endostage4fighterworld-blog

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The Beginning

 Lets back up a bit to when I first felt the symptoms. Be aware; I will be going into detail so that you can compare your symptoms to mine.

So, I can't remember exactly when I actually started my period, but what I do remember is that it was early and painful. When I was about 12 years old I developed anaemia (not enough iron in the blood). I took Iron pills and got that under control. Then a few years later my thyroid went out of whack. I was always getting sick, catching anything that was going around. 

Fast forward to my late teens, early 20′s. The cramps start. crippling bent over in agony kind of cramps. It seriously felt like I was being stabbed in the gut multiple times. The cramps would start in my pelvis area, down my thighs and into my lower back. I also started with intense pain on my left side. When I went to my gyno, he scheduled me for my first lap surgery, mostly because i had a cyst on my left ovary.

This surgery is one that I don’t really remember so I'm thinking at that time the Endo had to be stage 1. I do remember the doctor saying they had to remove some fibroids but that's about it.

Fast forward to a few years ago. I started getting widespread pain. Not only my “normal “ cramping but now my back, my shoulders, my feet, my hips, everything hurt. I honestly thought at 25 that I was going to fall apart. Sometimes walking was super difficult, and movement, in general, was hard. I was so tired that even showering was a major chore. If being in pain all the time wasn't enough, I also had major stomach issues. I was either constipated for days, or I couldn't stop going to the bathroom. Because of all these symptoms, they decided to label me with Fibromyalgia. I took that diagnosis hard. I'm usually a very active girl. Does this mean I’m just going to be a bump on the log for the rest of my life? As years went on I took up yoga and tried my very best to live a healthy normal happy life. 

But this couldn't be it. I'm still sleeping all day, pain is still there, and my periods were getting worse. Cramps were intensifying, and I’m now passing clots the size of quarters. It came to a point where I seriously only had one week without symptoms, and even that was few and far between.

I went back to my doctor to get a referral to an OBGYN. Finally, in July of this year, I got an appt. In the apt, I discussed my symptoms and how I have 1 aunt who had a hard time having her son and another who couldn't have kids at all. At this time he believed that the IUD would be our best choice. With him being the doctor I believed him and got the IUD.

Sept 19th of this year I got the IUD in.. I was so excited to hope that this will finally give me a life back. It would give me 0 periods and I could be back to the “normal “ me. 

Well, that did not happen. 7 weeks later and I was still bleeding constantly, and the pain was over 10. Finally, I decided that I can't deal with it, so I went to emerge 3 times that week. The first 2 times they gave me a pain shot and sent me on my way. The third time, they finally decided to do an ultrasound. Before the ultrasound, I  thought for sure it was in the wrong place. When we got the results back, everything was normal. Suprise Suprise. My whole life revolves around normal tests. Blood tests, ultrasounds, all came back normal! Always.

When I went back to emerge to get my results, my OBGYN came in. He was about to remove my IUD when he suddenly remembered me talking about Endo, and decided to do another Lap. That's when finally all the different doc apts finally paid off! He was finally listening to me! Even though  I was excited to finally have some answers, there was always that fear that they open me up and see nothing, just like all my tests. But deep down I knew something was wrong. 

And sure enough it was there! Endo stage 4! I wasn't crazy, and finally felt validated! But I will go into more detail in my next blog!

I hope you read this and it speaks to you! Never stop fighting guys! Only you know you!

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Umm ya uterus!!! Get your act together!!!

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A  little Endo Humour!!!! If you cant laugh about it your going to go crazy!!!!

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Introduction: Who am I?

Hi! Let me start off by introducing myself! My name is Kasia, I am 30 years old and a full time educational assistant. I also have stage 4 Endometriosis.

I finally got my diagnosis when I went for my Lap surgery Nov 5th 2018. But my symptoms, and quality of life was just swept under the rug for years. I was just made to feel that being in the fetal position during my period was “normal”, or having major cramps before a bowel movement everyone had. I had just came to terms with this will always be my life. 

It wasn’t until i got the IUD to “help” my periods, that my doctor finally realized that there was something more. I had 7 weeks of constant pain and bleeding, and have gone to emerge 3 times within a week because of the excruciating pain. Just before he was about to remove the IUD he decided to do a Lap because of my history and genetics (ill go more into this in my next few blogs) 

After the surgery, he was just shocked by the amount of Endo that was in my body. My uterus was black and my left fallopian tube was connected to my bowel. I friggen knew i wasn’t crazy!!! But i have been going to doctors for years, making me feel like nothing is going on and that i just had “bad periods”

The purpose of this blog is to share my story, and raise awareness fir those who are going through the same things. This particular blog was just to introduce my story and myself. The next few ill go into detail about my story and my journey up to now! I hope that this helps those who have been told by doctors that they have nothing going on, and make them realize that there is and to fight for your body! 

Thanks so much for reading guys! Stay tuned for much much more