#I LOVE CRANIOFACIAL DUPLICATION!!!!!!!!!

[cicada-learns-science]

PARTIAL DIPROSOPUS MENTION!!??????

OMG OMG OMG OMG OMG

everyone please look at this cat my brother found in the philippines - he's got 2(two) noses!

[valen-dreth]

Oh my god I used to watch weird true and freaky all the time there's one episode that still lives in my head, it wasn't even about actual animals it was about people who did bodymods to look like animals like they had the tiger man and the lizard man and also just this one guy in a fursuit?? Anyway I've never seen discussion of this show online and I loved it as a kid so I just have to rant about it a little bit

i remember the tiger guy from ripleys believe it or not i didn't know he was on weird true and freaky too :0 that was where my interest in craniofacial duplication came about, i wanna say i had first tuned in on an episode with a two headed calf or MAYBE frank and louie? both? anyway very cool i didnt think anyone else had ever heard of it either, lol

[wondergirlsaida]

Over the years I learned how to accept and love myself for who I am and what I am I was born with my rare genetic disease called Partial Trisomy 8q Duplication Syndrome another name for my disease is Partial Trisomy 8q

I was born months early I was born premature and I had to get to the NICU

when I was 2 years old I had surgery done on me cause I had a ring defect a ring defect is a condition that affects the lungs and makes it hard to breathe it is Life threatening

If I did not get that surgery I would have died

For 20 years I was misdiagnosed with my genetic disease I was living my life thinking I had a genetic disease called Trisomy 8 Mosaicism Syndrome and Triple X Syndrome

When I got older I started struggling more with all the things I got from my genetic disease such as communication and interaction

I also was dealing with my craniofacial abnormalities as well

I was having a hard time dealing with my craniofacial abnormalities I got bullied over it severely I looked at myself in the mirror and I thought I was ugly and hideous looking for having my craniofacial abnormalities

I ended up self harming cause the bullying I got

I thought I had to look a certain way to look and feel beautiful

I ended up researching plastic surgeries and many more things cause I was ashamed of how I looked

I was feeling overwhelmed and depressed

I ended up getting connected to my genetic doctor in San Francisco so I can get the correct diagnosis and name for my genetic disease

I also wanted to learn more about everything else too

At 20 years old I found out that my genetic disease is called Partial Trisomy 8q Duplication Syndrome for short Partial Trisomy 8q

I also found out how it affects me

I also found out more about my craniofacial abnormalities and my growth stature too

My genetic doctor told me that I wasn’t no candidate to get surgery to fix my craniofacial abnormalities

It took me a while to accept that I couldn’t do anything to fix my craniofacial abnormalities

Years later I have learned how to love myself more than ever I love myself for having my craniofacial abnormalities

I love myself for having my genetic disease and all my other rare diseases and my disabilities

I also learned how to embrace myself and my differences

I’m beautiful just the way I am

I’m beautiful just the way I am with my scars

I’m beautiful just the way I am with my craniofacial abnormalities

I’m beautiful just the way I am with everything

I am me

#FaceOfRare