I am curious to comprehend the profound essence of the experience that one might undergo upon being reborn following a ... ..- .. -.-. .. -.. . incident.
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the recent surge of articles on severe ME is shattering my heart. we’re looking at a live, ongoing portfolio of the NHS’s failure to protect young ME patients, the same failures that cast a shadow over both my childhood and my current life, and it’s so wild that things aren’t changing. there’s no repair, no apology for the highly preventable suffering or the deaths, which are mostly young women.
the improper care of ME patients isn’t because of a lack of funding, it’s because of ignorance & stubbornness. the bare minimum of appropriate care to prevent a severe ME patient from getting worse is to allow them to be somewhere dark, quiet, lying down, hydrated & fed, and somehow the NHS can’t even provide that. my main shred of hope is that this is finally being reported and i wonder if that will be the catalyst for a little bit of repair. i’m desperate to believe it will be
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photos from when i was hospitalized
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