crowo - Tumblr blog

[crowo]

I don't know who needs to hear this but:

-"it only hurts a little" is still pain

-"I can ignore it" is still pain

-"I can cope with/manage it" is still pain

-"it's bearable" is still pain

-"I can push through it" is still pain

-"it doesn't hurt that much" is still pain

-"it doesn't stop me from doing x" is still pain

You don't need to be in agonizing pain to be in pain.

[crowo]

As a wheelchair user I'm trying to reframe my language for "being in the way."

"I'm in the way," "I can't fit," and "I can't go there," is becoming "there's not enough space," "the walkway is too narrow," and "that place isn't accessible."

It's a small change, but to me it feels as if I'm redirecting blame from myself to the people that made these places inaccessible in the first place. I don't want people to just think that they're helping me, I want them to think that they're making up for someone else's wrongdoing. I want them to remember every time I've needed help as something someone else caused.

[crowo]

wut is a smoov?

the smoov is a rear mounted power assist! it looks like this:

[ID: a picture of a smoov and the control dial sitting in the foam lined box it came from. the smoov is a black angled metal box that has a large wheel attached to the back. to the right of it is the control unit, which is a circular device with a mount. there are charging cables next to the smoov. /end ID]

it attaches to the back of my wheelchair and powers my chair without me pushing, i just have to steer! it's pretty neat and extremely helpful as someone who can't self propel all the time especially outside.

[crowo]

Wishing all undiagnosed/partially diagnosed people a very doctors listening to you and providing you with more testing than a blood draw and even possibly providing treatment 2024

[crowo]

[crowo]

5 year anniversary of the miette post \o/

[crowo]

you're allowed, love. you're allowed to hate that you can't do things. you're allowed to despise your own family for denying you anything. you're allowed to be spiteful and you're allowed to be irritable.

you didn't choose this.

and you're allowed to yell.

scream, love.

fucking scream.

I DESERVED MOBILITY AIDS.

I DESERVED HELP.

I DESERVED A BETTER COMMUNITY.

because you did, you did deserve those things.

you're ill.

[crowo]

[crowo]

Miss Piggy's Guide to Life Photos

[crowo]

[crowo]

autisticafghan for your blocklist, and see their latest post if you don't understand

ewww thank you.

Free ableist blocklist everyone. Is first of all insisting that autism isn't a disability, and is then saying that being disabled means "putting yourself in a victim box". And is saying that people who are "actually disabled by autism" don't use the internet.

(Sarcasm)Because erasing the existance of autistic people who don't support your ableist hyopthesis is definitely the right thing to do.(/sarcasm)

[crowo]

[crowo]

my cane should part waters. the clack of it on the pavement turning heads, a loud harbinger of my arrival. my cane should part seas of people. people should flow out of my path as i approach like the wind cuts through reeds, parting channels of space between the ruckus of the crowd.

i shouldn't trip over uneven cobblestone, over outstretched feet, over unmoving blockades. my path is sacred. my limping gait moves proudly on despite how difficult it gets to breathe in the swell of the crowd.

the swift wheels of my chair slow to a stop at unmoving bodies and my booming voice goes unheard. the metallic taste of rage becomes bitter on my tongue. peering eyes watch my movements, condescending voices talking down to me. I am surrounded on all sides by staircases and narrow doorframes and unsafe sidewalks, where sidewalks even exist. the safety of my home becoming like a prison when it's so impossible to leave its walls.

my chair should move buildings. my chair should force the doors wider, make the stairs into flat ramps for my wheels. my chair should move mountains from my path. it should fill the potholes in the streets and repave the walkways. as i roll, my chair should bring a rolling tide of freedom. no more fear of stares and opinions and judgement. only acceptance and open arms and parted crowds to allow my wheels to fly free.

[crowo]

I love you disabled people who should really use mobility aids but don’t yet have the money or confidence to do so

[crowo]

i think every disabled person should be allowed to punch their doctors in the face at least once and face 0 legal consequences

[crowo]

i created a handy guide

[crowo]

Disabled people deserve government assistance and benefits. Even if they have incomes. Even if their spouses have incomes. Even if both they and their spouses have incomes.

Because being disabled is fucking expensive, even with affordable healthcare, even under the best circumstances and in the most accessible situations.