My ass may be chronic but my pain is iconic.
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just finished my tilt table test. the doctor was actually surprised because all the positives he had lasted between 15-20 minutes before fainting and i lasted 1 minute and 30 seconds. i feel awful.
but anyways I FINALLY, AFTER YEARS, HAVE MY OFFICIAL POTS DIAGNOSIS!!!
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Some people don’t want to hear this but sometimes accessibility is not sustainable or eco-friendly. Disabled people sometimes need straws, or pre-made meals in plastic containers, or single-use items. Just because you can work with your foods in their least processed and packaged form doesn’t mean everyone else can.
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“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child
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“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness
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Being neurodivergent and chronically ill is crazy because you already have issues with executive functions and then your body hinders you even more. AND your sensory issues are heightened by the pain you feel.
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i hate when i, a completely healthy person (very chronically ill), get sick (flare up) for no reason at all (i exerted myself way past my limit just cuz i didn’t wanna be “annoying”)
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stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.
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Remember that it is officially disability pride month now. it is just as important as lgbtq+ pride month. we exist. we are being hurt by the system as it is now. we will not be silenced or placated. disabled is not a bad word.
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chronic illness is so fucking annoying because what do you mean I was completely fine and able to do tons of work yesterday with no problem but today I can't even stand up from bed without feeling like I might collapse. like what do you MEAN
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Irritates the hell out of me when people respond to a post or comment like, "everyone does this, it's not just [disorder/illness/neurotype], it's called being a person."
Yeah and everyone coughs once in a while but it doesn't mean someone with pneumonia doesn't cough?? It doesn't mean pneumonia doesn't cause coughing??
Everyone gets dizzy once in a while but it doesn't mean vertigo doesn't exist??
Just about every symptom or group-common trait is going to be experienced by people who don't belong to those groups or have that disorder. It's about the frequency and intensity with which that symptom or trait comes up.
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