goldtiger16

[goldtiger16]

I have basically spent the past 24 hours passed out and I am still too exhausted to get anything done. #seizuressuck #autismandepilepsy (at Fredericksburg, Virginia) https://www.instagram.com/p/B1jH3AkBNdI/?igshid=pjtinp7pjhi

[goldtiger16]

at Gaithersburg, Maryland https://www.instagram.com/p/B0OAs8GFQl3/?igshid=5yggnrhvx249

[goldtiger16]

at Maryland https://www.instagram.com/p/B0N_51SFF6L/?igshid=21foishhnp32

[goldtiger16]

how did you get diagnosed with epilepsy?

I had a tonic-clonic seizure that landed me in the ER. Wife demanded that they perform an EEG and did not stop demanding until they scheduled one.

Several days after the tonic-clonic seizure they finally did the EEG, and a good thing, too! They recorded epileptiforms in my temporal lobe, both while awake and while sleeping.

Epileptiforms show up for many reasons, including some not related to epilepsy. In my case they were very clearly epileptic.

In my case, they were interictal epileptiforms associated with focal seizures. Basically, there is a specific type of epileptiform that shows up between focal seizures that means you had (and will have if not treated) focal seizures.

They recorded these in my temporal lobe, and temporal lobe epilepsy is usually a focal epilepsy. This means that seizures do not leave the temporal lobe and become tonic-clonic.

It also means that the diagnoses was very easy to get. Everything pointed to a single possible diagnosis, and all the diagnostic traits were easy to identify and record. This is pretty unusual for my type of epilepsy and if it weren’t for Wife, I would not have gotten this diagnosis. I got lucky.

As for the tonic-clonic, focal seizures can generalize and become tonic-clonic when the body is under extreme acute stress. Both times I had a tonic-clonic seizure, this was the case.

[goldtiger16]

Reblog if you know the struggle of EEG glue

[goldtiger16]

???

STOP TAGGING FLASHING IMAGES WITH “EPILEPSY” YOU ABSOLUTE SEA SPONGES.

BECAUSE GUESS WHERE IT GOES?

THE EPILEPSY TAG.

WHERE ALL THE EPILEPTICS ARE.

[goldtiger16]

Please Spread the word!! This is a very important issue that everyone should be aware of!!!

[goldtiger16]

Let’s kill some propaganda, shall we?

Autism does not cause seizures.

Epilepsy causes seizures.

Autism and epilepsy can and do occur together.

An autistic person who also has epilepsy will have seizures.

An autistic person who does not have epilepsy won’t have seizures. 

Epilepsy can develop at any point in a person’s life. Sometimes it is spontaneous, and sometimes it happens after a head injury.

Autism is present in the genes before birth and will often manifest before a child turns 2, though it may not be noticed until they are 3 or sometimes 4. 

Sometimes children who are responsive and starting to speak appear to lose those abilities because their autism genes turn on right around the time they get their first vaccines, leading to the false conclusion that vaccines cause autism. The truth is the child likely showed subtle signs long before they got “obviously” autistic, but the parents missed it. (For example: As a baby, I hated eye contact with anyone and cried if people tried to cuddle me. Btw I can speak, but it’s not easy.)

If you see ANYTHING that says autism causes seizures or that vaccines cause autism, disregard it. It is fear mongering propaganda feeding you lies.

[goldtiger16]

[goldtiger16]

[goldtiger16]

[goldtiger16]

So, here’s something cool my Church did. Because July is special needs month, they’ve set up posters around the church to spread awareness about the needs of people with autism, cerebral palsy, and epilepsy. I think what they’re doing is pretty cool.

[goldtiger16]

If you are having seizures

go and get diagnosed! Even if it's expensive, even if you have them once a year, even if you want to keep driving.

This shit will seriously damage your brain. You need treatment.

Here's my story. I started having seizures at 14: every nine months I'd have a grand mal and it'd take me days to recover. My parents paid for a quick EEG and MRI, and when nothing was found they decided to move on because a) they thought a kid with epilepsy is embarrassing, b) they believed epilepsy meds fuck you up big time, c) they decided it is a phase and somehow my fault. For years I was tought that I should not tell anybody about these episodes, that I have them because I'm difficult and that I'm a disgrace to my family. Of course, I wasn't properly diagnosed and didn't receive treatment.

My grand mals were now happening monthly, I would sometimes get clusters and multiple focal seizures during the day. My mental health detiriorated, I'd get episodes of severe depression and daily panic attacks. I finished school, moved out and started drinking (only to have seizures next morning). Those were dark times but I was still afraid to get diagnosed because it could somehow make me even more of a failure.

I only decided to seek treatment when I realised I was 24, lonely, unemployed and afraid to leave the house. I started developing psychotic symptoms and needed to do something asap. It took me a month to get diagnosed with epilepsy and start taking meds. Of course, the damage was done and I will never fully get rid of hallucinations, focal seizures and constant fatigue but meds finally allowed me to start living again. My parents were furious and tried to convince me that meds would make me feel even worse (lol) but I finally told them to fuck off.

A few years have passed. Right now I am being treated for epilepsy and various mental conditions (that could have been avoided if I started treatment earlier). I have a job, am planning to get a second degree, and the future looks brighter.

So if you are having seizures, GO GET DIAGNOSED. It may or may not be epilepsy but, please, don't repeat my mistakes.

[goldtiger16]

me, epileptic but medicated: yeah I think I'm doing okay. I know how to stop twitching if Im gonna have a seizure. I could go off my medication

my neurologist: o-okay. But you still could have a SEIZURE and PERISH at any second also you cannot be alone ever at all. If this fails you will be on meds for the rest of your life. No pressure

[goldtiger16]

Happy Autistic Pride Day to my fellow Autists! https://www.instagram.com/p/By3NsnlBwV9/?igshid=1dpspho7u6ctr

[goldtiger16]

Cogent point https://www.instagram.com/p/ByjN9yNhb3X/?igshid=xobtnd9c46lx

[goldtiger16]

My night time routine (at Parkridge, Maryland) https://www.instagram.com/p/Bx3YQVWFcKQ/?igshid=1przvqotuc4gl