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World Mental Health Day + London
For many us, we are constantly battling with a mental health condition and find it hard to express ourselves. When dealing with our conditions, there is nothing more powerful than being seen.
For those of you in London, we are partnering with Made of Millions to host a 3 day exhibition that will bring together the power of digital communities into the real world. We’ll have everything from AR-enabled work from a handful of Tumblr creators, featured photography of Rose Cartwright by Yumma Al-Arashi and their premier of their short film, Mindstory.
The event will explore what it truly means to be fully seen in the context of mental health. A chance to be seen through the eyes of others.
RSVP here for our Tuesday night event where you will have a chance to meet the Made of Millions founders and the team from Tumblr.
You’ll hear from us more next week as we get closer to World Mental Health Day.
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GEARUP4CF PEI Day 8 Summerside to Charlottetown 112 km 🎉
In Summerside we had one of our last opportunities to have dinner together as a group. Afterward some of the riders had a nip of scotch to honour Jan's victory ride (see photo). Last year while training for GEARUP4CF PEI 2016 Jan had a cycling accident in Vegas and although he rode two 65km rides during the 2016 ride he was not able to ride the full 850kms due to recovering from his injuries. You could see how much riding means to Jan. He was very enthusiastic about everything and especially showing off his beautiful island--the birthplace of the confederation of Canada. This morning as we prepared to leave the hotel a mom of a child and a brother with CF came to see us off. It is always important to have reminders of why we do this ride. You can see in the faces of those impacted by cystic fibrosis how much our commitment to the cause means to them. We rode about 30km to Confederation Bridge park for photo ops. I was tempted to cycle across the bridge but figured getting arrested for the CF cause may not be the best way to raise awareness. About 10kms after the rest stop Andrea noticed that Athalie's chain was loose. It took about 45 minutes at the side of the road to check and try to adjust the derailleur. This put us quite far behind the other riders but for safety it needed to be addressed. Athalie decided to cycle on the big ring on the front and three on the back to decrease the chances of her chain coming off/breaking. We already decided at this point that she would ride or walk over the finish line. Stubbornness can have its own motivation. Before lunch it started to rain and poured for the remainder of the day. We stopped to change our wet socks and gloves with the help of one of our volunteers Lisa. Brenda, another volunteer, drove by and stopped to share a box of chocolates with us. It's the little things that help when the riding conditions are miserable. I also had an opportunity to use the helmet cover that Danny loaned me from MacQueens bike shop. It made me look like a power ranger! It kept me warm and my head dry. At this point functional is important! We had a great lunch provided by the volunteers at a beautiful spot in Victoria-by-the-sea. Brenda brought us hot tea from the local shop while Andrea worked on Athalie's bike again but to no avail. Three gears till the end... All the riders met at the Tim Hortons in Cornwall on the outskirts of Charlottetown and Paula's brother-in-law, Mike, bought us tea to warm up. This was a quick turnaround as we had a police officer waiting to escort us into the city to greet some of our supporters at the the park. Just as we were leaving Timmy's my brother and sister-in-law drove up. It was fantastic to see them! They came over for the weekend to see us and my brother organized a huge lobster feast for us. We rode into a very very wet capital. It is always anxiety provoking (for me) at the end because everyone is tired and excited and this is when accidents can happen. There was construction with graded pavement in one section. With water pouring down the roads it makes it difficult to see potential hazards. Unfortunately 1/2 block from the finish line one rider hit a huge pothole in the asphalt that was filled with rainwater and made it difficult to see. They flew over the handlebars and crashed on to the roadway. Fortunately they were not seriously injured, but had some scrapes and bruises. This mishap reminds me that this ride can be dangerous and it only takes a second for something to go wrong. As with all rides, the last day brings mixed feelings. There is a relief that we are almost done and our tired bodies will get a break from the daily test of endurance. Yet, there is a sadness that the friendships that have been enriched and newly formed will be taking a hiatus for now. There is also a felt sense that each person you hug has a battle to face: Manon and David-Camie their daughter with CF, with no cure in sight Paula and Pat- Claire and Cameron with CF, with no cures in sight Lisa and Walter-Joanie and Ali with CF; Joanie died at age 12; Ali had a double lung transplant, with no cure in sight Tom and Suzanne- grand nephew with CF, with no cure in sight Ross- 2 children with CF, with no cures in sight Athalie and me- Alex nephew/son with CF, with no cure in sight As I write this last post during the flight home I am acutely aware that children and young adults are still suffering and dying because of complications that arise from the battle that they endure everyday. When Alex comes home from university for "breaks" he spends hours at the CF clinic getting tested for his pulmonary function, his blood work for any nasty bugs, his organs for potential damage, x-rays, and MRIs. He is assessed by dietitians, physiotherapists, respiroligists, nurse clinicians, social workers, and lab technicians. He has stomach and back pain that he has learned to live with. It is all part of the daily challenges that he has to cope with as a young adult. I can only imagine the load that he carries most days. As a parent it makes me feel helpless and that is why I do this ride so that I can raise awareness and money to fund research for improved treatments and potential cures for CF. People ask me how can I ride such a long distance on my bike, and as Dale says, "how can I not [ride]." I would ride to the moon and back if it could take one hour of less suffering for my boy. Love you Alex. I also want to take time today to acknowledge my very special sister Athalie. She takes time off of work to travel, she takes extra shifts to pay for the travel. She spends hours and hours training. She has purchased cycling equipment and supplies so that she can be with me on this journey, but so much more than all of this is that she is my riding partner. I could not imagine doing this ride without her. It would be boring and just not fun without my spinning and singing partner. As Bob refers to us, we are the Twisted Sisters. I'm not sure if that's a compliment or not. I am forever grateful to all of you who have travelled this journey vicariously by reading this blog and supporting us emotionally and financially. Love to Ted, Nathan & Alex There is still time to donate if you or someone you know would like to support us: https://secure.e2rm.com/registrant/FundraisingPage.aspx?RegistrationID=3646253#&panel1-3
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GearUp4CF PEI Day 7
Westpoint to Summerside 105 km Today we decided to sleep in and have a later start time of 0900. Most of us awoke early as we have now acclimated to the time change and daily routine. We had a leisurely breakfast at the inn and got our bikes ready to roll out for the day.
We we warned that the misquotes,or as the locals call them “masqitas” were still vicious so we reluctantly covered ourselves with insect repellent.
The sun was already blazing in the sky so we applied sunscreen and arm coolers to protect us from the rays.
Andrea had a bulging tire so she stayed behind to fix it and the rest of us headed out. By the time we left the park we were separated into groups of 2-4. Athalie and I rode together and enjoyed the calm breeze and quiet roadways. This is one of the differences between riding in BC and PEI. For the most part the roads here are quiet although we have been told by this weekend things start to get busy for the summer on the island. While riding this morning, we noticed a wonderful fragrance in the air (not manure) and later were told that it was the lupine that grows wild by the roadside.
Today we entered the Acadian area of the island and had lunch at an quaint little community centre where most of us has seafood. We were treated to homemade molasses cookies and they tasted like the ones Ma used to make. Delectable! It was very hot as we sat and enjoyed our meal. Manon helped make sure we ordered correctly but the waiter seemed to understand and speak some English. We had a bit of fun playing the crazy Ace game. A 50/50 game where you pay $5 to be entered into the weekly draw. If your ticket is drawn you or a proxy turns over one card in the deck and if the Ace of ♠️ is turned over you win the jackpot. The pot was at $24000 for this week with 41 cards remaining. It is a popular game in the Maritimes with people causing traffic jams if the jackpot reaches $1,000,000 and only a few cards are remaining. It is popular in communities if they are fundraising for local sports teams.
We left Abrams Village and headed for Summerside where we stopped for an ice cream at a Dairy Bar prior to arriving at the hotel.
We had a nice dinner and then had an early night. At dinner we laughed so hard and it is really great how although we have only known Manon, David, Paula, and Jan for one week it seems like much longer. When you spend so much time with people volunteering, pulling, being pulled, and sharing stories along the way, it makes for a great bonding experience.
Here's a link to Walter's blog: http://gearup4cf-2017pei.blogspot.ca/2017/06/gearup4cf-pei-perimeter-ride-2017-day-7.html
Good night Bon nuit
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GearUp4CF Day 6
Day 6 We had an early start from North Port because one of our riders Ed was leaving the ride to attend a wedding in Florida and needed to be taken back to Charlottetown to catch his flight. We had to have our bags at the front for 7 am so the vehicles could be loaded and Lisa W (ED Atlantic region) could take them to our hotel and then take Ed to the airport. Rode our bikes to a cafe that is known for cinnamon buns. We had a full breakfast. I still wish I had bought the peanut butter balls to fuel me on the ride :) Today was one of our milestones to hand in our ribbons from East Point and receive our Tip-to-Tip certificates at North Cape 30 km north of our start point. The headwinds were fierce this morning and the good news is that it brings out the team work in the riders. We rode with Jan till lunch and it's great because he 'came from away' in the early 50s from Holland and he knows lots of history of the island. We rode by Stompin' Tom Connors Place and had lunch at the new cultural centre in Skinners Pond. Jan had the pleasure of putting a nail in the fence so every time he and Paula ride by he can retell the story ;) The weather continues to be beautiful. As we headed north the land became even more barren with only a few trees. It reminded me of the U.K. where the sheep keep the fields mowed down. We saw a silver fox just before we arrived in North Cape. By the time I got my camera out of my pocket it had scurried off into the grass. There are lots of wind turbines in the north and the National wind research energy research center. We rode with Jan, Dale, Andrea and Manon for the afternoon and it was a very pleasant ride. In the afternoon we stopped for a photo op and I saw a text from Alex letting us know that he had his pulmonary function tests and that his lung function has improved since two weeks ago. Yay!!!! We had 10 kms to go and this news was a huge tail wind for us and sent us back to our hotel with great gusto! We arrived West Point Lighthouse Inn and Athalie and I are staying in the Keeper's Quarters! It is so cool. The whole place has been renovated into a beautiful inn on the ocean. Our bathroom includes a beautiful claw foot tulip bathtub with a window overlooking the Norththumberland Straight. We out ran most of the mosquitoes to the restaurant but a few were faster than us. We saw a family of foxes on the way back to the inn. I captured a few photos. Off to take on day 7...
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GearUp4CF PEI Day 5
Triumph to Northport 111 km We had a great breakfast 🍳 and headed off to Northport where we were prepared for strong headwinds. It was a beautiful ride with the ocean on our right for most of the day. This area of the island is where one the ride organizers Paula is from. We passed by the church she was married in and had a quick visit with her sister Linda and her grand nephew who were by the roadside to cheer us on. It is apparent from the stories that Paula and Jan have lots of connections on the island. There are a lot of churches on this part of the island and we wondered where all the people come from to attend as the population on the is only 148,000. We arrived at the beautiful spot of Northport. See photos.
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GEARUP4CF PEI Day 4
We left the beautiful Crowbush Golf Resort in good time. Today we enter Cavendish area and Anne of Green Gables country. At breakfast Clare & Athalie crowned each of the riders "Anne" and presented them with orange braids to wear for the day. It's amazing what people can do with a pair of braids. Before long Willie Nelson and Janice Joplin joined the team :) Today was clear without a cloud in the sky and it was going to be a warm day; to make matters even more interesting the cross- and headwinds reached up to 70 km/h. Walter and Norm pulled us for over 80 km it was a real testament to teamwork. At many points of the day we had 6-8 riders in the pace line. In order to ride on someone's back wheel (5-6 inches away) you really need to trust all the people in front of you. If you stop pedaling for a second the people behind you can crash into you and you can have a very bad situation (think multiple car pile up but on a bike traveling any where from 16-30 kp/h). When the crosswinds became really strong Norm or Walter would ride beside me so that I could ride to the right of their wheels. At first it was pretty nerve-racking because we are taught as riders in a group to never ride on somebody's wheel: you should always be behind and ready to react should something unexpected happened in front of you (pot holes, stopping, cars, trucks,...) It's days like this that you realize were all here for a common purpose and although we are just riding our bikes, and other people are out there fighting CF every day, the metaphors just keep running through my mind. Pushing through, breathe, keep moving forward, stay focused, breathe, uphill, downhill, turn here, stop and take a moment, be in the moment... Today we were warned that there was a chance of thunderstorms and that if we were asked to take cover or get in the vehicles for safety that we must comply. Fortunately it was not until about 25 kms from our destination the sky's opened up. We got drenched but I didn't get cold as it only lasted for about 10kms and then it warmed up again rather quickly and with the headwinds our outer layer dried. We arrived at Camp Triumph. A lovely spot that is on a Provincial park and has been leased by a family for 15 + years. The camp provides spring and summer camps for children who have a family member with a serious illness. They get to spend a week away with other kids who understand what they may be going through. It was a special place and we got to meet some of the counsellor and the therapy dog 🐶 Barkley, a very playful fluffy bundle of joy. Athalie and I stayed in one of the cabins "Timmys Tent." It reinforced for Athalie that she is not a camper and never plans to be one. Once we got rid of the snail that was resting under the mattress I think she felt better. The winds picked up at night and at points we wondered if the cabin was going to take flight. Think Wizard of Oz. It was a beautiful setting with great food and wonderful people.
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Walter's blog: best quote ..."something that has weathered so many storms for so long..." kinda like people impacted by CF
http://gearup4cf-2017pei.blogspot.ca/2017/06/gearup4cf-pei-perimeter-ride-2017-day-3.html
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GearUp4CF PEI Day 3 109km
Today we had a full breakfast at McLeans B&B including homemade rhubarb jam. It made me think of mom as she loved rhubarb preserves.
We headed back to the start point to pick up our bikes at Rollo Inn. One of the challenges for the ride organizers is that there are no hotels within a short distance of the end of the daily 100km+ rides so they have to transport us back and forth from and to the start line most days.
Today we were prepared for strong winds as the forecast was for 30, 40 kph winds and gusting to 60 kph by the afternoon. We had some tailwinds this morning so that was nice. We had sun all day and when the winds died down the heat was intense. I lost track of the number of bottles of water I drank today. Skor bars were my fuel today 😬. I gave up on the Cliff Bloks (for now) as they tend to bother my stomach by day 3-4.
We rode through the southeast end of the island and collected our ribbon at East Point lighthouse. We will turn them in at the northern most point and get an Tip-to-Tip certificate.
We had our lunch on the grounds of a little Catholic Church. No one was there they just let us use it and their washroom. It seems like going back in time to when people used to leave their doors unlocked.
After that it was 35 Kms of headwinds till our last pit stop. I rode part of this solo just getting in the grove of the rhythm of being in nature and listening to the wind whistle. Many times when it really lucked up I would think a car was approaching but it was just the wind.
We had a lovely pit stop with an air conditioned visitors center when I ran cold water over my head and neck and poured cold water over my left foot which felt like it was on fire. Less than 20 km still to ride.
Today I really felt the teamwork. When you ride in strong winds you learn to lean on each other (aka draft) in order to ease the energy needed to continue. Norm and Walter pulled us the last 20kms today. We were going 17km an hour on a -2% grade!!!! If you are not a rider, I typically ride 24-28 km an hour on a 0% grade (flat) with no wind. I probably would have been going backwards without help. You burn so much energy that the water needs supplements to keep electrolytes in balance. I also use sodium drops in my second water bottle.
We are hosted tonight by the Rodd Crowbush. We had dinner in the clubhouse.
On the way back to the room we met a couple from Ottawa that have a friend with CF that recently had a lung transplant in Toronto and is doing well. 🙏
My brain is fading so it’s time to call it a night…
Thank you for taking the time to read my blog. If you or know someone who has not had the opportunity to make a donation here is the link: https://secure.e2rm.com/registrant/FundraisingPage.aspx?RegistrationID=3646253#&panel1-3
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Link to Walter's Blog
Just getting ready to head down for breakfast. Wanted to share Walter's blog with you... http://gearup4cf-2017pei.blogspot.ca/?m=1
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GEARUP4CF PEI Day2 117km
The day started with a great breakfast at 7 o'clock at the golf course at the Rodd Brudenel Golf Resort. It was a beautiful setting on Provincial camp grounds (see photos). In the morning when we woke up we were unsure whether it was going to be a sunny day or a rainy day. Fortunately it was mostly overcast with periods of sun. The temperatures were as high as 27° C but with the nice breeze a.k.a. strong wind we rarely noticed the heat. The last 15 k were quite difficult as the legs were tired with the head- and crosswinds taking its toll and the heat upon us. We left our bikes at the Rollo Inn and we were driven to the village of Souris (pronounced Surrey) to The McLean Inn on the ocean. We had a lovely dinner hosted by Terry and Cheryl (friends of Jan) on Northumberland bay facing south toward Cape Breton. We were served a meal of chili and chicken lime soup (Pho) with all the fixings. Their lovely summer cottage provided a lovely backdrop for laughter and also some serious moments to reflect on why and for whom we ride. Time for bed. Tomorrow we ride the starfish route and enter Cavendish country.
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