

If you have a senior to check on ask them to "borrow" something small so they think they're helping you.

My mom (72) recently downsized and moved close enough to me that checking on her in person regularly is not really out of my way, but when I was obvious about it she wouldn’t let me “stop-by” because she was, “fine”.

Well, one day I actually needed some aluminum foil so I called and asked if I could borrow enough to cover a baking tin because I didn’t want to run to the store. She said sure, but when I got to her house she needed furniture moved, a wasp nest removed, and her coffee pot fixed. After I got the foil I mentioned each thing cautiously and she let me take care of them for her. So next weekend I’ll need a cup of rice and check on her again.

[justepilepsy]

Hello Gamers, I am finally about to cave in and play BG3. The gay vampire elf propaganda has worked it's way into my brain.

Are there any issues around flashing lights, thunderstorms, electricity effects in BG3? like.. specifically unskippable cutscenes, mandatory cutscenes, boss fights, or areas where you have a shit ton of darkness with lightning effects, electricity effects, flashing lights, very intense rapidly colourful flashing lights or similar? Also: Pulsing patterns, optical illusions or rapid blue-red / cyan-pink colored areas/flashing lights?

Any areas or enemies I should be like.. prepare myself for? And are there maybe mods or settings to mitigate?

[justepilepsy]

I recommend talking to your pharmacists about it. They often know a lot more about these meds than the actual doctors and can give you a lot of info and advice!

Out of curiosity, does anyone know anything about Epidiolex, or use it? It's a possible prescription for me, and I'd like to know as much as I can before actually getting it prescribed.

[justepilepsy]

I don’t know if anyone else was made aware of this in the latest update for iOS but this definitely makes me so happy