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Go look up what coralroot orchids are if you dont already know ok? Goodnight everyone ♡

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orangesnackcake

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if you just register for a dysautonomia international medical conference. and you just let the videos play. and you even just half pay attention. you will gain the ability to change and save other people's lives.

so many chronically ill people only get diagnosed when someone other than their doctors say, "hey, have you heard of postural orthostatic tachycardia syndrome? it is really common, treatable, but it only shows up on specific tests."

or "hey, I know you have been diagnosed with fibromyalgia, have you had autonomic testing or testing for non length dependent small fiber neuropathy? 30-40% of people with fibromyalgia have small fiber neuropathy, and a lot of that is the non length dependent pattern, which not a lot of doctors know about."

or "hey, you know how you have weird allergy issues? have you ever heard of mast cell activation syndrome? around 17% of people have mast cell issues, and they can cause debilitating symptoms all over the body until treated."

there are so many debilitating chronic illnesses that are EXTREMELY treatable, but only show up on specific tests. a lot of people with these conditions test as 'healthy' otherwise. and so fucking many of these kinds of conditions are presented at dysautonomia international in presentations that are easy to understand.

these medical conditions are everywhere, and have been around forever. and covid-19 has multiplied how many people have these, around the world.

everyone has an autonomic nervous system, and it breaks very easily. dysautonomia can happen alongside countless other medical conditions. every chronically ill person needs to be asking themselves if they might have some form of autonomic dysfunction. because chances are pretty good that they do.

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Not a big enjoyer of alcohol since I'm extremely sensitive to chemical tastes/smells, but I do enjoy just. How little it does to me, but how nice the few effects I get from it are. I have a decently high tolerance despite not drinking more than 3-4x a year, so I don't get any brain fog, but it does chill out my anxiety and makes me feel much colder, so I get to avoid overheating and feel calmer than I do 99% of the time. It's kinda nice.

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As a wheelchair user I'm trying to reframe my language for "being in the way."

"I'm in the way," "I can't fit," and "I can't go there," is becoming "there's not enough space," "the walkway is too narrow," and "that place isn't accessible."

It's a small change, but to me it feels as if I'm redirecting blame from myself to the people that made these places inaccessible in the first place. I don't want people to just think that they're helping me, I want them to think that they're making up for someone else's wrongdoing. I want them to remember every time I've needed help as something someone else caused.

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big fan of a character seeking comfort in the arms of the thing that’s going to kill them. and i am psycologicalily normal too.

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When I say I'm undead I do kinda mean that. I've talked abt it before but I do genuinely see myself as a ghost. I don't think all(or even most) of me survived my depression at its worst and thats alright. Whatever was created from the dead remnants can keep living, as can the scraps of my younger self that made it. It's pretty cool actually. Am I literally dead, no, not really, but this spectral identity is very comforting and just feels right

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I like to respond to messages I'm seeing/acknowledging/agreeing with using a 🎵. It's like a thumbs up. Which is great because most of my friends understand what that means from me, so it gives me a way to communicate or acknowledge someone when I'm not especially verbal. It's also funny because without fail if I'm the first to respond to a ttrpg scheduling message, other group members will also react with a 🎵, so my nonverbal communication methods are becoming slightly contagious.

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my friend said his flight transmasc

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there's no such thing as a medicaid freeloader. everyone needs healthcare. it does not matter if you don't believe someone has a valid reason to not be working or in school- they are still a human being and human beings need healthcare. even if someone IS this strawman ""just lazy"" unemployed person, they deserve healthcare. sorry but i do not believe that the right to medical treatment without financial ruin is predicated on someone's "usefulness" to society. it's depressing that this is apparently too radical a belief.

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they’ll call her a villain for the most sane view of thinking children should stay alive and be with their families. i love you ms rachel

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every time a tgirl is convinced she has no worth beyond sex or kink an angel loses its wings

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