chronicdivergent
chronicdivergent
Neurodivergent and Chronically Ill
407 posts
Last active 60 minutes ago
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chronicdivergent · 9 days ago
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it’s crazy how different you get treated in a mask but what really gets me is that when people ask why I’m masking, I’ve stopped saying I’m immunodeficient and started saying I have an immunodeficient family member at home. I am not exaggerating when I tell you this has 100% improved every single encounter I’ve had with anti-maskers. i’m not exaggerating in the slightest.
i used to tell people i’m immunodeficient and they’d ask invasive questions about my diagnosis, whether my parents kept my childhood overly sterile, whether I was vaccinated as a child (with the implication that it would have been bad if I were).
Now that I say I have an immunodeficient family member at home, people smile knowingly and say, “oh, well you do what you have to do,” and “my mom went through chemo. I remember how hard it was to do all the precautions” and “that’s so kind of you.”
if i tell someone i mask because i’m disabled, i’m assumed to be the weak link in our society, a burden to my family.
if i tell someone i mask to protect a disabled family member, i become the burdened, compassionate caretaker deserving of sympathy. how sad that i must limit myself to protect someone i love. how heroic that i choose to do so.
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chronicdivergent · 9 days ago
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There are sadly always other factors that can limit the accessibility of archery, but you might be surprised by how adaptable it can be!
Archery GB have some useful info if you’re looking to get involved in disabled archery
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chronicdivergent · 12 days ago
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if you ever find yourself thinking “wow I scraped the bottom of the barrel with my energy with that and came out okay!” that’s the devil talking. you did not come out okay. you borrowed energy from the future. you will repay it if you don’t rest and replenish the borrowed energy first.
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chronicdivergent · 15 days ago
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good news i'm the most fuckable person at this vehicular manslaughter
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chronicdivergent · 25 days ago
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it’s weird how a big part of memories from my life are just gone. i know i don’t talk about it a lot. i just think about it sometimes. how was i okay with that? i feel like im stuck missing something i don’t even know.
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chronicdivergent · 2 months ago
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“If you have time to be on social media, you also have time for…” “If you have time to watch Netflix, you also have time for…” Yeah, but do I have the energy for it? Do I have the emotional and mental capacity for it? Am I pain-free enough for it? Can I focus on it? Can I do it without leaving my bed? Can I safely do it without risk of (physically or emotionally) injuring myself by pushing past my boundaries?
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chronicdivergent · 2 months ago
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THANK YOU!! As someone who has been chronically ill since childhood, this is all stuff I've had to learn about. So seeing the new misinformation around hormones and cortisol and such just...is so painful. Like I had chronic stress to the point of seizures. Guess what fixed it? NOT ANY FUCKIN LEAFY GREENS. The only fix was to lower my stressors and do therapy to get better at regulating my emotional stress response.
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Join me on my journey to finally unbalance my hormones, toxify my body, boost my inflammation, maximize my cortisol and absolutely destroy my gut health.
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chronicdivergent · 3 months ago
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JOINTS IS PAIN
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chronicdivergent · 3 months ago
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In case anyone finds it helpful because mobility aids are horrifically expensive and inaccessible…
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And for those people who have access to mobility devices but might benefit from a second chair they can abuse without risking expensive damage…
Erik Kondo has made a website, Open Source Innovations, that details plans for DIY wheelchairs. These wheelchairs can be made from common materials like wood, plastic, and pvc. They are lightweight and can be custom fit to the user allowing from the same degree of movement you would get from a custom chair. And they are durable and easily repairable. (he has been stress testing his latest design by dropping it down stairs, dropping it out of a car, launching it across a driveway, and throwing it off a deck). Its 12lbs and I think he said its was in the $200 ish range for parts.
He also is working on cheap, open source, accessible designs for beach chairs, off road chairs, motorized attachments (think smart drive), and so on. Plus he skateboards in his wheelchair. Cool dude, helpful info, pass it on.
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chronicdivergent · 3 months ago
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joints will see you taking a step & be like "i bet i could improve on this with my Cool New Trick." & theyre wrong
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chronicdivergent · 4 months ago
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So I reblogged that “vaccines cause adults” post from @copperbadge and predictably my inbox has gone to shit with a handful of people asking me how I can “trust” vaccines and if you’re looking for me validate your fear mongering over vaccines causing autism, I’m afraid you’re in the wrong place.
I’m the bitch that has anaphylactic reactions to vaccines due to my mast cell disorder and still turn up for my Covid booster shots with my epi pen in one hand and a fistful of Benadryl in the other.
I had reactions to all my MMR boosters and every other booster I’ve ever needed and I still show up because I look at the choices and I prefer the risk of potential immediate death over potentially getting shit like measles and spreading it to the wider community.
The only one I don’t get is the flu shot because the speed at which I react is terrifying and it’s in my file that I’m not allowed it anymore. Doctors made that decision for me, I didn’t.
My MCAS might make me a crunchy hippy dippy bitch against my will, but I’m a science based crunchy hippy dippy bitch and vaccines do not cause autism.
Measles will fucking kill your kid though.
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chronicdivergent · 4 months ago
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Wild concept that shouldn’t be wild and the coldest take ever: disabled adults are *adults* and not just children trapped in adult bodies
Disabled adults have sex
Disabled adults do drugs
Disabled adults curse
Disabled adults get piercings and tattoos
Disabled adults can make adult decisions and act and behave like adults because we are adults
It’s just so weird for people to constantly infantilize me all because of my mobility aids when I’m not a child!!!
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chronicdivergent · 4 months ago
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A disabled person being able to do something does not mean:
They can always do it under any circumstances.
They’re not really disabled.
Anyone else with the same disability can also do it.
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chronicdivergent · 4 months ago
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it’s so frustrating when you mention something related to your disability and then someone takes it as a joke, but when you tell them you’re serious they go from seeing it as funny to seeing it as weird
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chronicdivergent · 4 months ago
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uh oh.
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chronicdivergent · 4 months ago
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What they don’t tell you about DID is that your brain will force you against your will to become both the city of omelas and the child whose perpetual misery allows everyone else to be happy. It’s totally possible to free the child and have everyone else be okay btw but your doctor doesn’t believe that ‘omelas child’ is a real condition.
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chronicdivergent · 4 months ago
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from @.mprnews on Instagram.
Not sure how many of y'all saw this, but the combined misogyny-ableism-transphobia was off the charts. I am glad that he did get his top surgery, has support, and that its pursuing it's goals to advocate for other disabled + trans people.
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