just a dizzy little kitty 🐈 he/him 🐈 transgay 30+ 😵💫 POTS/IST (diagnosed) 😵💫 EDS (undiagnosed currently)
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chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier
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Eepy 🫠
Glitter stickers coming to my shop on 4/12 for a limited time! 🥱💙
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the one positive chronic illness thing is that it feels really good to be completely exhausted and then crawl into bed. I love cozy bed time. not that great that it’s happening at 4pm because I walked down the street to buy screws at home hardware, but hey, what can you do.
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Why is the adhesive for heart holter monitors so common to cause rashes and be itchy? Like....you'd think they'd work on that.
This is to say OMG MY HOLTER ITCHES SO MUCH I WANT TO SCRATCH IT SO BAD HHHHHHHHHH
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Having a very VERY dizzy day but my new compression socks make me feel so cute so 🥺 that's good
Strawbies!!!
#chronic illness diary#pots syndrome#compression socks#the brand is vim & vigr btwwww#also say hi to my cat. his name is Charlie and he's huge and very orange
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doctors hate when you do this: being a patient
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me when my disabilities disable me:

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I've started taking Verapamil for my IST and borderline/high blood pressure but currently it's making me feel like shit :(
Every single joint and muscle is so stiff, my coat hanger pain is real bad, and I feel like it's making my blood pressure higher???? Which makes zero sense.
There's also a chance I'm just in a flare on top of taking this new med but wtf.
It does kind of seem like it's lowering my heart rate but not by much. Like 6-10 BPM. Which is something but like....
It's literally day four of me being on it though so....I'm just being whiny because I feel like garbage. It could very well start working soon.
#chronic illness diary#pots syndrome#inappropriate sinus tachycardia#booo i feel ickyyyyyyyy#its also making me suuuuuuper dizzy#and i wish i had some stability device now hhh
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this tweet has given me more motivation to stretch than any "it's good for you" post ever will
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"Why am I so fatigued" sometimes I forget I literally have the fatigue disease or something.
#literally me#I'll be on call with my bf and be like ''ugh why am i soooo tired??? 😩''#and he's just like ''babe....you have The Fatigue™''#😫😫😫
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benches are not enough, they need to have beds in public so we can take a nap
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Best but also weirdest part of a flare up is when it ends as suddenly as it started.
Best because thank fuck it's over the pain is gone.
But weirdest because what started it? No idea! What fixed it? Also no idea! Will it happen exactly like this again? Probably, because it's happened exactly like this before! Can I prevent it from happening? Not if I have no way of knowing what triggered it! 🙃
#by ''the pain is gone'' i mean the extra and excruciating pain that comes with a flare up vs the low level daily pain im used to#also hey maybe i wont sleep for 14 hours now#that'd be nice. could actually go outside and breathe fresh air maybe?#chronic illness diary
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i wish the star trek medical instruments were real i would love to sit on a bed that shows my doctor how much pain im in and then they scan me with a little blinky device that makes a funny noise and know exactly whats wrong with me and then give me a pill that makes me regrow a kidney or whatever the fuck
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Disability will have you thinking shit like “I’m not even that disabled. I can manage as long as I limit myself to very specific careers, never go shopping for more than an hour or two at a time, keep my plans open so I can cancel and stay in if need be, and only go out a few nights per week at the most”
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Why did I agree to go to the children's museum tomorrow when I've had two flare days in a row? Idk man, I'm tired of being stuck inside and being sad. There's lots of places to sit. 🤷
I can also still cancel if I feel like shit in the morning, right?
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