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been playing KH again

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get you a partner who loves you as much as walking canes love falling to the floor at every opportunity.

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Why the fuck am I reaction badly to unprocessed cucumber but not processed this is the opposite of every low histamine thing I've read ☹️

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they should invent a painkiller that also gives you energy and makes you not feel like a corpse all day long

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To fellow physically disabled people I highly recommend saying PARKCORE whenever you try to stand up. Makes the struggle very epic poggers.

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I'll make more of I need to

These really shouldn't have to be said but the frequency this is happening is getting beyond annoying

You have different spaces stop cross tagging and derailing posts

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I've been disabled for almost 29 years. Here's what I've learned.

Tablets sink and capsules float. Separate out your tablets and capsules when you go to take them. Tip your head down when taking capsules and up when taking tablets. Liquigels don't matter, they kinda stay in the middle of whatever liquid is in your mouth.

If your pill tastes bad, coat it with a bit of butter or margarine. I learned this from my mom, who learned it from a pharmacist.

Being in pain every day isn't normal. Average people experience pain during exceptional moments, like when they stub their toe or jam their finger in a door, not when they sit cross-legged.

Make a medical binder. Make multiple medical binders. I have a small one that comes with me to appointments and two big ones that stay at home, one with old stuff and one with more recent stuff.

Find your icons. Some of mine include Daya Betty (drag queen with diabetes), Stef Sanjati (influencer with Waardenburg syndrome and ADHD), and Hank Green (guy with ulcerative colitis who... does a bunch of stuff). They don't have to be disabled in the same way as you. They don't even have to be real people. Put their pictures up somewhere if you want; I've been meaning to decorate my medical binders with pictures of my icons.

Take a bin, box, bag, basket, whatever and fill it with items to cope with. This can be stuff for mentally coping like colouring books or play clay or stuff for physically coping like pain medicine or physio tape.

Decorate your shit! My cane for at home has a plushie backpack clip hanging from the end of the handle and my cane for going places is covered in stickers. All of my medical binders have fun scrapbooking paper on the outside. Sometimes, I put stickers and washi tape on my inhalers and pill bottles. I used my Cricut to decorate my coping bin with quotes from my icons, like "I've seen enough of Ba Sing Se" and "I need you to be angrier with that bell".

If a flare-up is making you unable to eat or keep food down, consider going to the ER. A pharmacist once told me that since my eye flares can make me so nauseous that I cannot eat, then I need to go to the hospital when that happens.

Cola works wonders for nausea. I have mini cans of Diet Pepsi in my coping bin.

Shortbread is one of the only things I can eat when nauseous. Giant Tiger sells individually-wrapped servings of shortbread around Christmas or the British import store sells them year-round. I also keep these in my coping bin.

Unless it violates a pain contract or something, don't be afraid to go behind your doctor's back to get something they are refusing you. I got my cardiologist referral by getting in with a different NP at my primary care clinic than who I usually saw. I switched from Seroquel to Abilify by visiting a walk-in.

If you have a condition affecting your abdomen in some way (GI issues, reproductive problems, y'know) then invest in track pants that are too big. I bought some for my laparoscopy over a year ago and they've been handy for pelvic pain days, too. I've also heard loose pants are good for after colonoscopies.

Do whatever works, even if it's weird. I've sat on the floor of the Eaton Centre to take my pills. I've shoved heating pads down my front waistband to reach my uterus.

High-top Converse are good for weak ankles. I almost exclusively wear them.

You can reuse your pill bottles for stuff. I use my jumbo ones to store makeup sponges and my long skinny ones to hold a travel-size amount of Q-Tips.

Just because your diagnostics come back with nothing, it doesn't mean nothing is wrong. Maybe you were checking the wrong thing, or the diagnostic tool wasn't sensitive enough. I have bradycardia episodes even though multiple cardiac tests caught nothing. I probably have endometriosis even though my gynecologist didn't see anything.

You can bring your comfort item to appointments, and it's generally a green flag when someone talks to you about it. I brought a Squishmallow turkey (named Ulana) to my laparoscopy and they had her wearing my mask when I woke up. I brought a Build-A-Bear cat (named Blinx) to another procedure and a nurse told me that everyone in the hall on the way to the procedure room saw him and were talking about how cute he was. Both of those ended up being positive experiences and every person who talked to me about my plushies was nice to me. If you don't feel comfortable having it visible to your provider during the appointment, you can hide it in your bag and just know it's there, or if you're in a video appointment, you can hold it below frame in your lap.

Get a small bucket, fill it with stuff, and stick it in your bed (if you have room for it). I filled a bucket with Ensure, juice boxes, oatmeal bars, lotion, my rescue inhaler, etc. in October 2023 in anticipation of my laparoscopy and I still have it in my bed as of January 2025.

If your disability impacts your impulse control (e.g. ADHD, bipolar disorder), you should consider setting limits around your spending -- no more than X dollars at a time, nothing online unless it's absolutely necessary, and so on. Or, run these purchases by someone you trust before committing to them; I use my BFF groupchat to help talk sense into myself when I buy stuff.

Feel free to add on what you've learned about disability!

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I was really struggling with some of the new stretch marks for a while becuase I was like fuck does this mean I'm losing progress and shit

But like they're kind of cool looking tbh like they frame my body

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"everyone should care about accessibility because most people will become disabled at some point in their life" is a logical argument and I understand its popularity

however, everyone should care about accessibility because disabled people are fellow human beings living in the same society as you who deserve the same rights as you

thank you good night

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it shouldn’t be a fucking radical take to say that calling people delusional as an insult is bad and that disability is morally neutral in a punk space

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I know we talk a lot about keep jumping on boxes, but I'm honestly so grateful for Joe hills' knife theory; a variation on spoon theory that says once you're out of spoons, you can choose to take knives instead in the knowledge that it will hurt later. and the number of times I've told myself 'ok let's take the knives' is so high that I've found it really helps to acknowledge it. Thanks, Joe

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i NEED someone to research how like disability and discovering you're disabled/becoming disabled affects the mind

yeah I know a lot of it is social implications and how society treats disabled people differently but also some conditions like chronic pain have got to affect the mind

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I'm pissed off actually. Apparently he couldn't taste anything yesterday and didnt tell anyone. He's a grown ass man he should know better. The holiday can be a different day when you aren't exposing your entire family to covid

Family member at holiday event yesterday just tested positive for covid jesus christ

I haven't gotten covid. Ever. Because I've taken so many percaciouns i really hope I don't get it now

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the next time i go to the cripplepunk tag or sum and see some hoe with adhd talking sum about 'adhd paralysis' or 'how adderall is LITERALLY lifesaving!' or about how 'omg this post about physical disability is SO me but with my ADHD lol see I'm included', I will show up to their house and replace all of their food with bricks and replace all of their clothes with bamboo paper and replace all water in their home with slightly out of date soy milk an-

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Family member at holiday event yesterday just tested positive for covid jesus christ

I haven't gotten covid. Ever. Because I've taken so many percaciouns i really hope I don't get it now

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Omg my POTS hasn't been that bad recently!!

WRONG heart rate at 150 after 5 minutes of walking

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Hey, a quick PSA for people with POTS: it can be really dangerous for us to get breathing treatments, and abuterol inhalers can also be iffy.

I had to go to the urgent care yesterday and completely lucked out on a Dr super knowledgeable about POTS, because usually I’m having to educate them on it.

It makes total sense, because breathing treatments can spike heart rates in patients without POTS, but it never would have occurred to me.

He said if I absolutely needed one he would prefer to see it administered at a hospital, but gave me alternative medications that play nice with POTS. He gave me an abuterol inhaler for absolute emergency, but I can’t take it standing and I need to be monitoring my heart rate after I use it.

I know a lot of us are in the position of having to tell our doctors things, so I wanted to share.