dragonaac

[dragonaac]

I want to scream. I need to use AAC, but I'm not allowed. Mouth words are harder and harder.

AAC isn't perfect. I can use only big grid, 3×7. I don't have much core words. But still I feel safe when I see my AAC.

[dragonaac]

You can't go nonverbal, because being nonverbal is pernament state. What you are experiecing you can call verbal shutdown, loss speech episode.

Many people say that the dictionary definition is different, so I will overtake you possible defense. Book shouldn't be above the words of one of the most marginalized people in society. Nonverbal people say that you can't go nonverbal and if you are using it, you are taking space in place that you don't belong to. And if my words aren't convincing (and if are convincing it is worth too)- learn about experience of nonverbal people. Watch media featuring nonverbal people. Jordyn Zimmerman is one of the greatest example. Loop is a short pixar video about nonverbal girl. Her voice was dubbed by real nonverbal autistic women. Communication first have some great videos. Out my mind is also great book and movie. There are also many nonverbal people on tumblr. You can find them in the tag like "nonverbal". In tags like "aac", "aac user", "aac device" you can also find them, but also more aac user, some are like you. Typically I write comments not reblog, but because you rebloged and I don't know if I put comment under it will be attached to you reblog or not, I thinkt more safe option is to write reblog. Not nonverbal myself, I just listen to nonverbal people.

Okay I know accessibility devices are never one-size-fits-all and that there’s a use case for these somewhere, but I can’t stop imagining trying to talk to someone at a party and they look at you and move the level down a few ticks

[dragonaac]

My safe food is chocolate milk. I drink it a few time a week, sometimes daily. It's a lot of plastic. Chicken nuggets, pierogi, pizza, frozen vegetables and fruits (raspberries my beloved), kabanos sausages which I need to eat with every soup, because I can't stand it without it also comes in plastics.

I'm low support needs, so I have more opportunities, but still, I can't live without that kinds of food.

What also is sad for me is that eating pig related things are banned in my religion (pork, gelatine, etc.), but I can't live without that. Although in my situation it isn't a sin, I still really would like to be able to obey the rules.

Being disabled can be really not environmentally friendly and not helpful for the world issues,

I can only wear the same joggers due to sensory issues, i also cant wear them washed due to sensory issues, i can only wear the same brand new(unwashed, cant wear when been washed) joggers.

Though wear same one multiple times and I normally only wear them when i leave the house though which is rarely.

Most days i eat fast food due to selective eating due to my autism, my family have to go car rides daily just for my food, and fast food like McDonald's and subway which are very bad companies but i would get very ill if i cut them out.

Can only take baths due to sensory issues with the sound of the shower, sometimes my mum might run the bath but then i end up not having the bath because i end up too tired

Cant go vegan, cant wear a mask, cant do any in real life advocacy, cant stop using apple products

Most "heres how you can help!" Things i just cant do, even things online i am so bad at being able to put money for things

i dont know how to use go fund me, or make my money into American money so i can donate to people who want America money, I don't remember my post code so a lot of donating sights ask where you live

Most of the the "heres some accessible ways to help if your disabled!" I cant do and i know well if i cant do it it doesnt apply to me, so i try not to take it to heart but it is upsetting i cant

More things maybe, being disabled is not always good for the environment and good for the world, sometimes things we cant help effect. And thats really sad.

[dragonaac]

Remember that even with the small grid (like 20 buttons per page) it's still possible to make a robust board set. It will need a lot of navigation and if you want to have more complex words it will be many pages from the home board, but it's possible. So if you think that the small grid will be more helpful, try it. Here are two example, not ideal, but good enough in my opinion Sequoia 15 Sequoia is something between core board and the podd (Pragmatic Organisation Dynamic Display). The grid is 3 x 5 buttons, so 15 buttons per page. This board set has almost 1900 buttons. For many it's still too little, but this board set still allows to talk about most aspects of life.

CommuniKate 20 This board set is 4 x 5, so 20 buttons per page. It's made for people, who rely on enviroment and context to communicate. The total number of buttons is about 1200. 700 less than sequoia, but it still allows to talk about most aspects of life.

I'm making my own board set and it has gride size of 4 x 5. So 20 buttons per page. I'm far away from done and it has already over 700 buttons.

[dragonaac]

Not exactly what you asked for, but I wrote it on today morning. "I eat the donut Milka. It's my breakfast that I eat every Saturday"

Image description: a screenshot of the dialogue window with symbols and words in Polish end id.

Respond with AAC if can !

[dragonaac]

If you use TD Snap do not update it. The update is causing apps to crash and users to get corrupted. Some people we know are managing to have their pagesets restored but ours is not.

[dragonaac]

If you are not nonverbal/nonspeaking this question is NOT for you.

(Option at the end for you!!!)

If you think any other amount of time or want to be more specific, then comment or reblog saying it!

If you are not nonverbal/nonspeaking this question does not apply to you! But feel free to reblog so more nonverbal/nonspeaking people can see then reply!

If you are nonverbal or nonspeaking you are welcome to rebloging this with your opinion on it! :D

[dragonaac]

What do you define early diagnosis of autism as?

Please reblog so that lots of people can see and then answer!

[dragonaac]

Paradox of me: I want to do AAC advocacy, but I can't use AAC whenever I want, so I can do it really rarely, becuase my experiences are almost nonexisting

[dragonaac]

My friend just made the best nick for me.

draacon

(drAACon)

She's the best.

[dragonaac]

Research is a real work. Sharing a knowledge is a real work. Don't work for free. Instead, when you can, share it in your community, where you know, that your knowledge wouldn't be undervalued. Where you know, that you would get help, if other memebrs are able to do the thing you are asking for. I like being a wikipedia for my friends, but for other people - use a real wikipedia. I won't work for free. I know that you feel entitled to my knowledge, but it is just a feeling. You feel how hard work it is to find answers on your own and you are just looking for someone to do your job. Thank you for your praises, but no, it won't work on me. Of course as autistic person I love talking about what I know, but I don't always want to talk about it. And then I just shut up. I don't own anyone my knowledge. My fellow people, who have knowledge: gatekeep it whenever you don't feel like you have time or energy to share it. It's yours, not theirs.

[dragonaac]

I'm ocassional AAC user. 20 years old. Low support needs.

I use puzzle piece symbol 🧩 . I love it and think that it represents me and autism the best. Not forcing anything, it is my opinion.

One of my main special interests is AAC. Know many things and find this topic comforting.

I want to talk more about my autism, but I have hard time knowing what I can and want to share, so don't post much.

[dragonaac]

My special interest is AAC, so of course I randomly choose to start making another board, which I know that I never finish or use it. I was inspired by this board set: CoughDrop I might delete this post later, becuase I don't like to share my AAC. Image description: aac board with grid size 3 by 8. Most buttons are gray and have pictures. None has a label.