headpainmigraine

[headpainmigraine]

Gotta speak to the DW fucking P tomorrow

After the usual 40 min wait gonna tell them I'm worried about the looming stock market crash, and will investing in gold affect my ESA payments

[headpainmigraine]

Cripplepunk IS inclusive of mentally ill people - mentally ill people who are also physically disabled

[headpainmigraine]

Seriously, I love how disability is handled in Adventure Time.

Things I Love About Adventure Time:

- Finn's straight up enthusiasm for body modification

- Plus the loss of his arm and use of a prosthetic/replacement arm in his future and in his alternate universe and its mostly desirable or just a fact of his character, like blond hair or his hat

- old/recovered media is always in VHS format

- Gob/Glob/Grob/Grod

- their exclamations 'oh my crease!' 'Mathematical!' 'What in my life?' 'Oh my bjork!'

- science is cool

- and so is math

- Lemongrab.

And many more!

[headpainmigraine]

funniest ask i've ever gotten is "you claim to be a trans women but u talk an awful lot about transmasc issues"

which is transmisogynistic on several levels but the funniest part to me is this person was so mask off about what transandrophobia is. Some people genuinely live in a world where trans women are 'supposed' to hate all other trans people and isolate ourselves from them..

[headpainmigraine]

A definite 14

Which one is closest to yours? Mine is like 6ish-7ish.

[headpainmigraine]

So fucking sick of disability admin

The way I can feel my pulse speed up and my breath come short whenever I get a letter in the post

The blood running out of my face as I read it

The aching stress when I have to add another thing on the to-do list

Freaking out because I have to make 2 different phone calls to 2 different departments in the same fucking office

Staying on hold for 40 fucking minutes each with ear-fucking hold music, thanks, my main complaint isn't migraines at all, I love horrible 8 bit music right in my sound-sensitive ears for over half an hour

The Internet nonsense that answers questions at the speed of 6 to 10 working days

Aware all the time that they give me money and they can take it away and charge me overpayment, just like that

The nausea

The sleepless nights

The nausea

The stress nightmares

The nausea

But no, nah, that's normal, it's normal to shake with anxiety before you open an innocuous letter, that's fine, everybody does that pfh

[headpainmigraine]

FUCK RIGHT OFF BACK TO HELL WHERE YOU CAME FROM. DON'T COME HERE WITH YOUR FAKE ASS ACCOUNT AND SPEM COMMENT THIS SHIT ON MY PAGE!!

FUCK RIGHT OFF. FUCK. RIGHT. OFF.

HOW DARE YOU TRY TO TAKE ADVANTAGE OF THE PEOPLE HERE. FUCK OFF.

[headpainmigraine]

USABLE time, maybe 4 hours on average

I saw someone say she has 4 usable hours on a day. The other hours she needs to rest and this shifted my perspective a bit. Healthy people have like 12 hours per day where they can do stuff. I, if I'm lucky, have an hour spread over the day (at the moment).

So how many usuable hours do you have on a day?

[headpainmigraine]

Just because it's my field of experience, and I've seen this in some migraine spaces, migraines aren't TBI's either

As far as medical knowledge extends right now, you can see some changes in grey matter in MRI's, and certainly there are cognitive problems, redirection of blood in the brain, and aura that causes serious sensory issues,

But it doesn't actually cause brain damage, nor is it brain injury

I'm all for pushing back when people suggest migraine is a headache, because its not, but we don't have to say its brain damage or injury when it isn't either

We shouldn't be taking terminology or space that's designed and designated for people with TBIs

neurodiversity isn’t inherently “actual literal brain damage” I know you are desperate for people to take you seriously but tossing people with brain damage overboard and then claiming you’re them isn’t it

[headpainmigraine]

actually if you’re disabled i think it’s okay to be a bit of a bitch. people already don’t believe us or are pushy about how they THINK we should exist to fit into their narrative. i’ve been physically disabled for a decade and i spent over half of that time letting people push me around, dictate how my body felt, what i was capable of doing vs what i wasn’t and so on and it made everything WAY worse. in the past couple of years ive gotten…well bitchy about being disabled, because no one else feels the way that i feel in this body and if not letting people bully/boss around my disability makes me a bitch. then i guess im a bitch.

[headpainmigraine]

British =/= Englishman, please

'I hate the British, I love the Scots'

'All British people are white'

'Oh, I love Wales and hate Britain'

You stupid fuck.

[headpainmigraine]

All the AGAB nonsense in the comments is making me tired.

the nonbinary character requirement guide

if you're nonbinary and have all of these traits you are still cool imo. i just wish there was more nonbinary variety out there in the public consciousness

[headpainmigraine]

You people NEED to realise that lesbians and other Queer people can be actively racist or xenophobic

Being a minority in one way doesn't mean you can't be a bigot. It's not an exemption clause.

Queer people are still people, and sometimes a lesbian can be a piece of shit xenophobe racist.

[headpainmigraine]

-_-

alright I've had enough. @/chronicillnesshumor steals art and content from other artists and ignores or blocks requests to give credit or take down uncredited artwork. this post here is a repost of my original artwork here, and as you can see in the screenshot below and notes of the stolen post, they have not even acknowledged my request to have it taken down. this creator steals from other disabled and chronically ill people to advertise for their etsy and redbubble stores. I don't know about you but I cannot stand to see someone use disabled people's stolen artwork to make themselves more money

block if you want. this isn't really a callout, more an awareness post. but please support artists instead of thieves

[headpainmigraine]

If you have a disability and the accommodation would help you, it's for you.

If you DONT have a disability, and the accommodation would be more convenient, like not having to close up your stroller on the bus, then it isn't FOR you, you're borrowing it,

and because those people don't understand that it's not a convenience for them, it's a accommodation for us, it's rude and ableist

Even if you think you're not taking it from someone else, because you can't be sure

I just took your question at it's word. It sounded like you were asking if people who didn't need the accommodation- non disabled people - could use our accommodations when it was convenient.

An abled person using disabled accommodation is always taking it from someone else who needs it.

Reblog for sample size <3

[headpainmigraine]

Immediately thought of wheelchair spaces on buses and rains and said yeah, it's ableist and rude because you abled fucks never move for the people who actually need them

Until you people learn you're borrowing a resource that's not for you, and can act appropriately, then yeah, ableist, rude and selfish

Reblog for sample size <3

[headpainmigraine]

Its absolutely despicable that 99% of other CRPS warriors i have met have either:

Never heard of ketamine

Want to try it but doctor refuses

Want to try but no local ketamine infusion clinic

Or cannot afford because ketamine is only covered by 2 different insurances

This fucking MEDICATION is the ONLY medication that has consistently changed the lives of people with crps. ITS LIKE WHAT CHEMO IS FOR CANCER and people never even get to try it. Most people with CRPS are living incredibly hard lives because our pain is severe yet not taken seriously, and we are expected to just deal with it!! When ketamine HAS THE POTENTIAL TO UNDO PERMANENT DAMAGE AND PERMANENTLY REDUCE PAIN AND PUT PEOPLE INTO REMISSION.

I FUCKING HATE THIS PLACE!!! WE DESERVE BETTER AND MOST OF US DON'T EVEN KNOW IT!!