acestims

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Being chronically ill is like

“It’s fine”

“It’s fine”

“It’s fine”

*complete mental breakdown because you can’t do this anymore*

“It’s fine”

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IT’S SCOLIOSIS AWARENESS MONTH

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wheelchair accessibility I never see talked about

table height

aisle width

center vs side poles for tables

spots to sit in rooms/adutioriums/etc. that aren't blocking aisles

sink height and sink cabinets

toilet height

cash register height

the height of just so much, I could go on

benches/trash cans/scooters/bikes & bike racks/restaurant patios/etc. taking up sidewalk space

light poles placed in the center of the sidewalk

tilted sidewalks

lack of cross walks (jaywalking is not an option for me!)

overgrown brush over sidewalks

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I think a lot of autistic taking-things-literally goes under the radar because what the diagnostic tests and shit ask about is not what that generally looks like in an adult and often not in kids either and much more importantly it’s not what generally actually causes problems in real life instead of being irritating for caretakers or funny to bullies or easy to diagnose

I have absolutely no issues understanding metaphors or idioms. When someone says their heart is on their sleeve they mean they’re emotionally expressive and openly display their feelings, not that they have a chunk of cardiac tissue on their shirt. I very rarely have issues with sarcasm. I sometimes have issues telling when someone who’s said something mean is about to say “just kidding”, but tbh I think that’s more on them than me.

BUT

My grandmother asked me “Do you know when the trash was taken out last?” and I said “I think Eliot took it out yesterday” and a few hours later she yelled at me for “not taking out the trash when I asked you to” and I was like???? You didn’t ask me????

I dread filling out forms and am crap at filling out diagnostic tests or personality quizzes because there are always questions I don’t know the exact answers to (how am I supposed to know what day I got dental surgery seven years ago?) or don’t understand exactly what they’re asking or the wording’s unclear and they could mean this or the wording says this but I’m pretty sure what they actually meant was this and should I answer what they said or what they meant, and how does everyone else just whip through the form when surely they can’t know all the answers either? Does everyone else remember the day they got dental surgery seven years ago?

I get tangled up by bureaucracy because the rules on the website say that for this you need that and for that you need the other and for the other you need something else for which you need the first thing, and I go in circles for hours or days or weeks or months or years because their stated rules say there is no way to get what I need, and when I talk to somebody else they’re like “just call them?” and I’m like “how could that help? the rules say that what I’m trying to do is impossible”

And all of that? That’s how “taking things literally” ACTUALLY affects your life as an adult. It’s not “haha you think ‘getting under your skin’ means parasites”. It’s “you have real difficulty functioning in the world because everyone else is conveying things through implication and assuming that you know that rules are flexible and questions are approximate and you’re supposed to lie on job applications, and you don’t”.

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poll for mobility aid users.

a lot of people talk about shitty things strangers say to us, but i feel like that lets friends and family and loved ones off the hook so

think about the worst thing someone has ever said about your mobility aid. like the thing that sticks with you and pisses you off every time you think about it. if there's more than one, review the categories, and pick the one that fits the majority

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the worst part about ocd and ocd-like tendencies is that you think hyper-analyzing your thoughts and constantly psychoanalyzing yourself will fix you but that's actually part of the disorder. it's the disorder. disordering.

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Hey all! There's a campaign for eSims again which are in dire need!!!

For donating at least 16$ you can get 237 games in one bundle, valued at almost 900$!

They are donating all proceeds to Crips for eSims for Gaza!! Who have helped donate and top up over 18 000 eSims for people in Ghazzah!!

This campaign ends on May 20th, and they hope to make 20 000$!!!! Please help in whatever way you can. Spread the word, donate, or whatever else!

[acestims]

I've seen basically two response arguments to Kennedy's slurs about autistic people being unable to pay taxes, have a job, play baseball, go on a date, write a poem, or use the toilet.

Both the responses are good and necessary, but I think they're incomplete. The two response arguments are essentially: 1. "That's not true, there are plenty of autistic people who have jobs and go on dates and play baseball," and 2. (largely in response to 1.) "Autistic people deserve acceptance and dignity even if they can't pay taxes or write poetry or use the toilet; people's value isn't determined by their abilities or productivity."

And, again, both of these responses are true and good and necessary. But what I'm not seeing people talk about enough is why Kennedy listed those specific skills, and what he's trying to imply with them. Because, see, when people are reduced to a dehumanized stereotype, "Not everyone is like that dehumanized stereotype" isn't sufficient, and neither is "Even people who are like that dehumanized stereotype deserve respect." The problem is the dehumanization. So let's look at the list of things we supposedly can't do, which Kennedy is using to conjure an image of "Inhuman Unthinking Blob."

Having a job. This is the big one. In American culture, your value, your personhood, is solely dependent on Your Job. Are you a valuable cog in the capitalist machine, or are you a cheap cog in the capitalist machine, or are you so worthless you're not even in the capitalist machine, and therefore have no reason to be alive? So it's good and necessary and important to spell out "A person doesn't have to have a job to be a person with dignity and rights." But there's a larger question out there, which is: What, exactly, constitutes "a job"? Yes, absolutely, everyone should have dignity and rights (and material needs like guaranteed housing, food, and consensual healthcare). But also, most disabled people, including ""severely"" disabled people, can and do perform productive labor benefiting their communities. It's just often labor that capitalist society doesn't classify as "a job," like caregiving, studying, or making art. It's important to say that people shouldn't need "a job" in order to deserve rights or resources. It's also important to point out that disabled people have been doing labor this whole time, just without the dignity, rights, or pay associated with "a job." In a socialist utopia where everyone had their material needs guaranteed, labor would still be done, and a lot of it would still be done by disabled people. That's important. Disabled people's contributions to society matter. And erasing that is something ableists do on purpose -- excluding the labor done by disabled people from the category of "job" is integral to excluding disabled people from the category of "productive" and thus the category "worthy of life."

Paying taxes. This is the most transparently ridiculous one, because absolutely everybody in the U.S. pays taxes. Poor people pay taxes (too much). Rich people pay taxes (nowhere near enough). Undocumented immigrants pay taxes. You buy a Snickers? It's priced $1.79 but you pay $1.92. That's a tax. You live somewhere? You're paying property taxes. You rent your home? How do you think your landlord pays their property taxes? From your rent. You're paying property taxes. You have a crappy underpaid minimum wage job? You're paying FICA. Everybody pays taxes. What Kennedy probably means to imply is "They're too poor to owe federal income taxes." Politicians love pretending that "taxes" means "federal income taxes" so they can claim to "lower taxes" while shifting the tax burden somewhere else (cf. Trump's attempt to claim that tariffs aren't taxes). And. And also. There's another subtle implication in there, that I see a lot from parents and ableists. Because of the deep intersection of ableism and classism, Kennedy is implying "They're too poor to owe federal income taxes" (therefore they're inferior) but also "They're not smart enough to do something complicated like file a tax return." When ableists talk about disabled people who "can't take care of themselves" or specifically "can't pay their bills" or "can't pay taxes," they're intentionally trying to conflate an economic state (having enough money to pay bills/taxes) with a cognitive ability (having the skills/executive function to manage money, budget, pay bills on time, or file a tax return). Kennedy probably doesn't file his own tax return either. I'm sure he has an accountant for that. Presumed-neurotypical people are allowed to do that. The world is full of rich people who lack executive function or money-management skills, whose wealth insulates them from the consequences of that, because they can either afford to just lose money, or they can afford to hire someone to handle it for them. The world is also full of poor people for whom one missed payment has ruined them. The world is also full of disabled people for whom one missed payment has gotten them declared mentally incompetent, institutionalized, or placed under guardianship -- by abled family members who probably hire an accountant to manage their own money. Again, all this is deliberate. Kennedy and other ableists/classists/eugenicsts are intentionally trying to conflate "lacks money," "lacks money management abilities/skills," and "lacks General Intelligence" as one more-or-less interchangeable phenomenon (Note: If you've read this far and haven't figured out my angle yet: There is no such thing as "General Intelligence" and the very concept is harmful).

Write a poem. Again, this is deliberately ambiguous wording -- pretty much anyone can write a poem, including people who can't write or speak. Have you ever expressed an idea in which the words you used had an additional meaning on top of their literal meaning? Boom, you can write a poem. Maybe not a good one. But Kennedy didn't say that autistic people's poetry is bad -- plenty of neurotypical people's poetry is bad too, after all. There is a somewhat positive stereotype floating around that neurodivergent people are creative. We may be tragic, burdens on society, our parents' heartbreak, worthless, stupid, subhuman, but at least we're creative. Probably due to being more animal-like, "closer to nature." And neurobigots like Kennedy absolutely hate this stereotype. No matter how much dehumanization the "positive" stereotype is rooted in, we cannot have any positive attributes at all. They must never let us forget that we have no redeeming value whatsoever. We must be rendered as completely lacking in thought, feelings, expression, and creation. I'm seeing some echos of 18th century racism, too -- a common belief among 18th century white Europeans was that even if non-Europeans were superficially clever, they could produce no "higher culture," no great art or poetry or literature, because they were intrinsically a lower tier of human. This seems to be the root of Kennedy's implication -- not that autistic people "can't" write poetry (anyone can), or that autistic people are bad at writing poetry (most beginners are), but that an autistic person's creative output cannot constitute true poetry, true "high culture," because it comes from an inferior mind.

Play baseball. This is an especially slippery one, because like writing poetry, it's a learned skill with gradations of skill level, not an intrinsic ability that someone does or doesn't have. Most autistic people aren't pro-level baseball players, but neither are most allistic people. And again, Kennedy didn't say "Autistic people are bad a baseball." He said that we would never play baseball. "Has ever played or will ever play baseball" is such a ridiculously low bar that even I can meet it. Technically speaking, I can play baseball. I have played baseball, in school gym class. I know how! You sit there minding your business until it's your turn to stand up, and then someone hands you a bat, and then someone throws a ball, and you're supposed to try to hit the ball with the bat, and in theory, after you fail three times, you're supposed to be allowed to sit back down again and go back to imagining wild self-inser fanfic, but the coach gives you "extra tries" out of pity, so you have to humiliate yourself with five or six attempts instead of three. Yeah. I can play baseball. So what's Kennedy going for with this one? Baseball in the U.S. is associated with two things: American identity, and idyllic midcentury childhood. If autistic people can't participate in America's Pastime, can we really even be Americans? Do we really count as citizens? I don't think Kennedy is personally, ideologically all that committed to xenophobia himself; he's just hitched his wagon to a deeply xenophobic administration because they indulge his medical conspiracy theories. But he knows how to align his goals to the administration's. He knows that his boss is deeply committed to narrowing and restricting who counts as "an American," who's not really part of "our culture," who's not really a part of baseball and hot dogs and the Fourth of July, if you know what I mean. Okay, okay. Maybe I'm reaching with this one. But I'm definitely not reaching with the other association he's going for: Idyllic Midcentury Childhood. All kids play baseball. By which I mean, all boys play baseball. I'm not sure Kennedy knows that girls can play it too, or that he cares. The point is, baseball is part of childhood, and autistic people are never children. We don't play, we don't learn, we don't go through developmental stages, we're just forever Mindless Blobs. That's why things that would be considered cruelty if done to neurotypical children aren't cruelty when they're done to us. We're not really children. We never become adults, either -- how can we, if we don't go through childhood first? You can tell we're subhuman because we don't go through the universal experiences of Real People Life.

Go on a date. Okay. This one. This is the one where I get actively angry at the well-meaning, "inclusive" responses. "Just because an autistic person has high support needs and can't do XYX doesn't mean --" no. Stop right there. There is no such thing as a disabled person who "can't" date. There is no impairment or disability that prevents someone from dating. There are people -- autistic and otherwise, disabled and otherwise -- who for whatever reason, choose not to pursue dating. Maybe they're aromantic, maybe they're loners, maybe they have religious objections, maybe dating just isn't something they're interested in. Fine. That's their choice. But there is no such thing as a disabled person who "can't" date. There is no such thing as a disability that renders people incapable of romantic relationships. There is no such fucking thing as being "too disabled" or "too severe" or "too profound" or "too high support needs" to have a romantic relationship if two or more people want one. That is not a thing that exists. That is a thing ableists made up. There is no such thing as an autistic person who "can't" go on a date. There are autistic people who aren't allowed to go on dates, because their family or caregivers control them, infantilize them, restrict their freedoms, or treat them as mindless blobs. But all disabled people (yes, all) can pursue romantic relationships. All disabled people (yes, all) deserve the human right to pursue romantic relationships if they choose to. With other disabled people. With abled people. With whomever. And yeah, dating doesn't necessarily have to be romantic or sexual, but let me be perfectly clear -- disabled people, autistic people, "high support needs" autistic people have a right to have sex, too. A multiply disabled autistic person who needs 24/7 assistance deserves the absolute, unreserved right to have wild, kinky, balls-to-the-wall, whole-chicken sex with the entire starting lineup of the Detroit Lions, if xe so chooses to, and if said Lions are on board. We should not accept the premise that there is any such thing as a disabled person who "can't" go on a date.

Use a toilet without assistance. This is the Kennedy playbook trump card, but unlike some of the other claims, this one is actually true. There's no such thing as a disabled person who "can't" date, but yes, there are in fact plenty of disabled people, including autistic people, who need help with using the toilet. So what's Kennedy going for here? He's trying to evoke two things: Disgust and infantilization. We have a visceral disgust around excretory functions. Needing to eliminate waste reminds us that we're animals made of meat, not the higher intellectual beings we pretend to be. Everyone poops. So we do it in private, we describe it with euphemisms, and if someone needs help with it, well, they're not keeping up their end of the social compact to collectively pretend we're not animals with animal bodily functions. So people who need assistance with the waste process are disgusting, subhuman, a violation of imagined purity. And of course, they're babies. Babies wear diapers. Babies need help using the toilet. So an older child or adult who needs diapers or toileting help is basically a big baby. We have entire election cycles centered on "Which candidate has incontinence issues?" as a proxy for "Which candidate is a big baby unfit to lead?" as though someone's bladder leakage has any bearing on their wisdom or policy positions. And of course, since people who need help with toileting Are Babies, we're meant to assume that they can't do any of those other things, either. They can't even use the toilet, let alone write poetry or go on a date. In reality, plenty of people who need toileting help are writing poetry and going on dates. One of the biggest misconceptions that holds disabled people back from education or, in some cases, from basic communication, is this myth of linear "developmental stages" -- that if someone isn't "smart enough" to master an "easier/earlier" skill, then they can't possibly be "smart enough" to master a completely unrelated skill that some abled person thinks of as "more advanced." This is literally the primary barrier to communication access for speech-disabled people, and the reason nonspeaking people who type to communicate are so often disbelieved -- if someone isn't "smart enough" to master a "baby skill" like talking, they can't possibly be "smart enough" to read and write! Nevermind that for many speech disabled people, reading and writing are much easier than speaking. And if someone isn't "smart enough" to use the toilet unassisted, they can't possibly learn any advanced topics at all, because they must the "mind of a baby." (The only people with the minds of babies are babies. A 50 year old with incontinence has the mind of a 50 year old.)

So. To sum up: Kennedy is intentionally evoking the concept of autistic people as The Abject Unthinking, and neither "Plenty of autistic people can do those things he says we can't do" nor "Disabled people deserve respect and dignity even if they can't do those things" fully addresses the dehumanization he's trying to conjure. Maybe I'm just jaded, too, about calls for "respect and dignity" for disabled people that don't challenge the concept of The Abject Unthinking. I see behavioral therapists, institution staff, and parents pursuing adult guardianship talking about "respect and dignity." I see articles about how to restrain and forcibly drug people with "respect and dignity." Ableists literally murder disabled people in cold blood in the name of "respect and dignity." I don't know what "respect and dignity" means to these people, but it's sure not synonymous with "bodily autonomy" or "civil rights." By this point, I consider "respect and dignity" about as meaningful as "thoughts and prayers." All disabled people can, and deserve the right to, express themselves. All disabled people can, and deserve the right to, make their own decisions about their own bodies. All disabled people can, and deserve the right to, participate in their communities. All disabled people can, and deserve the right to, pursue relationships with other people of their choice.

[acestims]

Getting really tired of people screaming at wheelchair users for complaining about inconsiderate people because "what if the person taking your space is invisibly disabled!!!!"

What if you just let people complain once in a while? They're not complaining AT the person, they're complaining on their own damn blog.

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Fake claimers are a much bigger threat to disabled people than fakers ever will be.

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I DESPERATELY needed someone to tell me this as I grew up in leftist online spaces. So now I am going to tell YOU:

If you

Check what you sent over and over to make sure you didn’t say a slur instead of “hello how are you”

Fear that someone will find you thinking not-leftist-enough thoughts and will call you out and ruin you

Feel you have to make your intentions clear and over-explain your actions

Find yourself consistently resisting the urge to engage in reassurance-seeking WRT being a good enough ally to marginalized people

Stay up late endlessly debating political ethics in your head

Have a set of actions that you take after discovering you made a morally wrong decision so that you can atone, which you rely on for reassurance that you are not a bad person

Would rather not make a decision at all than make a decision that is the lesser of two evils, but is not morally pure

then I am gently, but firmly, requesting that you look into moral scrupulosity OCD.

[acestims]

Talking of disability aids, I did get this cool spoon recently which you can use without any grip at all. It has a long handle which can be bent to fit on your arm and once you get it right it's really quite effective.

At the moment it lets me about half a meal without help (apart from putting it on) in certain situations with my arm supported, and I can even use it with my hand splints on

ID two photos showing an adaptive spoon with a long, curled grey handle. In the first Photo it’s is lying on a tray next to a bowl of rice and an adapted mug. In the second it's been around echos wrist while they eat rice sat in bed with their arm supported by a pillow / end ID

( the company I got it from it's called Active hands)

[acestims]

I fucking hate that the general response to RFK Jr's eugenist take on autistic people is "autistic people do pay taxes, autistic people do work, autistic people do date!"

Some autistic people don't and that shouldn't make them less worthy of life. Some autistic people do need constant help and support and that shouldn't make them less worthy of life.

Once again we're falling in the right wing trap of :

They make a hateful, fascist statement

Instead of focusing on the fact that it is hateful and fascist we try to show them that they are factually wrong

We throw our own allies and the most vulnerable of us under the bus in the process

We legitimise an only slightly less hateful, fascist view as we go

They have completed their goal of making us accept the still hateful, fascist second version, hurrah. What a victory.

Right now what we're getting to with that is that autistic people who can work and pay taxes are okay, and the others aren't. Fuck this shit.

Same thing happens with the people who are being deported ("they have a visa!", "they didn't even have a criminal record!" -> even if they didn't have a visa, even if they did have a criminal record, deporting them and detaining them in what's essentially a concentration camp wouldn't be okay, you absolute tools of fascism.)

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Unpopular opinion

I don’t want a self driving wheelchair that can go up stairs. I want ramps elevators, and curb cuts.

I don’t want a solution in 20 years, I want it now. I wanna be able to go to the mall with my friends and not have to worry about stairs. I want to go the movies and actually chose where I sit. I want to go to a park without having to parkour my way through cracked pavement and curb drops.

I want accessibility and I want it today.

[acestims]

People with low spoons, someone just recommended this cookbook to me, so I thought I’d pass it on.

I always look at cookbooks for people who have no energy/time to do elaborate meal preparations, and roll my eyes. Like, you want me to stay on my feet for long enough to prepare 15 different ingredients from scratch, and use 5 different pots and pans, when I have chronic fatigue and no dishwasher?

These people seem to get it, though. It’s very simple in places. It’s basically the cookbook for people who think, ‘I’m really bored of those same five low-spoons meals I eat, but I can’t think of anything else to cook that won’t exhaust me’. And it’s free!

[acestims]

Doctors are like: ughhhhh. You're confusing. Come back if you die