somewhat-competent-cryptid - Tumblr blog

somewhat-competent-cryptid · 2 days ago

Note

All of my self diagnoses have lead to eventual formal diagnosis once I fought for and got the tests required to prove it. Self diagnoses is valid and even NECESSARY for chronically ill and disabled individuals. Your doctors are simply not going to pursue testing farther then a blood panel if you’re not asking to go to rhumetology or neurology because you think something is wrong. They’re not going to run the correct one out of millions of medical tests if you don’t ask for it and tell them what is wrong and why you think that.

“I need a tilt table test because I think I have POTS, here’s all my symptoms” is a necessary part of healthcare. There’s a lot of look alikes for many illnesses and conditions, and doing my own research took the diagnostic time (average like. 12-15 years I repeat YEARS for POTS) down to only 2 years. I saved up to 13 years of suffering without proper care and understanding.

“I need to see rhumetology to get tested for hEDS” I’m now formally diagnosed and am a part time wheelchair user, a mobility aid I desperately needed. I’m no longer getting stranded at collage for 4 hours because my hip dislocated and I can’t set it myself. I can still get home and move and go places if a joint is out. Plus, just Existing in General is less painful and stressful on my physical form. This is a condition that also has a long diagnostic time and it can absolutely deteriorate your joints if you don’t take care of them properly. I would be so much worse if I didn’t advocate for myself and push for a diagnosis rather than just accepting that there was nothing wrong in the blood test.

Do you have a disability/illness (mental and/or physical) and are you annoyed with people who fake them/self diagnose?

I am diagnosed with a disability/illness and I am annoyed with people who fake them

I am diagnosed with a disability/illness and I am annoyed with people who self diagnose

I am diagnosed with a disability/illness and I am annoyed with people who fake them/self diagnose

I do not have a disability/illness and I am annoyed with people who fake them

I do not have a disability/illness and I am annoyed with people who self diagnose

I do not have a disability/illness and I am annoyed with people who fake them/self diagnose

I fake AND/OR am self diagnosed with a disability/illness

Final note: I am aware this is a controversial poll, and by posting it you would NOT have to agree with what I’m saying. I would also like to state that Factitious Disorder is a real thing and the people who have this genuinely suffer, and this is about the internet phenomenon more than to beat down people with this disorder. This poll is also NOT talking about if you ever faked being sick to get out of school/work, I am talking about something chronic. While some people may be offended, I think this is something that should be talked about more, as self diagnosing (NOT SELF SUSPECTING, THAT IS VALID) is a harmful practice, and people should being going to a doctor before saying they have something. Thank you for posting/listening, this is a topic near and dear to my heart as someone diagnosed who has been affected/hurt by this phenomenon.

#self diagnosis #heds #pots syndrome #disabled

239 notes · View notes

somewhat-competent-cryptid · 2 years ago

Text

Finally shifting this into a personal blog I’ll update with new @ for reblogging in a bit

0 notes

somewhat-competent-cryptid · 2 years ago

Text